Family Quality of Life in Intellectual Disability: A Systematic Review of Studies

Detalhes bibliográficos
Autor(a) principal: Correia, Raquel Alveirinho
Data de Publicação: 2019
Outros Autores: Seabra-Santos, Maria João
Tipo de documento: Artigo
Idioma: por
Título da fonte: Psicologia (Universidade de Brasília. Online)
Texto Completo: https://periodicos.unb.br/index.php/revistaptp/article/view/23044
Resumo: Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle.
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spelling Family Quality of Life in Intellectual Disability: A Systematic Review of StudiesQualidade de vida familiar na Deficiência Intelectual: Revisão Sistemática de EstudosFamily quality of life, Intellectual disability, Measurement instruments.Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação.Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle.A qualidade de vida familiar (QdVF) em famílias de pessoas com deficiência intelectual (DI) tem recentemente interessado os investigadores, sugerindo potencialidades em termos de avaliação e intervenção. O presente artigo pretende realizar uma revisão de estudos empíricos que analisem a QdVF em famílias de pessoas com DI. De um total de 32 estudos, 15 recorreram ao instrumento FQOLS-2006, 11 ao Beach Center FQOL Survey e 6 a outras formas de avaliação da QdVF. Salienta-se a natureza multidimensional da QdVF e algumas variáveis individuais e familiares que a influenciam. Estudos futuros devem apoiar-se numa fundamentação teórica mais robusta e maior diversidade de metodologias, e procurar especificidades da QdVF dos vários elementos da família e ao longo do ciclo de vida familiar.Instituto de Psicologia - Universidade de Brasília2019-02-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.unb.br/index.php/revistaptp/article/view/23044Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; Vol. 34 (2018)Psicologia: Teoria e Pesquisa; v. 34 (2018)1806-34460102-3772reponame:Psicologia (Universidade de Brasília. Online)instname:Universidade de Brasília (UnB)instacron:UNBporhttps://periodicos.unb.br/index.php/revistaptp/article/view/23044/23668Copyright (c) 2019 Raquel Alveirinho Correiainfo:eu-repo/semantics/openAccessCorreia, Raquel AlveirinhoSeabra-Santos, Maria João2019-10-04T19:04:19Zoai:ojs.pkp.sfu.ca:article/23044Revistahttps://periodicos.unb.br/index.php/revistaptp/indexPUBhttps://periodicos.unb.br/index.php/revistaptp/oairevistaptp@gmail.com1806-34460102-3772opendoar:2019-10-04T19:04:19Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB)false
dc.title.none.fl_str_mv Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
Qualidade de vida familiar na Deficiência Intelectual: Revisão Sistemática de Estudos
title Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
spellingShingle Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
Correia, Raquel Alveirinho
Family quality of life, Intellectual disability, Measurement instruments.
Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação.
title_short Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
title_full Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
title_fullStr Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
title_full_unstemmed Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
title_sort Family Quality of Life in Intellectual Disability: A Systematic Review of Studies
author Correia, Raquel Alveirinho
author_facet Correia, Raquel Alveirinho
Seabra-Santos, Maria João
author_role author
author2 Seabra-Santos, Maria João
author2_role author
dc.contributor.author.fl_str_mv Correia, Raquel Alveirinho
Seabra-Santos, Maria João
dc.subject.por.fl_str_mv Family quality of life, Intellectual disability, Measurement instruments.
Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação.
topic Family quality of life, Intellectual disability, Measurement instruments.
Qualidade de vida familiar, Deficiência intelectual, Escalas de avaliação.
description Family quality of life (FQoL) for families with members who have intellectual disability (ID) has recently captured the interest of researchers and demonstrated potentials for evaluation and intervention. This paper intends to revise empirical studies that analyze FQoL in families with members having ID. From a total of 32 studies, 15 used the FQOLS-2006, 11 the Beach Center FQOL Survey and 6 other methods to evaluate FQoL. The multi-dimensional nature of FQoL is emphasized, as well as some individual and family variables that appear to influence it. Future studies should be supported by a more robust theoretical base and more diverse methodologies, and should aim to search for FQoL specificities for the various family members, throughout the family’s life cycle.
publishDate 2019
dc.date.none.fl_str_mv 2019-02-19
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.unb.br/index.php/revistaptp/article/view/23044
url https://periodicos.unb.br/index.php/revistaptp/article/view/23044
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.unb.br/index.php/revistaptp/article/view/23044/23668
dc.rights.driver.fl_str_mv Copyright (c) 2019 Raquel Alveirinho Correia
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2019 Raquel Alveirinho Correia
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Instituto de Psicologia - Universidade de Brasília
publisher.none.fl_str_mv Instituto de Psicologia - Universidade de Brasília
dc.source.none.fl_str_mv Psicologia: Teoria e Pesquisa; Vol. 34 (2018)
Psicologia: Teoria e Pesquisa; Vol. 34 (2018)
Psicologia: Teoria e Pesquisa; Vol. 34 (2018)
Psicologia: Teoria e Pesquisa; v. 34 (2018)
1806-3446
0102-3772
reponame:Psicologia (Universidade de Brasília. Online)
instname:Universidade de Brasília (UnB)
instacron:UNB
instname_str Universidade de Brasília (UnB)
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reponame_str Psicologia (Universidade de Brasília. Online)
collection Psicologia (Universidade de Brasília. Online)
repository.name.fl_str_mv Psicologia (Universidade de Brasília. Online) - Universidade de Brasília (UnB)
repository.mail.fl_str_mv revistaptp@gmail.com
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