Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/16450 |
Resumo: | Introduction: Sickle cell anemia - AF is a genetic alteration, since hemoglobin mutation occurs, designated as hemoglobin S or HbS. Objective: to know the conception of the family caregiver of the PA patient about the disease and its treatment in the city of Colinas. Methodology: This is a descriptive study with a qualitative approach, carried out in the municipality of Colinas - MA, from May to June 2019. Where semi-structured questionnaires were used as a data collection instrument. Results and Discussion: Eight (8) responsible for sickle cell anemia patients were interviewed, of the eight (8), six (6) is the mother of the carrier, one (1) is the grandmother and one (1) is the great-grandmother of the child , age 25 to 64 years. When asked about ethnicity, 75% considered themselves brown, 12.5% black and 12.5% white; on family income 12.5% declared to receive two minimum wages, 62.5% live on one minimum wage and 25% live on less than one minimum wage; when asking about education, 50% have not completed elementary school, 25% have incomplete high school and 25% have completed high school; on the number of children 37.5% have three (3) children, 37.5% have two (2) children and 25% only one (1) child. Conclusion: In this study, it was analyzed that the municipality does not provide all the centers that integrate the treatment of sickle cell disease. |
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Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in MaranhãoAnemia Falciforme: Concepción del cuidador familiar de la enfermedad y su tratamiento en un Municipio de MaranhãoAnemia Falciforme: Concepção do cuidador familiar sobre a doença e seu tratamento em um Município do MaranhãoSickle Cell AnemiaMedical GeneticsFamily caregiver.Anemia FalciformeGenética MédicaCuidador familiar.Anemia de células falciformesGenética MédicaCuidador familiar.Introduction: Sickle cell anemia - AF is a genetic alteration, since hemoglobin mutation occurs, designated as hemoglobin S or HbS. Objective: to know the conception of the family caregiver of the PA patient about the disease and its treatment in the city of Colinas. Methodology: This is a descriptive study with a qualitative approach, carried out in the municipality of Colinas - MA, from May to June 2019. Where semi-structured questionnaires were used as a data collection instrument. Results and Discussion: Eight (8) responsible for sickle cell anemia patients were interviewed, of the eight (8), six (6) is the mother of the carrier, one (1) is the grandmother and one (1) is the great-grandmother of the child , age 25 to 64 years. When asked about ethnicity, 75% considered themselves brown, 12.5% black and 12.5% white; on family income 12.5% declared to receive two minimum wages, 62.5% live on one minimum wage and 25% live on less than one minimum wage; when asking about education, 50% have not completed elementary school, 25% have incomplete high school and 25% have completed high school; on the number of children 37.5% have three (3) children, 37.5% have two (2) children and 25% only one (1) child. Conclusion: In this study, it was analyzed that the municipality does not provide all the centers that integrate the treatment of sickle cell disease.Indroducción: La anemia de células falciformes - AF es una alteración genética, ya que se produce una mutación de la hemoglobina, denominada hemoglobina S o HbS. Objetivo: conocer la concepción del cuidador familiar del paciente AP sobre la enfermedad y su tratamiento en la ciudad de Colinas. Metodología: Se trata de un estudio descriptivo con enfoque cualitativo, realizado en la ciudad de Colinas - MA, de mayo a junio de 2019. Donde se utilizaron cuestionarios semiestructurados como instrumento de recolección de datos. Resultados y Discusión: Se entrevistaron ocho (8) pacientes responsables de anemia falciforme, de los ocho (8), seis (6) es la madre del portador, uno (1) es la abuela y uno (1) es el tatarabuelo. -abuela del niño, de 25 a 64 años. Cuando se les preguntó sobre la etnia, el 75% se consideró moreno, el 12,5% negro y el 12,5% blanco; de los ingresos familiares, el 12,5% declaró recibir dos salarios mínimos, el 62,5% vive con un salario mínimo y el 25% vive con menos de un salario mínimo; al preguntar sobre educación, el 50% no completó la educación primaria, el 25% tiene educación secundaria incompleta y el 25% la educación secundaria completa; sobre el número de hijos el 37,5% tiene tres (3) hijos, el 37,5% tiene dos (2) hijos y el 25% solo un (1) hijo. Conclusión: En el presente estudio se analizó que el municipio no cuenta con todos los centros que integran el tratamiento de la anemia falciforme.Introdução: A anemia falciforme - AF é uma alteração genética, pois acontece a mutação da hemoglobina, designada como hemoglobina S ou HbS. Objetivo: conhecer a concepção do cuidador familiar do portador da AF, sobre a doença e seu tratamento no município de Colinas. Metodologia: Trata-se de um estudo na forma descritiva com abordagem qualitativa, realizado no município de Colinas - MA, no período de maio a junho de 2019. Onde utilizou-se como instrumento de coleta de dados, questionários semiestruturados. Resultados e Discussão: Foram entrevistadas oito (8) responsáveis pelos portadores de anemia falciforme, dos oito (8), seis (6) é a mãe do portador, um (1) é a avó e um (1) é a bisavó da criança, idade de 25 a 64 anos. Ao questionar sobre a etnia 75% se consideraram pardos, 12,5% negros e 12,5% brancos; sobre a renda familiar 12,5% declararam receber dois salários