Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers
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Data de Publicação: | 2021 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/20726 |
Resumo: | Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization. |
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Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregiversDiagnóstico de la condición crónica del niño: situaciones de vulnerabilidad vividas por familiares/cuidadoresDiagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadoresNiñoEnfermedad crónicaFamiliaDiagnósticoCuidadores.CriançaDoença crônicaFamíliaDiagnósticoCuidadores.ChildChronic diseaseFamilyDiagnosisCaregivers.Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization.Objetivo: Conocer las situaciones de vulnerabilidad que viven los familiares/cuidadores al recibir el diagnóstico de la condición crónica del niño. Metodología: Se trata de una investigación descriptiva exploratoria con abordaje cualitativo en la que participaron 10 familiares/cuidadores de niños con enfermedades crónicas que fueron hospitalizados en unidades pediátricas de una ciudad del sur de Brasil. La información se recopiló a través de entrevistas y se analizó mediante el análisis temático. La investigación fue aprobada por el Comité de Ética en Investigación de Plataforma Brasil. Resultados: Se identificó la presencia de vulnerabilidad ontológica, ética, social y cultural. Se revelaron sentimientos como sufrimiento, conmoción y angustia relacionados con el diagnóstico de la condición crónica, que impuso varias dificultades a ser enfrentadas por familiares/cuidadores. Conclusión: Se identificó que, con el diagnóstico de la condición crónica del niño, ocurren varios cambios en los hábitos de los familiares/cuidadores, requiriendo muchas veces que la familia reorganice toda su estructura, desde la alimentación hasta sus actividades externas, como el trabajo y la socialización.Objetivo: Conhecer as situações de vulnerabilidade vivenciadas pelos familiares/cuidadores na recepção do diagnóstico da condição crônica da criança. Metodologia: Trata-se de uma pesquisa descritiva exploratória com abordagem qualitativa da qual participaram 10 familiares/cuidadores de crianças com condição crônica, que estiveram hospitalizadas em unidades pediátricas de um município ao Sul do Brasil. As informações foram coletadas por meio de entrevista e analisadas a partir da Análise Temática. A pesquisa foi aprovada pelo Comitê de Ética em Pesquisa na Plataforma Brasil. Resultados: Identificou-se a presença da vulnerabilidade ontológica, ética, social e cultural. Desvelaram-se sentimentos como sofrimento, choque e angústia relacionados ao diagnóstico da condição crônica que impôs várias dificuldades a serem enfrentadas pelos familiares/cuidadores. Conclusão: Identificou-se que com o diagnóstico da condição crônica da criança ocorrem diversas mudanças nos hábitos dos familiares/cuidadores, necessitando muitas vezes que a família reorganize toda a sua estrutura, desde a alimentação até suas atividades externas, como trabalho e socialização.Research, Society and Development2021-10-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/2072610.33448/rsd-v10i12.20726Research, Society and Development; Vol. 10 No. 12; e552101220726Research, Society and Development; Vol. 10 Núm. 12; e552101220726Research, Society and Development; v. 10 n. 12; e5521012207262525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/20726/18543Copyright (c) 2021 Jéssica Cardoso Vaz; Viviane Marten Milbrath; Ruth Irmgard Bärtschi Gabatz; Tuize Damé Hense; Simone Pont Zambonato Maclufhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessVaz, Jéssica Cardoso Milbrath, Viviane Marten Gabatz, Ruth Irmgard Bärtschi Hense, Tuize Damé Macluf, Simone Pont Zambonato 2021-11-14T20:26:51Zoai:ojs.pkp.sfu.ca:article/20726Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:40:17.185532Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers Diagnóstico de la condición crónica del niño: situaciones de vulnerabilidad vividas por familiares/cuidadores Diagnóstico da condição crônica da criança: situações de vulnerabilidade vivenciadas pelos familiares/cuidadores |
title |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
spellingShingle |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers Vaz, Jéssica Cardoso Niño Enfermedad crónica Familia Diagnóstico Cuidadores. Criança Doença crônica Família Diagnóstico Cuidadores. Child Chronic disease Family Diagnosis Caregivers. |
title_short |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
title_full |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
title_fullStr |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
title_full_unstemmed |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
title_sort |
Diagnosis of the child’s chronic condition: situations of vulnerability experienced by Family members/caregivers |
author |
Vaz, Jéssica Cardoso |
author_facet |
Vaz, Jéssica Cardoso Milbrath, Viviane Marten Gabatz, Ruth Irmgard Bärtschi Hense, Tuize Damé Macluf, Simone Pont Zambonato |
author_role |
author |
author2 |
Milbrath, Viviane Marten Gabatz, Ruth Irmgard Bärtschi Hense, Tuize Damé Macluf, Simone Pont Zambonato |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Vaz, Jéssica Cardoso Milbrath, Viviane Marten Gabatz, Ruth Irmgard Bärtschi Hense, Tuize Damé Macluf, Simone Pont Zambonato |
dc.subject.por.fl_str_mv |
Niño Enfermedad crónica Familia Diagnóstico Cuidadores. Criança Doença crônica Família Diagnóstico Cuidadores. Child Chronic disease Family Diagnosis Caregivers. |
topic |
Niño Enfermedad crónica Familia Diagnóstico Cuidadores. Criança Doença crônica Família Diagnóstico Cuidadores. Child Chronic disease Family Diagnosis Caregivers. |
description |
Objective: To know the situations of vulnerability experienced by family members/caregivers when receiving the diagnosis of the child's chronic condition. Methodology: This is exploratory descriptive research with a qualitative approach in which 10 family members/caregivers of children with chronic conditions who were hospitalized in pediatric units in a city in southern Brazil participated. Information was collected through interviews and analyzed using the Thematic Analysis. The research was approved by the Research Ethics Committee at Plataforma Brazil. Results: The presence of ontological, ethical, social and cultural vulnerability was identified. Feelings such as suffering, shock and anguish related to the diagnosis of the chronic condition were revealed, which imposed several difficulties to be faced by family members/caregivers. Conclusion: It was identified that with the diagnosis of the child's chronic condition, several changes occur in the habits of family members/caregivers, often requiring the family to reorganize its entire structure, from food to its external activities, such as work and socialization. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-10-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/20726 10.33448/rsd-v10i12.20726 |
url |
https://rsdjournal.org/index.php/rsd/article/view/20726 |
identifier_str_mv |
10.33448/rsd-v10i12.20726 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/20726/18543 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 12; e552101220726 Research, Society and Development; Vol. 10 Núm. 12; e552101220726 Research, Society and Development; v. 10 n. 12; e552101220726 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052756073119744 |