HOME PALLIATIVE CARE OFFERED BY UNIFIED HEALTH SYSTEM IN THE STATE OF SANTA CATARINA, FOR CHILDREN, ADOLESCENTS AND YOUNG ADULTS

• Autor(a) principal: Spada, Giseli
• Data de Publicação: 2024
• Outros Autores: Conceição, Vander Monteiro da, Rossetto, Maíra, Bando, Daniel Hideki, Friestino, Jane Kelly Oliveira
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Hygeia (Uberlândia)
• Texto Completo: https://seer.ufu.br/index.php/hygeia/article/view/73361
• topic: Cuidados paliativos; Assistência integral à saúde; Sistema Único de Saúde; Pesquisa sobre serviços de saúde; Palliative care; Comprehensive health care; Unified Health System; Health services research

Palliative care is governed by the principles of reaffirming the importance of life. For children, adolescents and young adults, this comprehensive care provided by a multidisciplinary team has proven to be a challenge, especially with regard to home care. Therefore, the objective is to understand the supply of palliative care services in pediatric oncology and young adults, at home, as well as the coverage of care by health region in Santa Catarina. This is an ecological study, with secondary data from the Ambulatory Information System (SIA/SUS) and Hospital Information System (SIH/SUS), for the state of Santa Catarina, from 2018 to 2021. The records were investigated of care offered to the age groups from 0 to 29 years of age. To characterize palliative care, the name already presented in the literature was followed. The Greater Florianópolis Macroregion was the only one to present records of home hospitalization. Overall, there was a drop in attendance during the first year of the COVID-19 pandemic. It was identified that the distribution was not homogeneous in all macro-regions, but the disparity in the supply of records of procedures at home was notable, which leads us to reflect on whether the low number only reflects the little care provided, or the lack of records in systems linked to productivity in the SUS. The study made it possible to identify disparities between the population's coverage and access to this type of care.