Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/6193 |
Resumo: | The act of caring, being responsible for the survival and quality of life of others, represent extra activities that can cause socio-emotional changes to those who perform this function. Objective: To assess the quality of life, depression, anxiety and stress of caregivers of people with or without Down syndrome. Methodology: 144 caregivers were divided into Control Group (caregivers of typical children) and Down Syndrome Group (caregivers of people with Down Syndrome). The controlled observational cross-sectional study was prepared in accordance with the Declaration of Helsinki and approved by the Human Ethics Committee. To achieve the objectives, validated questionnaires related to the theme were applied. The data were subjected to the Chi-square test with modified Bonferroni post hoc and Rank or Pearson correlation tests. Results: The Down Syndrome Group had a lower quality of life related to the psychological domain and a higher environmental domain than the Control Group. In the groups studied, quality of life and family income showed a positive correlation (p = 0.02) and there was no difference in depression. The Control Group had a higher rate of anxiety and the Down Syndrome Group had a higher rate of physical symptoms of stress; correlated with the degree of dependence of the Down Syndrome patient (p = 0.04). Conclusion: Family income is an important factor for a better quality of life, symptoms of physical stress reduce the quality of life in the psychological domain and symptoms of physical stress of caregivers are correlated with a greater degree of dependence of patients with Down Syndrome. |
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Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional studyEvaluación de la calidad de vida, depresión, ansiedad y estrés de los cuidadores de personas con o sin síndrome de Down: un estudio transversalAvaliação da qualidade de vida, depressão, ansiedade e estresse de cuidadores de pessoas com ou sem Síndrome de Down: um estudo transversalSíndrome de DownQualidade de vidaDepressãoAnsiedadeCuidadores.Down syndromeQuality of lifeDepressionAnxietyCaregivers.Síndrome de DownCalidad de vidaDepresiónAnsiedadCuidadores.The act of caring, being responsible for the survival and quality of life of others, represent extra activities that can cause socio-emotional changes to those who perform this function. Objective: To assess the quality of life, depression, anxiety and stress of caregivers of people with or without Down syndrome. Methodology: 144 caregivers were divided into Control Group (caregivers of typical children) and Down Syndrome Group (caregivers of people with Down Syndrome). The controlled observational cross-sectional study was prepared in accordance with the Declaration of Helsinki and approved by the Human Ethics Committee. To achieve the objectives, validated questionnaires related to the theme were applied. The data were subjected to the Chi-square test with modified Bonferroni post hoc and Rank or Pearson correlation tests. Results: The Down Syndrome Group had a lower quality of life related to the psychological domain and a higher environmental domain than the Control Group. In the groups studied, quality of life and family income showed a positive correlation (p = 0.02) and there was no difference in depression. The Control Group had a higher rate of anxiety and the Down Syndrome Group had a higher rate of physical symptoms of stress; correlated with the degree of dependence of the Down Syndrome patient (p = 0.04). Conclusion: Family income is an important factor for a better quality of life, symptoms of physical stress reduce the quality of life in the psychological domain and symptoms of physical stress of caregivers are correlated with a greater degree of dependence of patients with Down Syndrome.El acto de cuidar, ser responsable de la supervivencia y la calidad de vida de los demás, representa actividades adicionales que pueden causar cambios socioemocionales en quienes realizan esta función. Objetivo: evaluar la calidad de vida, la depresión, la ansiedad y el estrés de los cuidadores de personas con o sin síndrome de Down. Metodología: 144 cuidadores se dividieron en Grupo de