Everyday marks: experience of the woman-mother and caregiver of children with special health needs
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2020 |
| Outros Autores: | , , , |
| Tipo de documento: | Artigo |
| Idioma: | por |
| Título da fonte: | Research, Society and Development |
| Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/9557 |
Resumo: | Objective: to understand the experience and daily life of women-mothers and caregivers of children with special health needs and the implications for their health. Methodology: qualitative research carried out with ten mothers of children with special health needs, through semi-structured interviews. Data processing took place with the aid of the IRAMUTEQ software. The data were organized into thematic categories with subsequent content analysis. Results: a textual corpus composed of 10 Initial Context Units or interviews was analyzed, in which 451 text segments or Elementary Context Unit and 345 analyzed segments were obtained, that is, 76.5% of the analyzed corpus. Mothers experience social isolation, overload of activities and physical exhaustion, resulting in the need for therapies and care to ensure their physical, psychosocial and emotional health. Final considerations: it became evident that being the mother of a child with special health needs represents a singularity with the object of care of this mother woman, also demonstrating a strong neglect in the health care of women-mothers in favor of their children. |
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Everyday marks: experience of the woman-mother and caregiver of children with special health needsMarcas cotidianas: experiencia de la mujer-madre y cuidadora de niños con necesidades especiales de saludMarcas do cotidiano: vivência da mulher-mãe e cuidadora de criança com necessidades especiais de saúdePessoas com deficiênciaCuidados de enfermagemCuidadoresServiços de assistência domiciliar. Personas con discapacidadCuidadoresCuidado de enfermeraServicios de atención domiciliaria.People with disabilitiesCaregiversNursing careHome care services.Objective: to understand the experience and daily life of women-mothers and caregivers of children with special health needs and the implications for their health. Methodology: qualitative research carried out with ten mothers of children with special health needs, through semi-structured interviews. Data processing took place with the aid of the IRAMUTEQ software. The data were organized into thematic categories with subsequent content analysis. Results: a textual corpus composed of 10 Initial Context Units or interviews was analyzed, in which 451 text segments or Elementary Context Unit and 345 analyzed segments were obtained, that is, 76.5% of the analyzed corpus. Mothers experience social isolation, overload of activities and physical exhaustion, resulting in the need for therapies and care to ensure their physical, psychosocial and emotional health. Final considerations: it became evident that being the mother of a child with special health needs represents a singularity with the object of care of this mother woman, also demonstrating a strong neglect in the health care of women-mothers in favor of their children.Objetivo: comprender la experiencia y la vida cotidiana de las mujeres, madres y cuidadores de niños con necesidades especiales de salud y las implicaciones para su salud. Metodología: investigación cualitativa realizada con diez madres de niños con necesidades especiales de salud, mediante entrevistas semiestructuradas. El procesamiento de datos se realizó con la ayuda del software IRAMUTEQ. Los datos se organizaron en categorías temáticas con posterior análisis de contenido. Resultados: se analizó un corpus textual compuesto por 10 Unidades de Contexto Inicial o entrevistas, en el cual se obtuvieron 451 segmentos de texto o Unidad de Contexto Elemental y 345 segmentos analizados, es decir, el 76,5% del corpus analizado. Las madres experimentan aislamiento social, sobrecarga de actividades y agotamiento físico, resultando en la necesidad de terapias y cuidados para asegurar su salud física, psicosocial y emocional. Consideraciones finales: Se hizo evidente que ser madre de un niño con necesidades especiales de salud representa una singularidad con el objeto de cuidado de esta madre mujer, demostrando también un fuerte descuido en la atención de la salud de las mujeres-madres a favor de sus hijos.Objetivo: compreender a vivência e o cotidiano da mulher-mãe e cuidadora de crianças com necessidades especiais de saúde e as implicações para a sua saúde. Metodologia: pesquisa qualitativa realizada com dez mães de crianças com necessidade especiais de saúde, através de entrevista semiestruturada. O tratamento dos dados aconteceu com o auxílio do software IRAMUTEQ. Os dados foram organizados em categorias temáticas com posterior analise de conteúdo. Resultados: analisou-se um corpus textual composto por 10 Unidades de Contexto Inicial ou entrevistas, em que se obteve 451 segmentos de texto ou Unidade de Contexto Elementar e 345 segmentos analisados, ou seja, 76,5% do corpus analisado. As mães experimentam o isolamento social, sobrecarga de atividades e desgaste físico, resultando na necessidade de terapias e cuidados para garantir sua saúde física, psicossocial e emocional. Considerações Finais: evidenciou-se que ser mãe de uma criança com necessidades especiais de saúde representa uma singularidade com o objeto do cuidado dessa mulher mãe, demonstrando também uma forte negligência no cuidado à saúde das mulheres-mães em prol dos seus filhos.Research, Society and Development2020-11-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/955710.33448/rsd-v9i11.9557Research, Society and Development; Vol. 9 No. 11; e649119557Research, Society and Development; Vol. 9 Núm. 11; e649119557Research, Society and Development; v. 9 n. 11; e6491195572525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/9557/8536Copyright (c) 2020 Géssica Nobre; Gutembergue Santos de Sousa; Maria Mônica Machado de Aguiar Lima; Yara Macambira Santana Lima; Maria Goreth Silva Ferreirahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessNobre, GéssicaSousa, Gutembergue Santos deLima, Maria Mônica Machado de AguiarLima, Yara Macambira Santana Ferreira, Maria Goreth Silva2020-12-10T23:37:57Zoai:ojs.pkp.sfu.ca:article/9557Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:31:48.433936Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
