Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission

Detalhes bibliográficos
Autor(a) principal: Freire, Imara Moreira
Data de Publicação: 2024
Outros Autores: Minayo, Maria Cecília de Souza
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Pesquisa Qualitativa (Online)
Texto Completo: https://editora.sepq.org.br/rpq/article/view/660
Resumo: This study examines the psychosocial effects of silence, secret, and secrecy surrounding the diagnosis of HIV/AIDS in young people infected through vertical transmission. Ten young individuals between the ages of 12 and 17, treated at a specialized outpatient clinic of a public hospital known for its expertise in this population's healthcare, who were aware of their serological status, were included in the research. Qualitative methods such as semi-structured interviews and analysis of medical records were employed. The study explored various aspects, including the participants' profiles, vertical transmission mechanisms, disclosure impacts, coping maturity, parental and caregiver roles, and scientific advancements. The findings revealed that secrecy contributes to the stigmatization of HIV. These results are crucial to guide parents, caregivers, healthcare professionals, educators, and policymakers on enhancing communication strategies, counseling, and support for young people in a respectful and suitable manner.
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spelling Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmissionSilêncio, segredo e sigilo: desafios da revelação do diagnóstico de HIV/AIDS em jovens infectados por transmissão verticalAdolescent healthHIVTruth disclosureFamilySaúde do adolescenteHIVRevelação da verdadeFamíliaThis study examines the psychosocial effects of silence, secret, and secrecy surrounding the diagnosis of HIV/AIDS in young people infected through vertical transmission. Ten young individuals between the ages of 12 and 17, treated at a specialized outpatient clinic of a public hospital known for its expertise in this population's healthcare, who were aware of their serological status, were included in the research. Qualitative methods such as semi-structured interviews and analysis of medical records were employed. The study explored various aspects, including the participants' profiles, vertical transmission mechanisms, disclosure impacts, coping maturity, parental and caregiver roles, and scientific advancements. The findings revealed that secrecy contributes to the stigmatization of HIV. These results are crucial to guide parents, caregivers, healthcare professionals, educators, and policymakers on enhancing communication strategies, counseling, and support for young people in a respectful and suitable manner.Este artigo busca compreender os efeitos psicossociais do silêncio, segredo e sigilo relacionados ao diagnóstico de HIV/aids em jovens infectados por transmissão vertical. Utilizando abordagem qualitativa, foram realizadas entrevistas semiestruturadas e análise de prontuários. A pesquisa incluiu dez jovens de idades entre 12-17 anos, que conhecem seu status sorológico, atendidos em ambulatório especializado de hospital público de referência no cuidado em saúde dessa população. O estudo abordou o perfil dos participantes, os mecanismos de transmissão vertical do vírus, os impactos da revelação, o amadurecimento no enfrentamento da doença, o papel dos pais e cuidadores, e os avanços científicos e tecnológicos. Os resultados destacaram que o segredo reforça a percepção do HIV como tabu. Essas descobertas são fundamentais para orientar pais/cuidadores, profissionais de saúde, educadores e formuladores de políticas, aprimorando as estratégias de comunicação, aconselhamento e suporte oferecidos aos jovens de forma respeitosa e adequada.Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ2024-03-20info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://editora.sepq.org.br/rpq/article/view/66010.33361/RPQ.2024.v.12.n.29.660Qualitative Research Journal ; Vol. 12 No. 29 (2024): Janeiro/Abril: Publicação Contínua; 95-118Revista Pesquisa Qualitativa; v. 12 n. 29 (2024): Janeiro/Abril: Publicação Contínua; 95-1182525-82221809-025710.33361/RPQ.v.12.n.29reponame:Revista Pesquisa Qualitativa (Online)instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)instacron:SE&PQporhttps://editora.sepq.org.br/rpq/article/view/660/402Copyright (c) 2024 Revista Pesquisa Qualitativahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessFreire, Imara MoreiraMinayo, Maria Cecília de Souza2024-03-21T01:22:25Zoai:editora.sepq.org.br:article/660Revistahttps://editora.sepq.org.br/index.php/rpq/indexONGhttps://editora.sepq.org.br/index.php/rpq/oai||revista.rpq@gmail.com2525-82221809-0257opendoar:2024-03-21T01:22:25Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)false
dc.title.none.fl_str_mv Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
Silêncio, segredo e sigilo: desafios da revelação do diagnóstico de HIV/AIDS em jovens infectados por transmissão vertical
title Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
spellingShingle Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
Freire, Imara Moreira
Adolescent health
HIV
Truth disclosure
Family
Saúde do adolescente
HIV
Revelação da verdade
Família
title_short Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
title_full Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
title_fullStr Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
title_full_unstemmed Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
title_sort Silence, secrecy and confidentiality: challenges of disclosing the HIV/AIDS diagnosis in young people infected by vertical transmission
author Freire, Imara Moreira
author_facet Freire, Imara Moreira
Minayo, Maria Cecília de Souza
author_role author
author2 Minayo, Maria Cecília de Souza
author2_role author
dc.contributor.author.fl_str_mv Freire, Imara Moreira
Minayo, Maria Cecília de Souza
dc.subject.por.fl_str_mv Adolescent health
HIV
Truth disclosure
Family
Saúde do adolescente
HIV
Revelação da verdade
Família
topic Adolescent health
HIV
Truth disclosure
Family
Saúde do adolescente
HIV
Revelação da verdade
Família
description This study examines the psychosocial effects of silence, secret, and secrecy surrounding the diagnosis of HIV/AIDS in young people infected through vertical transmission. Ten young individuals between the ages of 12 and 17, treated at a specialized outpatient clinic of a public hospital known for its expertise in this population's healthcare, who were aware of their serological status, were included in the research. Qualitative methods such as semi-structured interviews and analysis of medical records were employed. The study explored various aspects, including the participants' profiles, vertical transmission mechanisms, disclosure impacts, coping maturity, parental and caregiver roles, and scientific advancements. The findings revealed that secrecy contributes to the stigmatization of HIV. These results are crucial to guide parents, caregivers, healthcare professionals, educators, and policymakers on enhancing communication strategies, counseling, and support for young people in a respectful and suitable manner.
publishDate 2024
dc.date.none.fl_str_mv 2024-03-20
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://editora.sepq.org.br/rpq/article/view/660
10.33361/RPQ.2024.v.12.n.29.660
url https://editora.sepq.org.br/rpq/article/view/660
identifier_str_mv 10.33361/RPQ.2024.v.12.n.29.660
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://editora.sepq.org.br/rpq/article/view/660/402
dc.rights.driver.fl_str_mv Copyright (c) 2024 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2024 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
dc.source.none.fl_str_mv Qualitative Research Journal ; Vol. 12 No. 29 (2024): Janeiro/Abril: Publicação Contínua; 95-118
Revista Pesquisa Qualitativa; v. 12 n. 29 (2024): Janeiro/Abril: Publicação Contínua; 95-118
2525-8222
1809-0257
10.33361/RPQ.v.12.n.29
reponame:Revista Pesquisa Qualitativa (Online)
instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
instacron:SE&PQ
instname_str Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
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reponame_str Revista Pesquisa Qualitativa (Online)
collection Revista Pesquisa Qualitativa (Online)
repository.name.fl_str_mv Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
repository.mail.fl_str_mv ||revista.rpq@gmail.com
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