mínimos, 62,5% vivem com um salário mínimo e 25% vivem com menos de um salário mínimo; ao indagar sobre a escolaridade 50% não concluíram o ensino fundamental, 25% têm ensino médio incompleto e 25% concluíram ensino médio; sobre a quantidade de filhos 37,5% tem três (3) filhos, 37,5% possuem dois (2) filhos e 25% apenas um (1) filho. Conclusão: No presente estudo foi analisado que o município não fornece todos os núcleos que integra o tratamento da siclemia.Research, Society and Development2021-06-20info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1645010.33448/rsd-v10i7.16450Research, Society and Development; Vol. 10 No. 7; e24010716450Research, Society and Development; Vol. 10 Núm. 7; e24010716450Research, Society and Development; v. 10 n. 7; e240107164502525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/16450/14744Copyright (c) 2021 Helen Lucy Maria Rocha Barroso; Alana Jéssyca Costa Sipaúba; Thátila Larissa da Cruz Andrade; Josielen Barroso Leal Maciel; Klécia de Sousa Marques da Silva; Suélly Mayara Rodrigues da Fonseca; Gardênia Monteiro Batistahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessBarroso, Helen Lucy Maria Rocha Sipaúba, Alana Jéssyca Costa Andrade, Thátila Larissa da Cruz Maciel, Josielen Barroso Leal Silva, Klécia de Sousa Marques da Fonseca, Suélly Mayara Rodrigues da Batista, Gardênia Monteiro 2021-07-18T21:07:03Zoai:ojs.pkp.sfu.ca:article/16450Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:36:59.957472Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão Anemia Falciforme: Concepción del cuidador familiar de la enfermedad y su tratamiento en un Municipio de Maranhão Anemia Falciforme: Concepção do cuidador familiar sobre a doença e seu tratamento em um Município do Maranhão |
title |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
spellingShingle |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão Barroso, Helen Lucy Maria Rocha Sickle Cell Anemia Medical Genetics Family caregiver. Anemia Falciforme Genética Médica Cuidador familiar. Anemia de células falciformes Genética Médica Cuidador familiar. |
title_short |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
title_full |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
title_fullStr |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
title_full_unstemmed |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
title_sort |
Falciform Anemia: Conception of the family caregiver about the disease and its treatment in a City in Maranhão |
author |
Barroso, Helen Lucy Maria Rocha |
author_facet |
Barroso, Helen Lucy Maria Rocha Sipaúba, Alana Jéssyca Costa Andrade, Thátila Larissa da Cruz Maciel, Josielen Barroso Leal Silva, Klécia de Sousa Marques da Fonseca, Suélly Mayara Rodrigues da Batista, Gardênia Monteiro |
author_role |
author |
author2 |
Sipaúba, Alana Jéssyca Costa Andrade, Thátila Larissa da Cruz Maciel, Josielen Barroso Leal Silva, Klécia de Sousa Marques da Fonseca, Suélly Mayara Rodrigues da Batista, Gardênia Monteiro |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Barroso, Helen Lucy Maria Rocha Sipaúba, Alana Jéssyca Costa Andrade, Thátila Larissa da Cruz Maciel, Josielen Barroso Leal Silva, Klécia de Sousa Marques da Fonseca, Suélly Mayara Rodrigues da Batista, Gardênia Monteiro |
dc.subject.por.fl_str_mv |
Sickle Cell Anemia Medical Genetics Family caregiver. Anemia Falciforme Genética Médica Cuidador familiar. Anemia de células falciformes Genética Médica Cuidador familiar. |
topic |
Sickle Cell Anemia Medical Genetics Family caregiver. Anemia Falciforme Genética Médica Cuidador familiar. Anemia de células falciformes Genética Médica Cuidador familiar. |
description |
Introduction: Sickle cell anemia - AF is a genetic alteration, since hemoglobin mutation occurs, designated as hemoglobin S or HbS. Objective: to know the conception of the family caregiver of the PA patient about the disease and its treatment in the city of Colinas. Methodology: This is a descriptive study with a qualitative approach, carried out in the municipality of Colinas - MA, from May to June 2019. Where semi-structured questionnaires were used as a data collection instrument. Results and Discussion: Eight (8) responsible for sickle cell anemia patients were interviewed, of the eight (8), six (6) is the mother of the carrier, one (1) is the grandmother and one (1) is the great-grandmother of the child , age 25 to 64 years. When asked about ethnicity, 75% considered themselves brown, 12.5% black and 12.5% white; on family income 12.5% declared to receive two minimum wages, 62.5% live on one minimum wage and 25% live on less than one minimum wage; when asking about education, 50% have not completed elementary school, 25% have incomplete high school and 25% have completed high school; on the number of children 37.5% have three (3) children, 37.5% have two (2) children and 25% only one (1) child. Conclusion: In this study, it was analyzed that the municipality does not provide all the centers that integrate the treatment of sickle cell disease. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-06-20 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/16450 10.33448/rsd-v10i7.16450 |
url |
https://rsdjournal.org/index.php/rsd/article/view/16450 |
identifier_str_mv |
10.33448/rsd-v10i7.16450 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/16450/14744 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 7; e24010716450 Research, Society and Development; Vol. 10 Núm. 7; e24010716450 Research, Society and Development; v. 10 n. 7; e24010716450 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052679807041536 |