The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study

Detalhes bibliográficos
Autor(a) principal: Shimma, Emi [UNIFESP]
Data de Publicação: 2010
Outros Autores: Nogueira-Martins, Maria Cezira Fantini, Nogueira-Martins, Luiz Antonio [UNIFESP]
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Institucional da UNIFESP
Texto Completo: http://dx.doi.org/10.1590/S1516-31802010000200006
http://repositorio.unifesp.br/handle/11600/5557
Resumo: CONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice.
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spelling The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative studyExperiência de infectologistas frente à morte e ao morrer de seus pacientes ao longo da epidemia de AIDS na cidade de São Paulo: estudo qualitativoAcquired immunodeficiency syndromeDeathGriefPatientsPhysiciansSíndrome da imunodeficiência adquiridaMortePesarPacientesMédicosCONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice.CONTEXTO E OBJETIVO: Com o surgimento da síndrome da imunodeficiência adquirida (aids), em 1981, os infectologistas passaram por grandes modificações em sua prática assistencial. Este estudo tem por objetivo descrever e analisar as vivências de médicos infectologistas frente à morte e ao morrer de seus pacientes ao longo da trajetória da epidemia de aids na cidade de São Paulo. TIPO DE ESTUDO E LOCAL: Adotou-se a abordagem qualitativa. Foram entrevistados 20 médicos infectologistas pertencentes a cinco instituições hospitalares que atendem portadores de vírus da imunodeficiência humana (HIV)/aids no município de São Paulo. MÉTODOS: A composição da amostra foi realizada pelo processo de snowball e o tamanho da amostra determinado pelo critério de saturação. Para a análise do material obtido nas entrevistas, foi utilizado o procedimento da análise temática, que consiste em descobrir os núcleos de sentido existentes no conjunto do material obtido e que têm relação com o objetivo do estudo. RESULTADOS: Da análise do material obtido nas entrevistas resultaram três eixos temáticos: 1. O contexto inicial da aids e o impacto vivido pelos infectologistas; 2. Modificações na vinculação com os pacientes depois da introdução da terapia antirretroviral potente (HAART); 3. Lidando com a morte e o morrer. CONCLUSÕES: O estudo aponta para a importância de considerar, tanto na formação como no exercício profissional, o sofrimento, a sobrecarga emocional e os mecanismos adaptativos relacionados à morte e o morrer de pacientes.Universidade Federal de São Paulo (UNIFESP)Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training CenterState Health Department of São Paulo Institute of HealthUniversidade Federal de São Paulo (UNIFESP) Department of PsychiatryUNIFESP, Department of PsychiatrySciELOAssociação Paulista de Medicina - APMUniversidade Federal de São Paulo (UNIFESP)Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training CenterState Health Department of São Paulo Institute of HealthShimma, Emi [UNIFESP]Nogueira-Martins, Maria Cezira FantiniNogueira-Martins, Luiz Antonio [UNIFESP]2015-06-14T13:41:29Z2015-06-14T13:41:29Z2010-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion74-80application/pdfhttp://dx.doi.org/10.1590/S1516-31802010000200006São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010.10.1590/S1516-31802010000200006S1516-31802010000200006.pdf1516-3180S1516-31802010000200006http://repositorio.unifesp.br/handle/11600/5557WOS:000280210600006engSão Paulo Medical Journalinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP2024-08-04T23:37:48Zoai:repositorio.unifesp.br/:11600/5557Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestbiblioteca.csp@unifesp.bropendoar:34652024-08-04T23:37:48Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false
dc.title.none.fl_str_mv The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
Experiência de infectologistas frente à morte e ao morrer de seus pacientes ao longo da epidemia de AIDS na cidade de São Paulo: estudo qualitativo
title The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
spellingShingle The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
Shimma, Emi [UNIFESP]
Acquired immunodeficiency syndrome
Death
Grief
Patients
Physicians
Síndrome da imunodeficiência adquirida
Morte
Pesar
Pacientes
Médicos
title_short The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
