Quality of life of mothers of children with congenital syndrome affected by Zika virus
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Institucional da UNESP |
Texto Completo: | http://dx.doi.org/10.1590/1984-0462/2021/39/2019231 http://hdl.handle.net/11449/208809 |
Resumo: | Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure. |
id |
UNSP_a69248ce9d70775f886af020a5f3d170 |
---|---|
oai_identifier_str |
oai:repositorio.unesp.br:11449/208809 |
network_acronym_str |
UNSP |
network_name_str |
Repositório Institucional da UNESP |
repository_id_str |
2946 |
spelling |
Quality of life of mothers of children with congenital syndrome affected by Zika virusQuality of lifeMicrocephalyZika virusObjective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.Univ Fed Maranhao, Sao Luis, MA, BrazilUniv Sao Paulo, Ribeirao Preto, SP, BrazilUniv Estadual Paulista, Presidente Prudente, SP, BrazilUniv Estadual Paulista, Presidente Prudente, SP, BrazilSoc Pediatria Sao PauloUniv Fed MaranhaoUniversidade de São Paulo (USP)Universidade Estadual Paulista (Unesp)Lobao de Araujo Costa, Paulo RogerioArruda Aragao, Francisca BrunaSerra, Jacira do NascimentoAndrade, Marcelo SousaReis, Andrea Dias [UNESP]Soares Brandao Nascimento, Maria do Desterro2021-06-25T11:21:09Z2021-06-25T11:21:09Z2021-01-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article6application/pdfhttp://dx.doi.org/10.1590/1984-0462/2021/39/2019231Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021.0103-0582http://hdl.handle.net/11449/20880910.1590/1984-0462/2021/39/2019231S0103-05822021000100416WOS:000569176100022S0103-05822021000100416.pdfWeb of Sciencereponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPporRevista Paulista De Pediatriainfo:eu-repo/semantics/openAccess2023-11-29T06:16:47Zoai:repositorio.unesp.br:11449/208809Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestopendoar:29462024-08-05T19:05:12.007399Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false |
dc.title.none.fl_str_mv |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
title |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
spellingShingle |
Quality of life of mothers of children with congenital syndrome affected by Zika virus Lobao de Araujo Costa, Paulo Rogerio Quality of life Microcephaly Zika virus |
title_short |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
title_full |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
title_fullStr |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
title_full_unstemmed |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
title_sort |
Quality of life of mothers of children with congenital syndrome affected by Zika virus |
author |
Lobao de Araujo Costa, Paulo Rogerio |
author_facet |
Lobao de Araujo Costa, Paulo Rogerio Arruda Aragao, Francisca Bruna Serra, Jacira do Nascimento Andrade, Marcelo Sousa Reis, Andrea Dias [UNESP] Soares Brandao Nascimento, Maria do Desterro |
author_role |
author |
author2 |
Arruda Aragao, Francisca Bruna Serra, Jacira do Nascimento Andrade, Marcelo Sousa Reis, Andrea Dias [UNESP] Soares Brandao Nascimento, Maria do Desterro |
author2_role |
author author author author author |
dc.contributor.none.fl_str_mv |
Univ Fed Maranhao Universidade de São Paulo (USP) Universidade Estadual Paulista (Unesp) |
dc.contributor.author.fl_str_mv |
Lobao de Araujo Costa, Paulo Rogerio Arruda Aragao, Francisca Bruna Serra, Jacira do Nascimento Andrade, Marcelo Sousa Reis, Andrea Dias [UNESP] Soares Brandao Nascimento, Maria do Desterro |
dc.subject.por.fl_str_mv |
Quality of life Microcephaly Zika virus |
topic |
Quality of life Microcephaly Zika virus |
description |
Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-06-25T11:21:09Z 2021-06-25T11:21:09Z 2021-01-01 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1590/1984-0462/2021/39/2019231 Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021. 0103-0582 http://hdl.handle.net/11449/208809 10.1590/1984-0462/2021/39/2019231 S0103-05822021000100416 WOS:000569176100022 S0103-05822021000100416.pdf |
url |
http://dx.doi.org/10.1590/1984-0462/2021/39/2019231 http://hdl.handle.net/11449/208809 |
identifier_str_mv |
Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021. 0103-0582 10.1590/1984-0462/2021/39/2019231 S0103-05822021000100416 WOS:000569176100022 S0103-05822021000100416.pdf |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
Revista Paulista De Pediatria |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
6 application/pdf |
dc.publisher.none.fl_str_mv |
Soc Pediatria Sao Paulo |
publisher.none.fl_str_mv |
Soc Pediatria Sao Paulo |
dc.source.none.fl_str_mv |
Web of Science reponame:Repositório Institucional da UNESP instname:Universidade Estadual Paulista (UNESP) instacron:UNESP |
instname_str |
Universidade Estadual Paulista (UNESP) |
instacron_str |
UNESP |
institution |
UNESP |
reponame_str |
Repositório Institucional da UNESP |
collection |
Repositório Institucional da UNESP |
repository.name.fl_str_mv |
Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP) |
repository.mail.fl_str_mv |
|
_version_ |
1808129017692291072 |