Role of home caregivers in care for persons with Parkinson's disease: an integrative review

Detalhes bibliográficos
Autor(a) principal: Santos, Allan Bruno Alves de Sousa
Data de Publicação: 2021
Outros Autores: Silva , Luíza Alves da, Pardelhas , Maria Eduarda Barros, Silva , Mikaelle Alves, Anjos , Sara Paulino dos, Reis , Emanuel Roger dos Santos, Costa , Ludmila de Araujo, Andrade , Karine Souza, Oliveira Junior , Edilson Josué de, Lima, Mariel Wágner Holanda, Santos , Isabelly Raiane Silva dos, Sousa, Kaline Oliveira de, Santos , Julia Suelen Matias dos, Santos , Carlianne Brito dos, Moreira, Letícia da Fonseca Anacleto, Soares , Mateus Silva, Leite , Nair Arrais, Teixeira, Leandro Barbosa, Silva , Elias Paulo da, Paixão , Caroline Milanez, Ferreira , Islaila Maria Silva, Santos , Bárbara Maria Rodrigues dos, Oliveira , Maria Clara do Nascimento, Silva , Amanda Joyce Alves, Marinho , Rebeca Rayane de Sousa, Zandim , Jéssica Cristina Lins, Louzada , Matheus Augusto da Silva Belidio, Silva , Thays Almeida da, Figueira , Elaine Cristina dos Santos, Costa, Lina Eduarda Silva, Nascimento, Máyra Geovanna Gonzaga
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/18835
Resumo: Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers.
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spelling Role of home caregivers in care for persons with Parkinson's disease: an integrative reviewPapel de los cuidadores domiciliarios en el cuidado de personas con enfermedad de Parkinson: una revisión integradoraPapel do cuidador domiciliar na assistência a pessoa com doença de Parkinson: uma revisão integrativaParkinson's diseaseCaregiversHome care.Enfermedad de ParkinsonCuidadoresCuidados en el hogar.Doença de ParkinsonCuidadoresAssistência domiciliar.Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers.Buscar en la literatura las actividades que realizan los cuidadores familiares a las personas con enfermedad de Parkinson, señalando sus principales dificultades y las actividades realizadas en el hogar para mejorar la calidad de vida del paciente. Se trata de una revisión de la literatura integradora, con un aspecto descriptivo y cualitativo. La búsqueda de datos se realizó en las siguientes bases de datos: Literatura Latinoamericana y del Caribe en Ciencias de la Salud (LILACS); Biblioteca Electrónica Científica en Línea (SciELO) y Base de Datos de Enfermería (BDENF). La investigación se llevó a cabo de junio a julio de 2021, y los descriptores “Enfermedad de Parkinson; Cuidadores; Cuidados en el hogar". Establecidos en la lista de Descriptores de Ciencias de la Salud (DEC), y después de aplicar los criterios de elegibilidad, quedaron ocho estudios para ser utilizados en el estudio. La principal dificultad en la atención domiciliaria de los pacientes con EP es la falta de información sobre la patología y, en consecuencia, la falta de preparación de los cuidadores, que en su mayoría están compuestos por mujeres esposas. Se concluye que es necesario contar con una promoción de la salud efectiva en el contexto del hogar, para ofrecer capacitación y preparación a estos cuidadores informales.Buscar na literatura as atividades realizadas pelo cuidador familiar a pessoa com a doença de Parkinson, apontando as suas principais dificuldades e atividades implementadas no domicilio para melhorar a qualidade de vida do paciente. Trata-se de uma revisão integrativa da literatura, de aspecto descritivo e qualitativo. A busca de dados ocorreu nas bases: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS); Scientific Electronic Library Online (SciELO) e Base de Dados de Enfermagem (BDENF). A pesquisa ocorreu no período de junho a julho de 2021, e foram usados os descritores “Doença de Parkinson; Cuidadores; Assistência