Family caregiver's perspective on children with sickle cell disease: an integrative review

• Autor(a) principal: Santos, Allan Bruno Alves de Sousa
• Data de Publicação: 2021
• Outros Autores: Costa , Lina Eduarda Silva, Sousa , Kaline Oliveira de, Machado , Bruno Abílio da Silva, Costa , Gabriella Pacheco, Matos , Dalton Ferreira, Miranda , Livia Maria Tavares, Araújo , Tereza Cristina Santos Gomes de, Guedes, Thiemmy de Souza Almeida, Martins , Victória Maria Pontes, Cruz , Rafaela de Lima da, Lima , Débora de Oliveira, Coêlho , Luana Pereira Ibiapina, Teixeira, Leandro Barbosa, Lima , Edla Nayara da Silva, Silva , Joyce Quirino da, Jaques , Allan Francisco Costa, Paula , Saulo Leite de, Martins , Yanna Cavalcante, Silva , Jônatas Lucas Marcelino da, Faria , Raphaela da Silva, Santos, Kleber Luiz Santana dos, Ramalho, Luciana Carneiro de Brito, Oliveira, Gerson Pedroso de
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Research, Society and Development
• Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/19693
• topic: Cuidadores; Criança; Anemia falciforme.; Cuidadores; Niño; Anemia de células falciformes.; Caregivers; Kid; Sickle cell anemia.

This study aims to search the literature for activities performed by caregivers to promote a better quality of life for children with sickle cell anemia, emphasizing the importance of home care. This is a descriptive study of the integrative literature review type. The collection took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Nursing Database (BDENF) and Scientific Electronic Library Online (SciELO). The studies were collected from June to July 2021, using the descriptors “Caregivers; kid; Sickle Cell Anemia”, crossed with the Boolean operators “AND” and “OR”, located in the list of Health Science Descriptors (DECs). After applying the eligibility criteria, 9 studies were selected for the research. The main difficulty highlighted in this study was the lack of correct information from caregivers about sickle cell anemia, and the lack of interaction between health professionals and family members. of pain in children. It is concluded that an effective health education is needed for this population, as correct information about the disease is the basis for quality care in the home environment.