Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará

Detalhes bibliográficos
Autor(a) principal: Kaminosono, Agnes Nami
Data de Publicação: 2021
Outros Autores: Gillet, Ana Maria Ferreira, Sousa, Emanuelle Karine Sena, Macedo, Caio Leonardo, Soler, Orenzio
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/23936
Resumo: Objective: To investigate the itinerary of users who had access to the antifibrotic drugs nintedanib and pirfenidone via judicial or administrative procedures; as well as their respective socioeconomic and epidemiological profiles served by the Judicial and Administrative Demands Pharmacy. Method: This is a cross-sectional, retrospective, analytical-descriptive, qualitative-quantitative study. The socioeconomic and demographic data of the users are presented. Results: The findings inform us that there is a prevalence of demand through the administrative process in relation to the demand through the courts. Users find it difficult to register, renew and access the medicine; therefore, they present difficulties for adherence and continuity of treatment. Conclusion: It is inferred that there are difficulties in accessing treatment for IPF in Pará, and treatment adherence and continuity are hampered by the inconstancy in the acquisition of antifibrotics. There is damage to the quality of life of users. There were high expenses with the acquisition of antifibrotic drugs.
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spelling Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of ParáItinerario de usuarios con fibrosis pulmonar idiopática tratados judicial o administrativamente por el Departamento de Estado de Salud de ParáItinerário de utentes com fibrose pulmonar idiopática atendidos via judicial ou administrativa pela Secretaria de Estado de Saúde do ParáRare DiseasesIdiopathic Pulmonary FibrosisPharmaceutical CarePharmaceutical AssistanceMedicines.Enfermedades rarasFibrosis Pulmonar IdiopáticaAsistencia FarmacéuticaAtención farmacéuticaMedicinas.Doenças RarasFibrose Pulmonar IdiopáticaCuidado FarmacêuticoAssistência FarmacêuticaMedicamentos.Objective: To investigate the itinerary of users who had access to the antifibrotic drugs nintedanib and pirfenidone via judicial or administrative procedures; as well as their respective socioeconomic and epidemiological profiles served by the Judicial and Administrative Demands Pharmacy. Method: This is a cross-sectional, retrospective, analytical-descriptive, qualitative-quantitative study. The socioeconomic and demographic data of the users are presented. Results: The findings inform us that there is a prevalence of demand through the administrative process in relation to the demand through the courts. Users find it difficult to register, renew and access the medicine; therefore, they present difficulties for adherence and continuity of treatment. Conclusion: It is inferred that there are difficulties in accessing treatment for IPF in Pará, and treatment adherence and continuity are hampered by the inconstancy in the acquisition of antifibrotics. There is damage to the quality of life of users. There were high expenses with the acquisition of antifibrotic drugs.Objetivo: investigar el itinerario de los usuarios que tuvieron acceso a los fármacos antifibróticos nintedanib y pirfenidona a través de procedimientos judiciales o administrativos; así como sus respectivos perfiles socioeconómicos y epidemiológicos atendidos por la Farmacia de Demandas Judiciales y Administrativas. Método: Se trata de un estudio transversal, retrospectivo, analítico-descriptivo, cualitativo-cuantitativo. Se presentan los datos socioeconómicos y demográficos de los usuarios. Resultados: Los hallazgos nos informan que existe un predominio de la demanda a través del proceso administrativo en relación a la demanda a través de los tribunales. Los usuarios tienen dificultades para registrarse, renovar y acceder al medicamento; por tanto, presentan dificultades para la adherencia y continuidad del tratamiento. Conclusión: Se infiere que existen dificultades para acceder al tratamiento de la FPI en Pará, y la adherencia y continuidad del tratamiento se ven obstaculizadas por la inconstancia en la adquisición de antifibróticos. Hay daños en la calidad de vida de los usuarios. Hubo altos gastos con la adquisición de fármacos antifibróticos.Objetivo: Investigar o itinerário de utentes que tiveram acesso aos medicamentos antifibróticos nintedanibe e pirfenidona via judicial ou administrativa; assim como, seus respectivos perfis socioeconômicos e epidemiológicos atendidos na Farmácia de Demandas Judiciais e Administrativas. Método: Trata-se de estudo transversal, retrospectivo, analítico-descritivo, qualitativo-quantitativo. Apresenta-se os dados socioeconômicos e demográficos do utentes. Resultados: Os achados nos informam que há prevalência de demanda via administrativa em relação a demanda via judicial. Os utentes têm dificuldade para efetuar o cadastro, renovação e o acesso ao medicamento; logo, apresentam dificuldades para adesão e continuidade ao tratamento. Conclusão: Infere-se que há dificuldades no