domiciliar”. Estabelecidos na lista dos Descritores em Ciências da Saúde (DECs), e após aplicação dos critérios de elegibilidade restaram oito estudos para serem usados na pesquisa. A principal dificuldade na assistência domiciliar ao paciente com DP é a falta de informações sobre a patologia e por consequência a falta de preparo dos cuidadores, que em sua maioria é composta por cônjuges do sexo feminino. Conclui-se que é necessário haver uma promoção de saúde efetiva no contexto domiciliar, para ofertar qualificação e preparo a esses cuidadores informais.Research, Society and Development2021-08-12info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1883510.33448/rsd-v10i10.18835Research, Society and Development; Vol. 10 No. 10; e311101018835Research, Society and Development; Vol. 10 Núm. 10; e311101018835Research, Society and Development; v. 10 n. 10; e3111010188352525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/18835/16868Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Luíza Alves da Silva ; Maria Eduarda Barros Pardelhas ; Mikaelle Alves Silva ; Sara Paulino dos Anjos ; Emanuel Roger dos Santos Reis ; Ludmila de Araujo Costa ; Karine Souza Andrade ; Edilson Josué de Oliveira Junior ; Mariel Wágner Holanda Lima; Isabelly Raiane Silva dos Santos ; Kaline Oliveira de Sousa; Julia Suelen Matias dos Santos ; Carlianne Brito dos Santos ; Letícia da Fonseca Anacleto Moreira; Mateus Silva Soares ; Nair Arrais Leite ; Leandro Barbosa Teixeira; Elias Paulo da Silva ; Caroline Milanez Paixão ; Islaila Maria Silva Ferreira ; Bárbara Maria Rodrigues dos Santos ; Maria Clara do Nascimento Oliveira ; Amanda Joyce Alves Silva ; Rebeca Rayane de Sousa Marinho ; Jéssica Cristina Lins Zandim ; Matheus Augusto da Silva Belidio Louzada ; Thays Almeida da Silva ; Elaine Cristina dos Santos Figueira ; Lina Eduarda Silva Costa; Máyra Geovanna Gonzaga Nascimentohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantos, Allan Bruno Alves de SousaSilva , Luíza Alves da Pardelhas , Maria Eduarda Barros Silva , Mikaelle AlvesAnjos , Sara Paulino dos Reis , Emanuel Roger dos Santos Costa , Ludmila de Araujo Andrade , Karine Souza Oliveira Junior , Edilson Josué de Lima, Mariel Wágner Holanda Santos , Isabelly Raiane Silva dos Sousa, Kaline Oliveira de Santos , Julia Suelen Matias dos Santos , Carlianne Brito dos Moreira, Letícia da Fonseca Anacleto Soares , Mateus Silva Leite , Nair Arrais Teixeira, Leandro Barbosa Silva , Elias Paulo da Paixão , Caroline Milanez Ferreira , Islaila Maria Silva Santos , Bárbara Maria Rodrigues dos Oliveira , Maria Clara do Nascimento Silva , Amanda Joyce Alves Marinho , Rebeca Rayane de Sousa Zandim , Jéssica Cristina Lins Louzada , Matheus Augusto da Silva BelidioSilva , Thays Almeida daFigueira , Elaine Cristina dos Santos Costa, Lina Eduarda SilvaNascimento, Máyra Geovanna Gonzaga 2021-10-02T21:49:16Zoai:ojs.pkp.sfu.ca:article/18835Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:38:52.672850Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Role of home caregivers in care for persons with Parkinson's disease: an integrative review
Papel de los cuidadores domiciliarios en el cuidado de personas con enfermedad de Parkinson: una revisión integradora
Papel do cuidador domiciliar na assistência a pessoa com doença de Parkinson: uma revisão integrativa
title Role of home caregivers in care for persons with Parkinson's disease: an integrative review
spellingShingle Role of home caregivers in care for persons with Parkinson's disease: an integrative review
Santos, Allan Bruno Alves de Sousa
Parkinson's disease
Caregivers
Home care.
Enfermedad de Parkinson
Cuidadores
Cuidados en el hogar.
Doença de Parkinson
Cuidadores
Assistência domiciliar.
