Experience of adults with cystic fi brosis: a perspective based on social phenomenology

Detalhes bibliográficos
Autor(a) principal: Oliveira, Deise Moura de
Data de Publicação: 2018
Outros Autores: Cordeiro, Samara Macedo, Jesus, Maria Cristina Pinto de, Tavares, Renata Evangelista, Merighi, Miriam Aparecida Barbosa
Tipo de documento: Artigo
Idioma: eng
Título da fonte: LOCUS Repositório Institucional da UFV
Texto Completo: http://dx.doi.org/10.1590/0034-7167-2017-0749
http://www.locus.ufv.br/handle/123456789/24002
Resumo: To understand the experience of adults living with cystic fibrosis. A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
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spelling Oliveira, Deise Moura deCordeiro, Samara MacedoJesus, Maria Cristina Pinto deTavares, Renata EvangelistaMerighi, Miriam Aparecida Barbosa2019-03-20T11:55:31Z2019-03-20T11:55:31Z2018-1219840446http://dx.doi.org/10.1590/0034-7167-2017-0749http://www.locus.ufv.br/handle/123456789/24002To understand the experience of adults living with cystic fibrosis. A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.Comprender la experiencia de personas adultas que conviven con la fibrosis quística.Estudio cualitativo fundamentado en la fenomenología social de Alfred Schütz, realizado con 12 adultos entrevistados en 2016. Los testimonios fueron analizados y organizados en categorías concretas.Fueron evidenciadas las categorías: “Impacto biopsicosocial de la enfermedad en el día a día”, “Preconcepto social como generador de bochorno”, “Estrategias de enfrentamiento” y “Miedo, incertidumbres y deseos de realizar proyectos de vida”.La comprensión de la experiencia atravesada por adultos con fibrosis quística permitió develar aspectos intersubjetivos experimentados por ese grupo, que deben considerar los profesionales de salud para su cuidado. Corresponde a los profesionales involucrados en la atención de estas personas elaborar estrategias de atención que apunten a la integralidad, el respeto al mundo de significaciones de cada uno, su historia de vida y la intersubjetividad especialmente construida en la relación profesional/persona con fibrosos quística.engRevista Brasileira de EnfermagemVolume 71, Number 06, Pages 2891- 2898, December 2018Cystic fibrosisAdultEmotionsNursingQualitative researchFibrose císticaAdultoEmoçõesEnfermagemPesquisa qualitativaFibrosis quísticaAdultoEmocionesEnfermeríaInvestigación cualitativaExperience of adults with cystic fi brosis: a perspective based on social phenomenologyinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfinfo:eu-repo/semantics/openAccessreponame:LOCUS Repositório Institucional da UFVinstname:Universidade Federal de Viçosa (UFV)instacron:UFVORIGINALartigo.pdfartigo.pdftexto completoapplication/pdf128438https://locus.ufv.br//bitstream/123456789/24002/1/artigo.pdfb55bda26a1e6400dc1c0f975db55d2a1MD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81748https://locus.ufv.br//bitstream/123456789/24002/2/license.txt8a4605be74aa9ea9d79846c1fba20a33MD52123456789/240022019-03-20 09:04:26.443oai:locus.ufv.br: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Repositório InstitucionalPUBhttps://www.locus.ufv.br/oai/requestfabiojreis@ufv.bropendoar:21452019-03-20T12:04:26LOCUS Repositório Institucional da UFV - Universidade Federal de Viçosa (UFV)false
dc.title.en.fl_str_mv Experience of adults with cystic fi brosis: a perspective based on social phenomenology
title Experience of adults with cystic fi brosis: a perspective based on social phenomenology
spellingShingle Experience of adults with cystic fi brosis: a perspective based on social phenomenology
Oliveira, Deise Moura de
Cystic fibrosis
Adult
Emotions
Nursing
Qualitative research
Fibrose cística
Adulto
Emoções
Enfermagem
Pesquisa qualitativa
Fibrosis quística
Adulto
Emociones
Enfermería
Investigación cualitativa
title_short Experience of adults with cystic fi brosis: a perspective based on social phenomenology
title_full Experience of adults with cystic fi brosis: a perspective based on social phenomenology
title_fullStr Experience of adults with cystic fi brosis: a perspective based on social phenomenology
title_full_unstemmed Experience of adults with cystic fi brosis: a perspective based on social phenomenology
title_sort Experience of adults with cystic fi brosis: a perspective based on social phenomenology
author Oliveira, Deise Moura de
author_facet Oliveira, Deise Moura de
Cordeiro, Samara Macedo
Jesus, Maria Cristina Pinto de
Tavares, Renata Evangelista
Merighi, Miriam Aparecida Barbosa
author_role author
author2 Cordeiro, Samara Macedo
Jesus, Maria Cristina Pinto de
Tavares, Renata Evangelista
Merighi, Miriam Aparecida Barbosa
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Oliveira, Deise Moura de
Cordeiro, Samara Macedo
Jesus, Maria Cristina Pinto de
Tavares, Renata Evangelista
Merighi, Miriam Aparecida Barbosa
dc.subject.pt-BR.fl_str_mv Cystic fibrosis
Adult
Emotions
Nursing
Qualitative research
Fibrose cística
Adulto
Emoções
Enfermagem
Pesquisa qualitativa
Fibrosis quística
Adulto
Emociones
Enfermería
Investigación cualitativa
topic Cystic fibrosis
Adult
Emotions
Nursing
Qualitative research
Fibrose cística
Adulto
Emoções
Enfermagem
Pesquisa qualitativa
Fibrosis quística
Adulto
Emociones
Enfermería
Investigación cualitativa
description To understand the experience of adults living with cystic fibrosis. A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
publishDate 2018
dc.date.issued.fl_str_mv 2018-12
dc.date.accessioned.fl_str_mv 2019-03-20T11:55:31Z
dc.date.available.fl_str_mv 2019-03-20T11:55:31Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://dx.doi.org/10.1590/0034-7167-2017-0749
http://www.locus.ufv.br/handle/123456789/24002
dc.identifier.issn.none.fl_str_mv 19840446
identifier_str_mv 19840446
url http://dx.doi.org/10.1590/0034-7167-2017-0749
http://www.locus.ufv.br/handle/123456789/24002
dc.language.iso.fl_str_mv eng
language eng
dc.relation.ispartofseries.pt-BR.fl_str_mv Volume 71, Number 06, Pages 2891- 2898, December 2018
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
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dc.publisher.none.fl_str_mv Revista Brasileira de Enfermagem
publisher.none.fl_str_mv Revista Brasileira de Enfermagem
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