| dc.title.none.fl_str_mv |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs Marcas cotidianas: experiencia de la mujer-madre y cuidadora de niños con necesidades especiales de salud Marcas do cotidiano: vivência da mulher-mãe e cuidadora de criança com necessidades especiais de saúde |
| title |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| spellingShingle |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs Nobre, Géssica Pessoas com deficiência Cuidados de enfermagem Cuidadores Serviços de assistência domiciliar. Personas con discapacidad Cuidadores Cuidado de enfermera Servicios de atención domiciliaria. People with disabilities Caregivers Nursing care Home care services. |
| title_short |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| title_full |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| title_fullStr |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| title_full_unstemmed |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| title_sort |
Everyday marks: experience of the woman-mother and caregiver of children with special health needs |
| author |
Nobre, Géssica |
| author_facet |
Nobre, Géssica Sousa, Gutembergue Santos de Lima, Maria Mônica Machado de Aguiar Lima, Yara Macambira Santana Ferreira, Maria Goreth Silva |
| author_role |
author |
| author2 |
Sousa, Gutembergue Santos de Lima, Maria Mônica Machado de Aguiar Lima, Yara Macambira Santana Ferreira, Maria Goreth Silva |
| author2_role |
author author author author |
| dc.contributor.author.fl_str_mv |
Nobre, Géssica Sousa, Gutembergue Santos de Lima, Maria Mônica Machado de Aguiar Lima, Yara Macambira Santana Ferreira, Maria Goreth Silva |
| dc.subject.por.fl_str_mv |
Pessoas com deficiência Cuidados de enfermagem Cuidadores Serviços de assistência domiciliar. Personas con discapacidad Cuidadores Cuidado de enfermera Servicios de atención domiciliaria. People with disabilities Caregivers Nursing care Home care services. |
| topic |
Pessoas com deficiência Cuidados de enfermagem Cuidadores Serviços de assistência domiciliar. Personas con discapacidad Cuidadores Cuidado de enfermera Servicios de atención domiciliaria. People with disabilities Caregivers Nursing care Home care services. |
| description |
Objective: to understand the experience and daily life of women-mothers and caregivers of children with special health needs and the implications for their health. Methodology: qualitative research carried out with ten mothers of children with special health needs, through semi-structured interviews. Data processing took place with the aid of the IRAMUTEQ software. The data were organized into thematic categories with subsequent content analysis. Results: a textual corpus composed of 10 Initial Context Units or interviews was analyzed, in which 451 text segments or Elementary Context Unit and 345 analyzed segments were obtained, that is, 76.5% of the analyzed corpus. Mothers experience social isolation, overload of activities and physical exhaustion, resulting in the need for therapies and care to ensure their physical, psychosocial and emotional health. Final considerations: it became evident that being the mother of a child with special health needs represents a singularity with the object of care of this mother woman, also demonstrating a strong neglect in the health care of women-mothers in favor of their children. |
| publishDate |
2020 |
| dc.date.none.fl_str_mv |
2020-11-04 |
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info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
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article |
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publishedVersion |
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https://rsdjournal.org/index.php/rsd/article/view/9557 10.33448/rsd-v9i11.9557 |
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https://rsdjournal.org/index.php/rsd/article/view/9557 |
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10.33448/rsd-v9i11.9557 |
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por |
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por |
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https://rsdjournal.org/index.php/rsd/article/view/9557/8536 |
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https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
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https://creativecommons.org/licenses/by/4.0 |
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openAccess |
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application/pdf |
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Research, Society and Development |
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Research, Society and Development |
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Research, Society and Development; Vol. 9 No. 11; e649119557 Research, Society and Development; Vol. 9 Núm. 11; e649119557 Research, Society and Development; v. 9 n. 11; e649119557 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
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Research, Society and Development |
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Research, Society and Development |
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Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
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rsd.articles@gmail.com |
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1797052804340121600 |