The knowledge of children and adolescents with sickle cell anemia about their self-care

Detalhes bibliográficos
Autor(a) principal: Paiva, Gabriella Silvestre
Data de Publicação: 2022
Outros Autores: Morais, Rita de Cássia Melão de, Martins, Gisele, Nascimento, Luciana de Cássia Nunes
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/29934
Resumo: Objective: To identify the knowledge that children and adolescents with Sickle Cell Anemia (SCA) have in relation to self-care, analyze the knowledge regarding the self-care of children and adolescents with SCA and discuss the importance of health professionals in the self-care practice of this public. Methodology: Descriptive study with a qualitative approach, carried out at the oncohematology outpatient clinic of a public pediatric hospital in the Federal District, with participants from 6 to 17 years old, based on the dynamics of creativity and sensitivity Corpo Saber. The analysis of the data obtained was thematic. Results: The study had 20 participants in total. From the interviews, three thematic units were detected. Discussion: Self-care is required of any individual as they become capable, but for people diagnosed with SCA, the requirements become greater, considering that the risk of disease complications increases if proper care is not provided. Conclusion: Since childhood, individuals with SCA must be effectively guided to live with their condition, reducing the related risks. Health professionals must be attentive and prepared to understand the gaps in their patients knowledge, and interfere with correct counseling, generating greater adherence to self-care.
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spelling The knowledge of children and adolescents with sickle cell anemia about their self-care El conocimiento de niños y adolescentes con anemia de células falciformes sobre su autocuidadoO conhecimento de crianças e adolescentes com anemia falciforme sobre seu autocuidadoAutocuidadoSaúde da criançaAnemia falciformeEducação em saúde. Anemia de células falciformesSalud de los niñosAutocuidadoEducación en salud.Sickle cell anemiaSelf careChild healthHealth education.Objective: To identify the knowledge that children and adolescents with Sickle Cell Anemia (SCA) have in relation to self-care, analyze the knowledge regarding the self-care of children and adolescents with SCA and discuss the importance of health professionals in the self-care practice of this public. Methodology: Descriptive study with a qualitative approach, carried out at the oncohematology outpatient clinic of a public pediatric hospital in the Federal District, with participants from 6 to 17 years old, based on the dynamics of creativity and sensitivity Corpo Saber. The analysis of the data obtained was thematic. Results: The study had 20 participants in total. From the interviews, three thematic units were detected. Discussion: Self-care is required of any individual as they become capable, but for people diagnosed with SCA, the requirements become greater, considering that the risk of disease complications increases if proper care is not provided. Conclusion: Since childhood, individuals with SCA must be effectively guided to live with their condition, reducing the related risks. Health professionals must be attentive and prepared to understand the gaps in their patients knowledge, and interfere with correct counseling, generating greater adherence to self-care.Objetivo: Identificar los conocimientos que los niños y adolescentes com Anemia de células falciformes (ACF) tienen en relación al autocuidado, analizar los conocimientos sobre el autocuidado de los niños y adolescentes com ACF y discutir la importancia de los profesionales de la salud en la práctica del autocuidado de este público. Metodología: Estudio descriptivo con enfoque cualitativo, realizado en el ambulatorio de oncohematología de un hospital pediátrico público del Distrito Federal, con participantes de 6 a 17 años, basado en la dinámica de creatividad y sensibilidad Corpo Saber. El análisis de los datos obtenidos fue temático. Resultados: El estudio contó con 20 participantes en total. A partir de las entrevistas se detectaron tres unidades temáticas. Discusión: El autocuidado es requerido a cualquier individuo a medida que se vuelve capaz, pero para las personas diagnosticadas com ACF, los requerimientos se vuelven mayores, considerando que el riesgo de complicaciones de la enfermedad aumenta si no se brinda el cuidado adecuado. Conclusión: Desde la infancia, los individuos com ACF deben ser orientados de manera efectiva para vivir con su condición, reduciendo los riesgos relacionados. Los profesionales de la salud deben estar atentos y preparados para comprender los vacíos de conocimiento de sus pacientes e interferir en la correcta consejería, generando mayor adherencia al autocuidado.Objetivo: Identificar o conhecimento que as crianças e adolescentes com Anemia Falciforme (AF) têm em relação ao autocuidado, analisar os conhecimentos referentes ao autocuidado das crianças e adolescentes com AF e discutir a importância dos profissionais de saúde na prática de autocuidado desse público. Metodologia: Estudo descritivo de abordagem qualitativa, realizado no ambulatório de oncohematologia de um hospital público pediátrico no Distrito Federal, com participantes de 6 a 17 anos de idade, baseado na dinâmica de criatividade e sensibilidade Corpo Saber. A análise dos dados obtidos foi temática. Resultados: O estudo obteve 20 participantes ao todo. A partir das