title_short Role of home caregivers in care for persons with Parkinson's disease: an integrative review
title_full Role of home caregivers in care for persons with Parkinson's disease: an integrative review
title_fullStr Role of home caregivers in care for persons with Parkinson's disease: an integrative review
title_full_unstemmed Role of home caregivers in care for persons with Parkinson's disease: an integrative review
title_sort Role of home caregivers in care for persons with Parkinson's disease: an integrative review
author Santos, Allan Bruno Alves de Sousa
author_facet Santos, Allan Bruno Alves de Sousa
Silva , Luíza Alves da
Pardelhas , Maria Eduarda Barros
Silva , Mikaelle Alves
Anjos , Sara Paulino dos
Reis , Emanuel Roger dos Santos
Costa , Ludmila de Araujo
Andrade , Karine Souza
Oliveira Junior , Edilson Josué de
Lima, Mariel Wágner Holanda
Santos , Isabelly Raiane Silva dos
Sousa, Kaline Oliveira de
Santos , Julia Suelen Matias dos
Santos , Carlianne Brito dos
Moreira, Letícia da Fonseca Anacleto
Soares , Mateus Silva
Leite , Nair Arrais
Teixeira, Leandro Barbosa
Silva , Elias Paulo da
Paixão , Caroline Milanez
Ferreira , Islaila Maria Silva
Santos , Bárbara Maria Rodrigues dos
Oliveira , Maria Clara do Nascimento
Silva , Amanda Joyce Alves
Marinho , Rebeca Rayane de Sousa
Zandim , Jéssica Cristina Lins
Louzada , Matheus Augusto da Silva Belidio
Silva , Thays Almeida da
Figueira , Elaine Cristina dos Santos
Costa, Lina Eduarda Silva
Nascimento, Máyra Geovanna Gonzaga
author_role author
author2 Silva , Luíza Alves da
Pardelhas , Maria Eduarda Barros
Silva , Mikaelle Alves
Anjos , Sara Paulino dos
Reis , Emanuel Roger dos Santos
Costa , Ludmila de Araujo
Andrade , Karine Souza
Oliveira Junior , Edilson Josué de
Lima, Mariel Wágner Holanda
Santos , Isabelly Raiane Silva dos
Sousa, Kaline Oliveira de
Santos , Julia Suelen Matias dos
Santos , Carlianne Brito dos
Moreira, Letícia da Fonseca Anacleto
Soares , Mateus Silva
Leite , Nair Arrais
Teixeira, Leandro Barbosa
Silva , Elias Paulo da
Paixão , Caroline Milanez
Ferreira , Islaila Maria Silva
Santos , Bárbara Maria Rodrigues dos
Oliveira , Maria Clara do Nascimento
Silva , Amanda Joyce Alves
Marinho , Rebeca Rayane de Sousa
Zandim , Jéssica Cristina Lins
Louzada , Matheus Augusto da Silva Belidio
Silva , Thays Almeida da
Figueira , Elaine Cristina dos Santos
Costa, Lina Eduarda Silva
Nascimento, Máyra Geovanna Gonzaga
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Santos, Allan Bruno Alves de Sousa
Silva , Luíza Alves da
Pardelhas , Maria Eduarda Barros
Silva , Mikaelle Alves
Anjos , Sara Paulino dos
Reis , Emanuel Roger dos Santos
Costa , Ludmila de Araujo
Andrade , Karine Souza
Oliveira Junior , Edilson Josué de
Lima, Mariel Wágner Holanda
Santos , Isabelly Raiane Silva dos
Sousa, Kaline Oliveira de
Santos , Julia Suelen Matias dos
Santos , Carlianne Brito dos
Moreira, Letícia da Fonseca Anacleto
Soares , Mateus Silva
Leite , Nair Arrais
Teixeira, Leandro Barbosa
Silva , Elias Paulo da
Paixão , Caroline Milanez
Ferreira , Islaila Maria Silva
Santos , Bárbara Maria Rodrigues dos
Oliveira , Maria Clara do Nascimento
Silva , Amanda Joyce Alves
Marinho , Rebeca Rayane de Sousa
Zandim , Jéssica Cristina Lins
Louzada , Matheus Augusto da Silva Belidio
Silva , Thays Almeida da
Figueira , Elaine Cristina dos Santos
Costa, Lina Eduarda Silva
Nascimento, Máyra Geovanna Gonzaga
dc.subject.por.fl_str_mv Parkinson's disease
Caregivers
Home care.
Enfermedad de Parkinson
Cuidadores
Cuidados en el hogar.
Doença de Parkinson
Cuidadores
Assistência domiciliar.
topic Parkinson's disease
Caregivers
Home care.
Enfermedad de Parkinson
Cuidadores
Cuidados en el hogar.
Doença de Parkinson
Cuidadores
Assistência domiciliar.
description Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers.
publishDate 2021
dc.date.none.fl_str_mv 2021-08-12
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/18835
10.33448/rsd-v10i10.18835
url https://rsdjournal.org/index.php/rsd/article/view/18835
identifier_str_mv 10.33448/rsd-v10i10.18835
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/18835/16868
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 10; e311101018835
Research, Society and Development; Vol. 10 Núm. 10; e311101018835
Research, Society and Development; v. 10 n. 10; e311101018835
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
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institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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