Control (cuidadores de niños típicos) y Grupo de Síndrome de Down (cuidadores de personas con Síndrome de Down). El estudio transversal observacional controlado fue preparado de acuerdo con la Declaración de Helsinki y aprobado por el Comité de Ética Humana. Para lograr los objetivos, se aplicaron cuestionarios validados relacionados con el tema. Los datos se sometieron a la prueba de Chi-cuadrado con Bonferroni post hoc modificado y las pruebas de correlación de Rank o Pearson. Resultados: El Grupo de Síndrome de Down tuvo una calidad de vida más baja relacionada con el dominio psicológico y un dominio ambiental más alto que el Grupo de Control. En los grupos estudiados, la calidad de vida y el ingreso familiar mostraron una correlación positiva (p = 0.02) y no hubo diferencias en la depresión. El Grupo de Control tuvo una mayor tasa de ansiedad y el Grupo de Síndrome de Down tuvo una mayor tasa de síntomas físicos de estrés; correlacionado con el grado de dependencia del paciente con síndrome de Down (p = 0.04). Conclusión: El ingreso familiar es un factor importante para una mejor calidad de vida, los síntomas del estrés físico reducen la calidad de vida en el dominio psicológico y los síntomas del estrés físico de los cuidadores se correlacionan con un mayor grado de dependencia de los pacientes con síndrome de Down.O ato de cuidar, ser responsável pela sobrevivência e qualidade de vida de outro, representam atividades extras que podem provocar alterações socio emocionais a aqueles que executam esta função. Objetivo: Avaliar a qualidade de vida, depressão, ansiedade e estresse de cuidadores de pessoas com ou sem síndrome de Down. Metodologia: 144 cuidadores foram divididos em Grupo Controle (cuidadores de crianças típicas) e Grupo Síndrome de Down (cuidadores de pessoas com Síndrome de Down). O estudo transversal observacional controlado foi elaborado de acordo com a Declaração de Helsinque e aprovado pelo Comitê de Ética em Humanos. Para atingir os objetivos foram aplicados questionários validados relacionados ao tema. Os dados foram submetidos ao teste Qui-quadrado com post hoc Bonferroni modificado e de correlação de Rank ou Pearson. Resultados: O Grupo Síndrome de Down apresentou qualidade de vida relativa ao domínio psicológico menor e domínio do meio ambiente maior que o Grupo Controle. Nos grupos estudados a qualidade de vida e renda familiar apresentaram correlação positiva (p=0,02) e não houve diferença na depressão. O Grupo Controle apresentou maior índice de ansiedade e o Grupo Síndrome de Down maior índice de sintomas físicos de estresse; correlacionados com o grau de dependência do portador de Síndrome de Down (p=0,04). Conclusão: A renda familiar é fator importante para uma melhor qualidade de vida, sintomas de estresse físico reduzem a qualidade de vida no domínio psicológico e sintomas de estresse físico dos cuidadores estão correlacionados com um maior grau de dependência dos pacientes com Síndrome de Down.Research, Society and Development2020-07-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/619310.33448/rsd-v9i8.6193Research, Society and Development; Vol. 9 No. 8; e813986193Research, Society and Development; Vol. 9 Núm. 8; e813986193Research, Society and Development; v. 9 n. 8; e8139861932525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIenghttps://rsdjournal.org/index.php/rsd/article/view/6193/5376Copyright (c) 2020 Marina Fuzette Amaral, Karina Helga Turcio de Carvalho, Alessandra Marcondes Aranega, Caio Vinicius Lourenço Debortoli, Gabriela Baesteiro Baldessim, Vitor Hugo Gonçalves Sampaio, Daniela Atili Brandinihttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessAmaral, Marina FuzetteCarvalho, Karina Helga Turcio deAranega, Alessandra MarcondesDebortoli, Caio Vinicius LourençoBaldessim, Gabriela BaesteiroSampaio, Vitor Hugo GonçalvesBrandini, Daniela Atili2020-08-20T18:00:17Zoai:ojs.pkp.sfu.ca:article/6193Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:29:25.524128Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study Evaluación de la calidad de vida, depresión, ansiedad y estrés de los cuidadores de personas con o sin síndrome de Down: un estudio transversal Avaliação da qualidade de vida, depressão, ansiedade e estresse de cuidadores de pessoas com ou sem Síndrome de Down: um estudo transversal |
