Role of home caregivers in care for persons with Parkinson's disease: an integrative review
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/18835 |
Resumo: | Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers. |
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Role of home caregivers in care for persons with Parkinson's disease: an integrative reviewPapel de los cuidadores domiciliarios en el cuidado de personas con enfermedad de Parkinson: una revisión integradoraPapel do cuidador domiciliar na assistência a pessoa com doença de Parkinson: uma revisão integrativaParkinson's diseaseCaregiversHome care.Enfermedad de ParkinsonCuidadoresCuidados en el hogar.Doença de ParkinsonCuidadoresAssistência domiciliar.Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers.Buscar en la literatura las actividades que realizan los cuidadores familiares a las personas con enfermedad de Parkinson, señalando sus principales dificultades y las actividades realizadas en el hogar para mejorar la calidad de vida del paciente. Se trata de una revisión de la literatura integradora, con un aspecto descriptivo y cualitativo. La búsqueda de datos se realizó en las siguientes bases de datos: Literatura Latinoamericana y del Caribe en Ciencias de la Salud (LILACS); Biblioteca Electrónica Científica en Línea (SciELO) y Base de Datos de Enfermería (BDENF). La investigación se llevó a cabo de junio a julio de 2021, y los descriptores “Enfermedad de Parkinson; Cuidadores; Cuidados en el hogar". Establecidos en la lista de Descriptores de Ciencias de la Salud (DEC), y después de aplicar los criterios de elegibilidad, quedaron ocho estudios para ser utilizados en el estudio. La principal dificultad en la atención domiciliaria de los pacientes con EP es la falta de información sobre la patología y, en consecuencia, la falta de preparación de los cuidadores, que en su mayoría están compuestos por mujeres esposas. Se concluye que es necesario contar con una promoción de la salud efectiva en el contexto del hogar, para ofrecer capacitación y preparación a estos cuidadores informales.Buscar na literatura as atividades realizadas pelo cuidador familiar a pessoa com a doença de Parkinson, apontando as suas principais dificuldades e atividades implementadas no domicilio para melhorar a qualidade de vida do paciente. Trata-se de uma revisão integrativa da literatura, de aspecto descritivo e qualitativo. A busca de dados ocorreu nas bases: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS); Scientific Electronic Library Online (SciELO) e Base de Dados de Enfermagem (BDENF). A pesquisa ocorreu no período de junho a julho de 2021, e foram usados os descritores “Doença de Parkinson; Cuidadores; Assistência domiciliar”. Estabelecidos na lista dos Descritores em Ciências da Saúde (DECs), e após aplicação dos critérios de elegibilidade restaram oito estudos para serem usados na pesquisa. A principal dificuldade na assistência domiciliar ao paciente com DP é a falta de informações sobre a patologia e por consequência a falta de preparo dos cuidadores, que em sua maioria é composta por cônjuges do sexo feminino. Conclui-se que é necessário haver uma promoção de saúde efetiva no contexto domiciliar, para ofertar qualificação e preparo a esses cuidadores informais.Research, Society and Development2021-08-12info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1883510.33448/rsd-v10i10.18835Research, Society and Development; Vol. 10 No. 10; e311101018835Research, Society and Development; Vol. 10 Núm. 10; e311101018835Research, Society and Development; v. 10 n. 10; e3111010188352525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/18835/16868Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Luíza Alves da Silva ; Maria Eduarda Barros Pardelhas ; Mikaelle Alves Silva ; Sara Paulino dos Anjos ; Emanuel Roger dos Santos Reis ; Ludmila de Araujo Costa ; Karine Souza Andrade ; Edilson Josué de Oliveira Junior ; Mariel Wágner Holanda Lima; Isabelly Raiane Silva dos Santos ; Kaline Oliveira de Sousa; Julia Suelen Matias dos Santos ; Carlianne Brito dos Santos ; Letícia da Fonseca Anacleto Moreira; Mateus Silva Soares ; Nair Arrais Leite ; Leandro Barbosa Teixeira; Elias Paulo da Silva ; Caroline Milanez Paixão ; Islaila Maria Silva Ferreira ; Bárbara Maria Rodrigues dos Santos ; Maria Clara do Nascimento Oliveira ; Amanda Joyce Alves Silva ; Rebeca Rayane de Sousa Marinho ; Jéssica Cristina Lins Zandim ; Matheus Augusto da Silva Belidio Louzada ; Thays Almeida da Silva ; Elaine Cristina dos Santos Figueira ; Lina Eduarda Silva Costa; Máyra Geovanna Gonzaga Nascimentohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantos, Allan Bruno Alves de SousaSilva , Luíza Alves da Pardelhas , Maria Eduarda Barros Silva , Mikaelle AlvesAnjos , Sara Paulino dos Reis , Emanuel Roger dos Santos Costa , Ludmila de Araujo Andrade , Karine Souza Oliveira Junior , Edilson Josué de Lima, Mariel Wágner Holanda Santos , Isabelly Raiane Silva dos Sousa, Kaline Oliveira de Santos , Julia Suelen Matias dos Santos , Carlianne Brito dos Moreira, Letícia da Fonseca Anacleto Soares , Mateus Silva Leite , Nair Arrais Teixeira, Leandro Barbosa Silva , Elias Paulo da Paixão , Caroline Milanez Ferreira , Islaila Maria Silva Santos , Bárbara Maria Rodrigues dos Oliveira , Maria Clara do Nascimento Silva , Amanda Joyce Alves Marinho , Rebeca Rayane de Sousa Zandim , Jéssica Cristina Lins Louzada , Matheus Augusto da Silva BelidioSilva , Thays Almeida daFigueira , Elaine Cristina dos Santos Costa, Lina Eduarda SilvaNascimento, Máyra Geovanna Gonzaga 2021-10-02T21:49:16Zoai:ojs.pkp.sfu.ca:article/18835Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:38:52.672850Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review Papel de los cuidadores domiciliarios en el cuidado de personas con enfermedad de Parkinson: una revisión integradora Papel do cuidador domiciliar na assistência a pessoa com doença de Parkinson: uma revisão integrativa |
