Life stories and multiple sclerosis: biographical work and training of expert patients in France

Detalhes bibliográficos
Autor(a) principal: Alves, Camila Aloisio
Data de Publicação: 2018
Tipo de documento: Artigo
Idioma: por
Título da fonte: Linhas Críticas (Online)
Texto Completo: https://periodicos.unb.br/index.php/linhascriticas/article/view/18992
Resumo: This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the biographical research approach. The results show that the participants were able to explore their experiences and find a space for the release of feelings through the narrative, contributing to the formation of expert patient and allowing patients to explore and value the experiences and acquired knowledge.
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spelling Life stories and multiple sclerosis: biographical work and training of expert patients in FranceHistorias de vida y esclerosis múltiple: trabajo biográfico y formación de paciente experto en FranciaRécit de vie et la sclérose en plaques: Le travail biographique et la formation de patient expert en FranceHistórias de vida e esclerose múltipla: trabalho biográfico e formação de paciente expert na FrançaDoença crônicaAprendizadoExperiênciaBiografiaEnfermedad crónicaAprendizajeExperienciaBiografíaChronic illnessLearningExperienceBiographyThis paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the biographical research approach. The results show that the participants were able to explore their experiences and find a space for the release of feelings through the narrative, contributing to the formation of expert patient and allowing patients to explore and value the experiences and acquired knowledge.Este artículo presenta los resultados de un trabajo de seguimiento de un grupo de seis pacientes que sufren de esclerosis múltiple durante una formación de paciente experto en Francia y muestra los efectos del uso de la historia de la vida como una herramienta para explorar experiencias personales y interpersonal de los pacientes. La metodología del trabajo se basó en el enfoque de la investigación biográfica. Los resultados muestran que los participantes fueron capaces de explorar sus experiencias y encontrar un espacio para la liberación de sentimientos a través de la narrativa, contribuyendo a la formación del paciente experto y permitiendo a los pacientes explotar y valorar las experiencias vividas y los saberes adquiridos.Cet article présente les résultats d'une étude d’accompagnement d'un groupe de six patients atteints de sclérose en plaques lors d'une formation de patients experts en France et montre les effets de l'utilisation du biographique comme outil pour explorer les expériences personnelles et interpersonnelles des malades. Le travail s’est basé sur l'approche de la recherche biographique. Les résultats montrent que les participants ont pu explorer leurs expériences et trouver un espace pour la libération des sentiments à travers le récit, ce qui a pu contribuer pour la formation de patient expert en permettant aux patients d'explorer et de valoriser les expériences et les connaissances acquises.Este artigo apresenta os resultados de um trabalho de acompanhamento de um grupo de seis doentes que sofrem de esclerose múltipla durante uma formação de paciente expert na França e mostra os efeitos do uso da história da vida como uma ferramenta para explorar experiências pessoais e interpessoais dos doentes. A metodologia do trabalho baseou-se na abordagem da pesquisa biográfica. Os resultados mostram que os participantes foram capazes de explorar suas experiências e encontrar um espaço para a liberação de sentimentos através da narrativa, contribuindo para a formação de paciente expert e permitindo que os doentes explorem e valorizem as experiências vividas e os saberes adquiridos.Faculdade de Educação - Universidade de Brasília2018-11-15info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/xmlhttps://periodicos.unb.br/index.php/linhascriticas/article/view/1899210.26512/lc.v24i0.18992Linhas Críticas; Vol. 24 (2018): Revista Linhas Críticas v.24; e18992Linhas Críticas; Vol. 24 (2018): Revista Linhas Críticas v.24; e18992Linhas Crí­ticas; v. 24 (2018): Revista Linhas Críticas v.24; e189921981-04311516-489610.26512/lc.v24i0reponame:Linhas Críticas (Online)instname:Universidade de Brasília (UnB)instacron:UnBporhttps://periodicos.unb.br/index.php/linhascriticas/article/view/18992/18511https://periodicos.unb.br/index.php/linhascriticas/article/view/18992/31512Copyright (c) 2018 Revista Linhas Críticashttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessAlves, Camila Aloisio2022-02-08T20:05:30Zoai:ojs.pkp.sfu.ca:article/18992Revistahttps://periodicos.unb.br/index.php/linhascriticas/PUBhttps://periodicos.unb.br/index.php/linhascriticas/oairvlinhas@unb.br1981-04311516-4896opendoar:2022-02-08T20:05:30Linhas Críticas (Online) - Universidade de Brasília (UnB)false