title_full The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
title_fullStr The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
title_full_unstemmed The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
title_sort The experience of infectologists faced with death and dying among their patients over the course of the AIDS epidemic in the city of São Paulo: qualitative study
author Shimma, Emi [UNIFESP]
author_facet Shimma, Emi [UNIFESP]
Nogueira-Martins, Maria Cezira Fantini
Nogueira-Martins, Luiz Antonio [UNIFESP]
author_role author
author2 Nogueira-Martins, Maria Cezira Fantini
Nogueira-Martins, Luiz Antonio [UNIFESP]
author2_role author
author
dc.contributor.none.fl_str_mv Universidade Federal de São Paulo (UNIFESP)
Sexually-Transmitted Diseases-AIDS (STD-AIDS) Reference and Training Center
State Health Department of São Paulo Institute of Health
dc.contributor.author.fl_str_mv Shimma, Emi [UNIFESP]
Nogueira-Martins, Maria Cezira Fantini
Nogueira-Martins, Luiz Antonio [UNIFESP]
dc.subject.por.fl_str_mv Acquired immunodeficiency syndrome
Death
Grief
Patients
Physicians
Síndrome da imunodeficiência adquirida
Morte
Pesar
Pacientes
Médicos
topic Acquired immunodeficiency syndrome
Death
Grief
Patients
Physicians
Síndrome da imunodeficiência adquirida
Morte
Pesar
Pacientes
Médicos
description CONTEXT AND OBJECTIVE: With the emergence of the acquired immunodeficiency syndrome (AIDS) in 1981, infectologists' care practices went through great changes. The objective of this study was to describe and analyze the experiences of infectologists in dealing with death and dying among their patients, over the course of the AIDS epidemic in the city of São Paulo. DESIGN AND SETTING: A qualitative approach was used. Twenty infectologists from five hospitals that treat human immunodeficiency virus (HIV)/AIDS patients in the municipality of São Paulo were interviewed. METHODS: The sample was formed through the snowball process. The sample size was determined using the saturation criterion. To analyze the material obtained from the interviews, the procedure of thematic analysis was used. This consisted of finding the core meaning relating to the study objective, within the set of materials obtained. RESULTS: Analysis of the material obtained from the interviews led to three main themes: 1. The initial context of AIDS and its impact on infectologists; 2. Modifications to the infectologists' attachments to patients after the introduction of highly active antiretroviral therapy (HAART); 3. Coping with death and dying. CONCLUSIONS: This study shows the importance of considering the distress, emotional overload and adaptive mechanisms relating to death and dying among patients, both in training and in professional practice.
publishDate 2010
dc.date.none.fl_str_mv 2010-01-01
2015-06-14T13:41:29Z
2015-06-14T13:41:29Z
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://dx.doi.org/10.1590/S1516-31802010000200006
São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010.
10.1590/S1516-31802010000200006
S1516-31802010000200006.pdf
1516-3180
S1516-31802010000200006
http://repositorio.unifesp.br/handle/11600/5557
WOS:000280210600006
url http://dx.doi.org/10.1590/S1516-31802010000200006
http://repositorio.unifesp.br/handle/11600/5557
identifier_str_mv São Paulo Medical Journal. Associação Paulista de Medicina - APM, v. 128, n. 2, p. 74-80, 2010.
10.1590/S1516-31802010000200006
S1516-31802010000200006.pdf
1516-3180
S1516-31802010000200006
WOS:000280210600006
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv São Paulo Medical Journal
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 74-80
application/pdf
dc.publisher.none.fl_str_mv Associação Paulista de Medicina - APM
publisher.none.fl_str_mv Associação Paulista de Medicina - APM
dc.source.none.fl_str_mv reponame:Repositório Institucional da UNIFESP
instname:Universidade Federal de São Paulo (UNIFESP)
instacron:UNIFESP
instname_str Universidade Federal de São Paulo (UNIFESP)
instacron_str UNIFESP
institution UNIFESP
reponame_str Repositório Institucional da UNIFESP
collection Repositório Institucional da UNIFESP
repository.name.fl_str_mv Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)
repository.mail.fl_str_mv biblioteca.csp@unifesp.br
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