title |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
spellingShingle |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review Santos, Allan Bruno Alves de Sousa Parkinson's disease Caregivers Home care. Enfermedad de Parkinson Cuidadores Cuidados en el hogar. Doença de Parkinson Cuidadores Assistência domiciliar. |
title_short |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
title_full |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
title_fullStr |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
title_full_unstemmed |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
title_sort |
Role of home caregivers in care for persons with Parkinson's disease: an integrative review |
author |
Santos, Allan Bruno Alves de Sousa |
author_facet |
Santos, Allan Bruno Alves de Sousa Silva , Luíza Alves da Pardelhas , Maria Eduarda Barros Silva , Mikaelle Alves Anjos , Sara Paulino dos Reis , Emanuel Roger dos Santos Costa , Ludmila de Araujo Andrade , Karine Souza Oliveira Junior , Edilson Josué de Lima, Mariel Wágner Holanda Santos , Isabelly Raiane Silva dos Sousa, Kaline Oliveira de Santos , Julia Suelen Matias dos Santos , Carlianne Brito dos Moreira, Letícia da Fonseca Anacleto Soares , Mateus Silva Leite , Nair Arrais Teixeira, Leandro Barbosa Silva , Elias Paulo da Paixão , Caroline Milanez Ferreira , Islaila Maria Silva Santos , Bárbara Maria Rodrigues dos Oliveira , Maria Clara do Nascimento Silva , Amanda Joyce Alves Marinho , Rebeca Rayane de Sousa Zandim , Jéssica Cristina Lins Louzada , Matheus Augusto da Silva Belidio Silva , Thays Almeida da Figueira , Elaine Cristina dos Santos Costa, Lina Eduarda Silva Nascimento, Máyra Geovanna Gonzaga |
author_role |
author |
author2 |
Silva , Luíza Alves da Pardelhas , Maria Eduarda Barros Silva , Mikaelle Alves Anjos , Sara Paulino dos Reis , Emanuel Roger dos Santos Costa , Ludmila de Araujo Andrade , Karine Souza Oliveira Junior , Edilson Josué de Lima, Mariel Wágner Holanda Santos , Isabelly Raiane Silva dos Sousa, Kaline Oliveira de Santos , Julia Suelen Matias dos Santos , Carlianne Brito dos Moreira, Letícia da Fonseca Anacleto Soares , Mateus Silva Leite , Nair Arrais Teixeira, Leandro Barbosa Silva , Elias Paulo da Paixão , Caroline Milanez Ferreira , Islaila Maria Silva Santos , Bárbara Maria Rodrigues dos Oliveira , Maria Clara do Nascimento Silva , Amanda Joyce Alves Marinho , Rebeca Rayane de Sousa Zandim , Jéssica Cristina Lins Louzada , Matheus Augusto da Silva Belidio Silva , Thays Almeida da Figueira , Elaine Cristina dos Santos Costa, Lina Eduarda Silva Nascimento, Máyra Geovanna Gonzaga |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Santos, Allan Bruno Alves de Sousa Silva , Luíza Alves da Pardelhas , Maria Eduarda Barros Silva , Mikaelle Alves Anjos , Sara Paulino dos Reis , Emanuel Roger dos Santos Costa , Ludmila de Araujo Andrade , Karine Souza Oliveira Junior , Edilson Josué de Lima, Mariel Wágner Holanda Santos , Isabelly Raiane Silva dos Sousa, Kaline Oliveira de Santos , Julia Suelen Matias dos Santos , Carlianne Brito dos Moreira, Letícia da Fonseca Anacleto Soares , Mateus Silva Leite , Nair Arrais Teixeira, Leandro Barbosa Silva , Elias Paulo da Paixão , Caroline Milanez Ferreira , Islaila Maria Silva Santos , Bárbara Maria Rodrigues dos Oliveira , Maria Clara do Nascimento Silva , Amanda Joyce Alves Marinho , Rebeca Rayane de Sousa Zandim , Jéssica Cristina Lins Louzada , Matheus Augusto da Silva Belidio Silva , Thays Almeida da Figueira , Elaine Cristina dos Santos Costa, Lina Eduarda Silva Nascimento, Máyra Geovanna Gonzaga |
dc.subject.por.fl_str_mv |
Parkinson's disease Caregivers Home care. Enfermedad de Parkinson Cuidadores Cuidados en el hogar. Doença de Parkinson Cuidadores Assistência domiciliar. |
topic |
Parkinson's disease Caregivers Home care. Enfermedad de Parkinson Cuidadores Cuidados en el hogar. Doença de Parkinson Cuidadores Assistência domiciliar. |
description |
Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-08-12 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/18835 10.33448/rsd-v10i10.18835 |
url |
https://rsdjournal.org/index.php/rsd/article/view/18835 |
identifier_str_mv |
10.33448/rsd-v10i10.18835 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/18835/16868 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 10; e311101018835 Research, Society and Development; Vol. 10 Núm. 10; e311101018835 Research, Society and Development; v. 10 n. 10; e311101018835 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
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UNIFEI |
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Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052808114995200 |