entrevistas foram detectadas três unidades temáticas. Discussão: O autocuidado é exigido a qualquer indivíduo à medida em que se torna capaz, porém para pessoas diagnosticadas com AF, as exigências tornam-se maiores, considerando que o risco de complicações da doença aumenta caso os devidos cuidados não sejam prestados. Conclusão: Desde a infância os indivíduos com AF devem ser orientados de maneira eficaz para conviver com sua condição, reduzindo os riscos relacionados. Os profissionais da saúde devem estar atentos e preparados para compreender as falhas no conhecimento de seus pacientes, e interferir com aconselhamento correto, gerando maior adesão ao autocuidado.Research, Society and Development2022-05-23info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/2993410.33448/rsd-v11i7.29934Research, Society and Development; Vol. 11 No. 7; e27311729934Research, Society and Development; Vol. 11 Núm. 7; e27311729934Research, Society and Development; v. 11 n. 7; e273117299342525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/29934/25859Copyright (c) 2022 Gabriella Silvestre Paiva; Rita de Cássia Melão de Morais; Gisele Martins; Luciana de Cássia Nunes Nascimentohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessPaiva, Gabriella SilvestreMorais, Rita de Cássia Melão deMartins, Gisele Nascimento, Luciana de Cássia Nunes2022-06-06T15:12:05Zoai:ojs.pkp.sfu.ca:article/29934Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:46:52.208241Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv The knowledge of children and adolescents with sickle cell anemia about their self-care
El conocimiento de niños y adolescentes con anemia de células falciformes sobre su autocuidado
O conhecimento de crianças e adolescentes com anemia falciforme sobre seu autocuidado
title The knowledge of children and adolescents with sickle cell anemia about their self-care
spellingShingle The knowledge of children and adolescents with sickle cell anemia about their self-care
Paiva, Gabriella Silvestre
Autocuidado
Saúde da criança
Anemia falciforme
Educação em saúde.
Anemia de células falciformes
Salud de los niños
Autocuidado
Educación en salud.
Sickle cell anemia
Self care
Child health
Health education.
title_short The knowledge of children and adolescents with sickle cell anemia about their self-care
title_full The knowledge of children and adolescents with sickle cell anemia about their self-care
title_fullStr The knowledge of children and adolescents with sickle cell anemia about their self-care
title_full_unstemmed The knowledge of children and adolescents with sickle cell anemia about their self-care
title_sort The knowledge of children and adolescents with sickle cell anemia about their self-care
author Paiva, Gabriella Silvestre
author_facet Paiva, Gabriella Silvestre
Morais, Rita de Cássia Melão de
Martins, Gisele
Nascimento, Luciana de Cássia Nunes
author_role author
author2 Morais, Rita de Cássia Melão de
Martins, Gisele
Nascimento, Luciana de Cássia Nunes
author2_role author
author
author
dc.contributor.author.fl_str_mv Paiva, Gabriella Silvestre
Morais, Rita de Cássia Melão de
Martins, Gisele
Nascimento, Luciana de Cássia Nunes
dc.subject.por.fl_str_mv Autocuidado
Saúde da criança
Anemia falciforme
Educação em saúde.
Anemia de células falciformes
Salud de los niños
Autocuidado
Educación en salud.
Sickle cell anemia
Self care
Child health
Health education.
topic Autocuidado
Saúde da criança
Anemia falciforme
Educação em saúde.
Anemia de células falciformes
Salud de los niños
Autocuidado
Educación en salud.
Sickle cell anemia
Self care
Child health
Health education.
description Objective: To identify the knowledge that children and adolescents with Sickle Cell Anemia (SCA) have in relation to self-care, analyze the knowledge regarding the self-care of children and adolescents with SCA and discuss the importance of health professionals in the self-care practice of this public. Methodology: Descriptive study with a qualitative approach, carried out at the oncohematology outpatient clinic of a public pediatric hospital in the Federal District, with participants from 6 to 17 years old, based on the dynamics of creativity and sensitivity Corpo Saber. The analysis of the data obtained was thematic. Results: The study had 20 participants in total. From the interviews, three thematic units were detected. Discussion: Self-care is required of any individual as they become capable, but for people diagnosed with SCA, the requirements become greater, considering that the risk of disease complications increases if proper care is not provided. Conclusion: Since childhood, individuals with SCA must be effectively guided to live with their condition, reducing the related risks. Health professionals must be attentive and prepared to understand the gaps in their patients knowledge, and interfere with correct counseling, generating greater adherence to self-care.
publishDate 2022
dc.date.none.fl_str_mv 2022-05-23
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/29934
10.33448/rsd-v11i7.29934
url https://rsdjournal.org/index.php/rsd/article/view/29934
identifier_str_mv 10.33448/rsd-v11i7.29934
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/29934/25859
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 11 No. 7; e27311729934
Research, Society and Development; Vol. 11 Núm. 7; e27311729934
Research, Society and Development; v. 11 n. 7; e27311729934
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
_version_ 1797052713322676224

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