The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
Autor(a) principal: | |
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Data de Publicação: | 2010 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UNIFESP |
Texto Completo: | http://dx.doi.org/10.1590/S1516-31802010000200006 http://repositorio.unifesp.br/handle/11600/5557 |
Resumo: | CONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice. |
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The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative studyExperiência de infectologistas frente à morte e ao morrer de seus pacientes ao longo da epidemia de AIDS na cidade de São Paulo: estudo qualitativoAcquired immunodeficiency syndromeDeathGriefPatientsPhysiciansSíndrome da imunodeficiência adquiridaMortePesarPacientesMédicosCONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice.CONTEXTO E OBJETIVO: Com o surgimento da síndrome da imunodeficiência adquirida (aids), em 1981, os infectologistas passaram por grandes modificações em sua prática assistencial. Este estudo tem por objetivo descrever e analisar as vivências de médicos infectologistas frente à morte e ao morrer de seus pacientes ao longo da trajetória da epidemia de aids na cidade de São Paulo. TIPO DE ESTUDO E LOCAL: Adotou-se a abordagem qualitativa. Foram entrevistados 20 médicos infectologistas pertencentes a cinco instituições hospitalares que atendem portadores de vírus da imunodeficiência humana (HIV)/aids no município de São Paulo. MÉTODOS: A composição da amostra foi realizada pelo processo de snowball e o tamanho da amostra determinado pelo critério de saturação. Para a análise do material obtido nas entrevistas, foi utilizado o procedimento da análise temática, que consiste em descobrir os núcleos de sentido existentes no conjunto do material obtido e que têm relação com o objetivo do estudo. RESULTADOS: Da análise do material obtido nas entrevistas resultaram três eixos temáticos: 1. O contexto inicial da aids e o impacto vivido pelos infectologistas; 2. Modificações na vinculação com os pacientes depois da introdução da terapia antirretroviral potente (HAART); 3. Lidando com a morte e o morrer. CONCLUSÕES: O estudo aponta para a importância de considerar, tanto na formação como no exercício profissional, o sofrimento, a sobrecarga emocional e os mecanismos adaptativos relacionados à morte e o morrer de pacientes.Universidade Federal de São Paulo (UNIFESP)Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training CenterState Health Department of São Paulo Institute of HealthUniversidade Federal de São Paulo (UNIFESP) Department of PsychiatryUNIFESP, Department of PsychiatrySciELOAssociação Paulista de Medicina - APMUniversidade Federal de São Paulo (UNIFESP)Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training CenterState Health Department of São Paulo Institute of HealthShimma, Emi [UNIFESP]Nogueira-Martins, Maria Cezira FantiniNogueira-Martins, Luiz Antonio [UNIFESP]2015-06-14T13:41:29Z2015-06-14T13:41:29Z2010-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion74-80application/pdfhttp://dx.doi.org/10.1590/S1516-31802010000200006São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010.10.1590/S1516-31802010000200006S1516-31802010000200006.pdf1516-3180S1516-31802010000200006http://repositorio.unifesp.br/handle/11600/5557WOS:000280210600006engSão Paulo Medical Journalinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP2024-08-04T23:37:48Zoai:repositorio.unifesp.br/:11600/5557Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestbiblioteca.csp@unifesp.bropendoar:34652024-08-04T23:37:48Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false |
dc.title.none.fl_str_mv |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study Experiência de infectologistas frente à morte e ao morrer de seus pacientes ao longo da epidemia de AIDS na cidade de São Paulo: estudo qualitativo |
title |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
spellingShingle |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study Shimma, Emi [UNIFESP] Acquired immunodeficiency syndrome Death Grief Patients Physicians Síndrome da imunodeficiência adquirida Morte Pesar Pacientes Médicos |
title_short |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
title_full |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
title_fullStr |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
title_full_unstemmed |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
title_sort |
The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study |
author |
Shimma, Emi [UNIFESP] |
author_facet |
Shimma, Emi [UNIFESP] Nogueira-Martins, Maria Cezira Fantini Nogueira-Martins, Luiz Antonio [UNIFESP] |
author_role |
author |
author2 |
Nogueira-Martins, Maria Cezira Fantini Nogueira-Martins, Luiz Antonio [UNIFESP] |
author2_role |
author author |
dc.contributor.none.fl_str_mv |
Universidade Federal de São Paulo (UNIFESP) Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training Center State Health Department of São Paulo Institute of Health |
dc.contributor.author.fl_str_mv |
Shimma, Emi [UNIFESP] Nogueira-Martins, Maria Cezira Fantini Nogueira-Martins, Luiz Antonio [UNIFESP] |
dc.subject.por.fl_str_mv |
Acquired immunodeficiency syndrome Death Grief Patients Physicians Síndrome da imunodeficiência adquirida Morte Pesar Pacientes Médicos |
topic |
Acquired immunodeficiency syndrome Death Grief Patients Physicians Síndrome da imunodeficiência adquirida Morte Pesar Pacientes Médicos |
description |
CONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice. |
publishDate |
2010 |
dc.date.none.fl_str_mv |
2010-01-01 2015-06-14T13:41:29Z 2015-06-14T13:41:29Z |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1590/S1516-31802010000200006 São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010. 10.1590/S1516-31802010000200006 S1516-31802010000200006.pdf 1516-3180 S1516-31802010000200006 http://repositorio.unifesp.br/handle/11600/5557 WOS:000280210600006 |
url |
http://dx.doi.org/10.1590/S1516-31802010000200006 http://repositorio.unifesp.br/handle/11600/5557 |
identifier_str_mv |
São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010. 10.1590/S1516-31802010000200006 S1516-31802010000200006.pdf 1516-3180 S1516-31802010000200006 WOS:000280210600006 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
São Paulo Medical Journal |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
74-80 application/pdf |
dc.publisher.none.fl_str_mv |
Associação Paulista de Medicina - APM |
publisher.none.fl_str_mv |
Associação Paulista de Medicina - APM |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UNIFESP instname:Universidade Federal de São Paulo (UNIFESP) instacron:UNIFESP |
instname_str |
Universidade Federal de São Paulo (UNIFESP) |
instacron_str |
UNIFESP |
institution |
UNIFESP |
reponame_str |
Repositório Institucional da UNIFESP |
collection |
Repositório Institucional da UNIFESP |
repository.name.fl_str_mv |
Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP) |
repository.mail.fl_str_mv |
biblioteca.csp@unifesp.br |
_version_ |
1814268320368558080 |