acesso ao tratamento da FPI no Pará, sendo que a adesão ao tratamento e a continuidade estão prejudicadas pela inconstância na aquisição dos antifibróticos. Há prejuízos para a qualidade de vida dos utentes. Constatou-se altos gastos com a aquisição dos medicamentos antifibróticos. Research, Society and Development2021-12-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/2393610.33448/rsd-v10i16.23936Research, Society and Development; Vol. 10 No. 16; e251101623936Research, Society and Development; Vol. 10 Núm. 16; e251101623936Research, Society and Development; v. 10 n. 16; e2511016239362525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/23936/20622Copyright (c) 2021 Agnes Nami Kaminosono; Ana Maria Ferreira Gillet; Emanuelle Karine Sena Sousa; Caio Leonardo Macedo; Orenzio Solerhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessKaminosono, Agnes Nami Gillet, Ana Maria Ferreira Sousa, Emanuelle Karine Sena Macedo, Caio Leonardo Soler, Orenzio2021-12-20T11:03:07Zoai:ojs.pkp.sfu.ca:article/23936Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:42:39.253324Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
Itinerario de usuarios con fibrosis pulmonar idiopática tratados judicial o administrativamente por el Departamento de Estado de Salud de Pará
Itinerário de utentes com fibrose pulmonar idiopática atendidos via judicial ou administrativa pela Secretaria de Estado de Saúde do Pará
title Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
spellingShingle Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
Kaminosono, Agnes Nami
Rare Diseases
Idiopathic Pulmonary Fibrosis
Pharmaceutical Care
Pharmaceutical Assistance
Medicines.
Enfermedades raras
Fibrosis Pulmonar Idiopática
Asistencia Farmacéutica
Atención farmacéutica
Medicinas.
Doenças Raras
Fibrose Pulmonar Idiopática
Cuidado Farmacêutico
Assistência Farmacêutica
Medicamentos.
title_short Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
title_full Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
title_fullStr Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
title_full_unstemmed Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
title_sort Itinerary of patients with idiopathic pulmonary fibrosis assisted by the judicial or administrative authorities of the State of Pará
author Kaminosono, Agnes Nami
author_facet Kaminosono, Agnes Nami
Gillet, Ana Maria Ferreira
Sousa, Emanuelle Karine Sena
Macedo, Caio Leonardo
Soler, Orenzio
author_role author
author2 Gillet, Ana Maria Ferreira
Sousa, Emanuelle Karine Sena
Macedo, Caio Leonardo
Soler, Orenzio
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Kaminosono, Agnes Nami
Gillet, Ana Maria Ferreira
Sousa, Emanuelle Karine Sena
Macedo, Caio Leonardo
Soler, Orenzio
dc.subject.por.fl_str_mv Rare Diseases
Idiopathic Pulmonary Fibrosis
Pharmaceutical Care
Pharmaceutical Assistance
Medicines.
Enfermedades raras
Fibrosis Pulmonar Idiopática
Asistencia Farmacéutica
Atención farmacéutica
Medicinas.
Doenças Raras
Fibrose Pulmonar Idiopática
Cuidado Farmacêutico
Assistência Farmacêutica
Medicamentos.
topic Rare Diseases
Idiopathic Pulmonary Fibrosis
Pharmaceutical Care
Pharmaceutical Assistance
Medicines.
Enfermedades raras
Fibrosis Pulmonar Idiopática
Asistencia Farmacéutica
Atención farmacéutica
Medicinas.
Doenças Raras
Fibrose Pulmonar Idiopática
Cuidado Farmacêutico
Assistência Farmacêutica
Medicamentos.
description Objective: To investigate the itinerary of users who had access to the antifibrotic drugs nintedanib and pirfenidone via judicial or administrative procedures; as well as their respective socioeconomic and epidemiological profiles served by the Judicial and Administrative Demands Pharmacy. Method: This is a cross-sectional, retrospective, analytical-descriptive, qualitative-quantitative study. The socioeconomic and demographic data of the users are presented. Results: The findings inform us that there is a prevalence of demand through the administrative process in relation to the demand through the courts. Users find it difficult to register, renew and access the medicine; therefore, they present difficulties for adherence and continuity of treatment. Conclusion: It is inferred that there are difficulties in accessing treatment for IPF in Pará, and treatment adherence and continuity are hampered by the inconstancy in the acquisition of antifibrotics. There is damage to the quality of life of users. There were high expenses with the acquisition of antifibrotic drugs.
publishDate 2021
dc.date.none.fl_str_mv 2021-12-04
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/23936
10.33448/rsd-v10i16.23936
url https://rsdjournal.org/index.php/rsd/article/view/23936
identifier_str_mv 10.33448/rsd-v10i16.23936
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/23936/20622
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 16; e251101623936
Research, Society and Development; Vol. 10 Núm. 16; e251101623936
Research, Society and Development; v. 10 n. 16; e251101623936
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
_version_ 1797052810177544192

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