Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
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Data de Publicação: | 2019 |
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Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Psicologia (Universidade de Brasília. Online) |
Texto Completo: | https://periodicos.unb.br/index.php/revistaptp/article/view/23044 |
Resumo: | Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle. |
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Family Quality of Life in Intellectual Disability: A Systematic Review of StudiesQualidade de vida familiar na Deficiência Intelectual: Revisão Sistemática de EstudosFamily quality of life, Intellectual disability, Measurement instruments.Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação.Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle.A qualidade de vida familiar (QdVF) em famílias de pessoas com deficiência intelectual (DI) tem recentemente interessado os investigadores, sugerindo potencialidades em termos de avaliação e intervenção. O presente artigo pretende realizar uma revisão de estudos empíricos que analisem a QdVF em famílias de pessoas com DI. De um total de 32 estudos, 15 recorreram ao instrumento FQOLS-2006, 11 ao Beach Center FQOL Survey e 6 a outras formas de avaliação da QdVF. Salienta-se a natureza multidimensional da QdVF e algumas variáveis individuais e familiares que a influenciam. Estudos futuros devem apoiar-se numa fundamentação teórica mais robusta e maior diversidade de metodologias, e procurar especificidades da QdVF dos vários elementos da família e ao longo do ciclo de vida familiar.Instituto de Psicologia - Universidade de Brasília2019-02-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.unb.br/index.php/revistaptp/article/view/23044Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; v. 34 (2018)1806-34460102-3772reponame:Psicologia (Universidade de Brasília. Online)instname:Universidade de Brasília (UnB)instacron:UNBporhttps://periodicos.unb.br/index.php/revistaptp/article/view/23044/23668Copyright (c) 2019 Raquel Alveirinho Correiainfo:eu-repo/semantics/openAccessCorreia, Raquel AlveirinhoSeabra-Santos, Maria João2019-10-04T19:04:19Zoai:ojs.pkp.sfu.ca:article/23044Revistahttps://periodicos.unb.br/index.php/revistaptp/indexPUBhttps://periodicos.unb.br/index.php/revistaptp/oairevistaptp@gmail.com1806-34460102-3772opendoar:2019-10-04T19:04:19Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB)false |
dc.title.none.fl_str_mv |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies Qualidade de vida familiar na Deficiência Intelectual: Revisão Sistemática de Estudos |
title |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
spellingShingle |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies Correia, Raquel Alveirinho Family quality of life, Intellectual disability, Measurement instruments. Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação. |
title_short |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
title_full |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
title_fullStr |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
title_full_unstemmed |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
title_sort |
Family Quality of Life in Intellectual Disability: A Systematic Review of Studies |
author |
Correia, Raquel Alveirinho |
author_facet |
Correia, Raquel Alveirinho Seabra-Santos, Maria João |
author_role |
author |
author2 |
Seabra-Santos, Maria João |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Correia, Raquel Alveirinho Seabra-Santos, Maria João |
dc.subject.por.fl_str_mv |
Family quality of life, Intellectual disability, Measurement instruments. Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação. |
topic |
Family quality of life, Intellectual disability, Measurement instruments. Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação. |
description |
Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-02-19 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.unb.br/index.php/revistaptp/article/view/23044 |
url |
https://periodicos.unb.br/index.php/revistaptp/article/view/23044 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.unb.br/index.php/revistaptp/article/view/23044/23668 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2019 Raquel Alveirinho Correia info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2019 Raquel Alveirinho Correia |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Instituto de Psicologia - Universidade de Brasília |
publisher.none.fl_str_mv |
Instituto de Psicologia - Universidade de Brasília |
dc.source.none.fl_str_mv |
Psicologia: Teoria e Pesquisa; Vol. 34 (2018) Psicologia: Teoria e Pesquisa; Vol. 34 (2018) Psicologia: Teoria e Pesquisa; Vol. 34 (2018) Psicologia: Teoria e Pesquisa; v. 34 (2018) 1806-3446 0102-3772 reponame:Psicologia (Universidade de Brasília. Online) instname:Universidade de Brasília (UnB) instacron:UNB |
instname_str |
Universidade de Brasília (UnB) |
instacron_str |
UNB |
institution |
UNB |
reponame_str |
Psicologia (Universidade de Brasília. Online) |
collection |
Psicologia (Universidade de Brasília. Online) |
repository.name.fl_str_mv |
Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB) |
repository.mail.fl_str_mv |
revistaptp@gmail.com |
_version_ |
1800211714822635520 |