Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism

Detalhes bibliográficos
Autor(a) principal: Pontes Fernandes, Angela Cristina
Data de Publicação: 2011
Outros Autores: Lopes Petean, Eucia Beatriz
Tipo de documento: Artigo
Idioma: por
Título da fonte: Psicologia (Universidade de Brasília. Online)
Texto Completo: https://periodicos.unb.br/index.php/revistaptp/article/view/18304
Resumo: This study aims to investigate the perception of women having children with Inborn Errors of Metabolism (IEM) about the experienced emotional burden and their own quality of life. The participants were 21 mothers of children with IEM, with serious neurological injury. The children were of both sexes, up to ten years old. Data collection was accomplished through instruments WHOQOL-Bref and Burden Interview. The data were statistically analyzed and compared. The care of children with IEM interfere in a negative way in the quality of life of the mother, especially in the domain of their social relations, resulting in an emotional burden; the greater the burden, the lower the perceived quality of life.
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spelling Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of MetabolismSobrecarga Emocional e Qualidade de Vida em Mães de Crianças com Erros Inatos do MetabolismoDoença crônicaSobrecarga emocionalQualidade de vidaChronic diseaseEmotional burdenQuality of lifeThis study aims to investigate the perception of women having children with Inborn Errors of Metabolism (IEM) about the experienced emotional burden and their own quality of life. The participants were 21 mothers of children with IEM, with serious neurological injury. The children were of both sexes, up to ten years old. Data collection was accomplished through instruments WHOQOL-Bref and Burden Interview. The data were statistically analyzed and compared. The care of children with IEM interfere in a negative way in the quality of life of the mother, especially in the domain of their social relations, resulting in an emotional burden; the greater the burden, the lower the perceived quality of life.Este estudo objetivou investigar a sobrecarga emocional e a percepção da própria qualidade de vida em mães de crianças com Erros Inatos do Metabolismo (EIM). Participaram 21 mães de crianças com EIM, com comprometimento neurológico grave, de ambos os sexos, com idade até dez anos. A coleta de dados foi realizada por meio dos instrumentos WHOQOL-Bref e Burden Interview. Os dados foram analisados estatisticamente e comparados. Foi observado que os cuidados com a criança com EIM interferem negativamente na qualidade de vida das mães, sobretudo no domínio relações sociais, acarretando uma sobrecarga emocional, de tal forma que quanto maior a sobrecarga, mais baixa a percepção sobre a própria qualidade de vida.Instituto de Psicologia - Universidade de Brasília2011-12-13info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.unb.br/index.php/revistaptp/article/view/18304Psicologia: Teoria e Pesquisa; Vol. 27 No. 4: Revista Psicologia: teoria e pesquisa; 459-465Psicologia: Teoria e Pesquisa; Vol. 27 Núm. 4: Revista Psicologia: teoria e pesquisa; 459-465Psicologia: Teoria e Pesquisa; Vol. 27 No. 4: Revista Psicologia: teoria e pesquisa; 459-465Psicologia: Teoria e Pesquisa; v. 27 n. 4: Revista Psicologia: teoria e pesquisa; 459-4651806-34460102-3772reponame:Psicologia (Universidade de Brasília. Online)instname:Universidade de Brasília (UnB)instacron:UNBporhttps://periodicos.unb.br/index.php/revistaptp/article/view/18304/16846Pontes Fernandes, Angela CristinaLopes Petean, Eucia Beatrizinfo:eu-repo/semantics/openAccess2018-10-25T14:15:24Zoai:ojs.pkp.sfu.ca:article/18304Revistahttps://periodicos.unb.br/index.php/revistaptp/indexPUBhttps://periodicos.unb.br/index.php/revistaptp/oairevistaptp@gmail.com1806-34460102-3772opendoar:2018-10-25T14:15:24Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB)false
dc.title.none.fl_str_mv Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
Sobrecarga Emocional e Qualidade de Vida em Mães de Crianças com Erros Inatos do Metabolismo
title Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
spellingShingle Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
Pontes Fernandes, Angela Cristina
Doença crônica
Sobrecarga emocional
Qualidade de vida
Chronic disease
Emotional burden
Quality of life
title_short Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
title_full Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
title_fullStr Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
title_full_unstemmed Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
title_sort Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of Metabolism
author Pontes Fernandes, Angela Cristina
author_facet Pontes Fernandes, Angela Cristina
Lopes Petean, Eucia Beatriz
author_role author
author2 Lopes Petean, Eucia Beatriz
author2_role author
dc.contributor.author.fl_str_mv Pontes Fernandes, Angela Cristina
Lopes Petean, Eucia Beatriz
dc.subject.por.fl_str_mv Doença crônica
Sobrecarga emocional
Qualidade de vida
Chronic disease
Emotional burden
Quality of life
topic Doença crônica
Sobrecarga emocional
Qualidade de vida
Chronic disease
Emotional burden
Quality of life
description This study aims to investigate the perception of women having children with Inborn Errors of Metabolism (IEM) about the experienced emotional burden and their own quality of life. The participants were 21 mothers of children with IEM, with serious neurological injury. The children were of both sexes, up to ten years old. Data collection was accomplished through instruments WHOQOL-Bref and Burden Interview. The data were statistically analyzed and compared. The care of children with IEM interfere in a negative way in the quality of life of the mother, especially in the domain of their social relations, resulting in an emotional burden; the greater the burden, the lower the perceived quality of life.
publishDate 2011
dc.date.none.fl_str_mv 2011-12-13
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.unb.br/index.php/revistaptp/article/view/18304
url https://periodicos.unb.br/index.php/revistaptp/article/view/18304
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.unb.br/index.php/revistaptp/article/view/18304/16846
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Instituto de Psicologia - Universidade de Brasília
publisher.none.fl_str_mv Instituto de Psicologia - Universidade de Brasília
dc.source.none.fl_str_mv Psicologia: Teoria e Pesquisa; Vol. 27 No. 4: Revista Psicologia: teoria e pesquisa; 459-465
Psicologia: Teoria e Pesquisa; Vol. 27 Núm. 4: Revista Psicologia: teoria e pesquisa; 459-465
Psicologia: Teoria e Pesquisa; Vol. 27 No. 4: Revista Psicologia: teoria e pesquisa; 459-465
Psicologia: Teoria e Pesquisa; v. 27 n. 4: Revista Psicologia: teoria e pesquisa; 459-465
1806-3446
0102-3772
reponame:Psicologia (Universidade de Brasília. Online)
instname:Universidade de Brasília (UnB)
instacron:UNB
instname_str Universidade de Brasília (UnB)
instacron_str UNB
institution UNB
reponame_str Psicologia (Universidade de Brasília. Online)
collection Psicologia (Universidade de Brasília. Online)
repository.name.fl_str_mv Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB)
repository.mail.fl_str_mv revistaptp@gmail.com
_version_ 1800211713835925504

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