dc.title.none.fl_str_mv Life stories and multiple sclerosis: biographical work and training of expert patients in France
Historias de vida y esclerosis múltiple: trabajo biográfico y formación de paciente experto en Francia
Récit de vie et la sclérose en plaques: Le travail biographique et la formation de patient expert en France
Histórias de vida e esclerose múltipla: trabalho biográfico e formação de paciente expert na França
title Life stories and multiple sclerosis: biographical work and training of expert patients in France
spellingShingle Life stories and multiple sclerosis: biographical work and training of expert patients in France
Alves, Camila Aloisio
Doença crônica
Aprendizado
Experiência
Biografia
Enfermedad crónica
Aprendizaje
Experiencia
Biografía
Chronic illness
Learning
Experience
Biography
title_short Life stories and multiple sclerosis: biographical work and training of expert patients in France
title_full Life stories and multiple sclerosis: biographical work and training of expert patients in France
title_fullStr Life stories and multiple sclerosis: biographical work and training of expert patients in France
title_full_unstemmed Life stories and multiple sclerosis: biographical work and training of expert patients in France
title_sort Life stories and multiple sclerosis: biographical work and training of expert patients in France
author Alves, Camila Aloisio
author_facet Alves, Camila Aloisio
author_role author
dc.contributor.author.fl_str_mv Alves, Camila Aloisio
dc.subject.por.fl_str_mv Doença crônica
Aprendizado
Experiência
Biografia
Enfermedad crónica
Aprendizaje
Experiencia
Biografía
Chronic illness
Learning
Experience
Biography
topic Doença crônica
Aprendizado
Experiência
Biografia
Enfermedad crónica
Aprendizaje
Experiencia
Biografía
Chronic illness
Learning
Experience
Biography
description This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the biographical research approach. The results show that the participants were able to explore their experiences and find a space for the release of feelings through the narrative, contributing to the formation of expert patient and allowing patients to explore and value the experiences and acquired knowledge.
publishDate 2018
dc.date.none.fl_str_mv 2018-11-15
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.unb.br/index.php/linhascriticas/article/view/18992
10.26512/lc.v24i0.18992
url https://periodicos.unb.br/index.php/linhascriticas/article/view/18992
identifier_str_mv 10.26512/lc.v24i0.18992
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.unb.br/index.php/linhascriticas/article/view/18992/18511
https://periodicos.unb.br/index.php/linhascriticas/article/view/18992/31512
dc.rights.driver.fl_str_mv Copyright (c) 2018 Revista Linhas Críticas
http://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2018 Revista Linhas Críticas
http://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
text/xml
dc.publisher.none.fl_str_mv Faculdade de Educação - Universidade de Brasília
publisher.none.fl_str_mv Faculdade de Educação - Universidade de Brasília
dc.source.none.fl_str_mv Linhas Críticas; Vol. 24 (2018): Revista Linhas Críticas v.24; e18992
Linhas Críticas; Vol. 24 (2018): Revista Linhas Críticas v.24; e18992
Linhas Crí­ticas; v. 24 (2018): Revista Linhas Críticas v.24; e18992
1981-0431
1516-4896
10.26512/lc.v24i0
reponame:Linhas Críticas (Online)
instname:Universidade de Brasília (UnB)
instacron:UnB
instname_str Universidade de Brasília (UnB)
instacron_str UnB
institution UnB
reponame_str Linhas Críticas (Online)
collection Linhas Críticas (Online)
repository.name.fl_str_mv Linhas Críticas (Online) - Universidade de Brasília (UnB)
repository.mail.fl_str_mv rvlinhas@unb.br
_version_ 1805309287250001920

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