title |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
spellingShingle |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study Amaral, Marina Fuzette Síndrome de Down Qualidade de vida Depressão Ansiedade Cuidadores. Down syndrome Quality of life Depression Anxiety Caregivers. Síndrome de Down Calidad de vida Depresión Ansiedad Cuidadores. |
title_short |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
title_full |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
title_fullStr |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
title_full_unstemmed |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
title_sort |
Evaluation of quality of life, depression, anxiety and stress among caregivers of people with or without Down Syndrome: a cross-sectional study |
author |
Amaral, Marina Fuzette |
author_facet |
Amaral, Marina Fuzette Carvalho, Karina Helga Turcio de Aranega, Alessandra Marcondes Debortoli, Caio Vinicius Lourenço Baldessim, Gabriela Baesteiro Sampaio, Vitor Hugo Gonçalves Brandini, Daniela Atili |
author_role |
author |
author2 |
Carvalho, Karina Helga Turcio de Aranega, Alessandra Marcondes Debortoli, Caio Vinicius Lourenço Baldessim, Gabriela Baesteiro Sampaio, Vitor Hugo Gonçalves Brandini, Daniela Atili |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Amaral, Marina Fuzette Carvalho, Karina Helga Turcio de Aranega, Alessandra Marcondes Debortoli, Caio Vinicius Lourenço Baldessim, Gabriela Baesteiro Sampaio, Vitor Hugo Gonçalves Brandini, Daniela Atili |
dc.subject.por.fl_str_mv |
Síndrome de Down Qualidade de vida Depressão Ansiedade Cuidadores. Down syndrome Quality of life Depression Anxiety Caregivers. Síndrome de Down Calidad de vida Depresión Ansiedad Cuidadores. |
topic |
Síndrome de Down Qualidade de vida Depressão Ansiedade Cuidadores. Down syndrome Quality of life Depression Anxiety Caregivers. Síndrome de Down Calidad de vida Depresión Ansiedad Cuidadores. |
description |
The act of caring, being responsible for the survival and quality of life of others, represent extra activities that can cause socio-emotional changes to those who perform this function. Objective: To assess the quality of life, depression, anxiety and stress of caregivers of people with or without Down syndrome. Methodology: 144 caregivers were divided into Control Group (caregivers of typical children) and Down Syndrome Group (caregivers of people with Down Syndrome). The controlled observational cross-sectional study was prepared in accordance with the Declaration of Helsinki and approved by the Human Ethics Committee. To achieve the objectives, validated questionnaires related to the theme were applied. The data were subjected to the Chi-square test with modified Bonferroni post hoc and Rank or Pearson correlation tests. Results: The Down Syndrome Group had a lower quality of life related to the psychological domain and a higher environmental domain than the Control Group. In the groups studied, quality of life and family income showed a positive correlation (p = 0.02) and there was no difference in depression. The Control Group had a higher rate of anxiety and the Down Syndrome Group had a higher rate of physical symptoms of stress; correlated with the degree of dependence of the Down Syndrome patient (p = 0.04). Conclusion: Family income is an important factor for a better quality of life, symptoms of physical stress reduce the quality of life in the psychological domain and symptoms of physical stress of caregivers are correlated with a greater degree of dependence of patients with Down Syndrome. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-07-21 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/6193 10.33448/rsd-v9i8.6193 |
url |
https://rsdjournal.org/index.php/rsd/article/view/6193 |
identifier_str_mv |
10.33448/rsd-v9i8.6193 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/6193/5376 |
dc.rights.driver.fl_str_mv |
http://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
http://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 9 No. 8; e813986193 Research, Society and Development; Vol. 9 Núm. 8; e813986193 Research, Society and Development; v. 9 n. 8; e813986193 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052738308145152 |