Quality of life of mothers of children with congenital syndrome affected by Zika virus

Detalhes bibliográficos
Autor(a) principal: Lobao de Araujo Costa, Paulo Rogerio
Data de Publicação: 2021
Outros Autores: Arruda Aragao, Francisca Bruna, Serra, Jacira do Nascimento, Andrade, Marcelo Sousa, Reis, Andrea Dias [UNESP], Soares Brandao Nascimento, Maria do Desterro
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Institucional da UNESP
Texto Completo: http://dx.doi.org/10.1590/1984-0462/2021/39/2019231
http://hdl.handle.net/11449/208809
Resumo: Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.
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spelling Quality of life of mothers of children with congenital syndrome affected by Zika virusQuality of lifeMicrocephalyZika virusObjective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.Univ Fed Maranhao, Sao Luis, MA, BrazilUniv Sao Paulo, Ribeirao Preto, SP, BrazilUniv Estadual Paulista, Presidente Prudente, SP, BrazilUniv Estadual Paulista, Presidente Prudente, SP, BrazilSoc Pediatria Sao PauloUniv Fed MaranhaoUniversidade de São Paulo (USP)Universidade Estadual Paulista (Unesp)Lobao de Araujo Costa, Paulo RogerioArruda Aragao, Francisca BrunaSerra, Jacira do NascimentoAndrade, Marcelo SousaReis, Andrea Dias [UNESP]Soares Brandao Nascimento, Maria do Desterro2021-06-25T11:21:09Z2021-06-25T11:21:09Z2021-01-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article6application/pdfhttp://dx.doi.org/10.1590/1984-0462/2021/39/2019231Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021.0103-0582http://hdl.handle.net/11449/20880910.1590/1984-0462/2021/39/2019231S0103-05822021000100416WOS:000569176100022S0103-05822021000100416.pdfWeb of Sciencereponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPporRevista Paulista De Pediatriainfo:eu-repo/semantics/openAccess2023-11-29T06:16:47Zoai:repositorio.unesp.br:11449/208809Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestopendoar:29462024-08-05T19:05:12.007399Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false
dc.title.none.fl_str_mv Quality of life of mothers of children with congenital syndrome affected by Zika virus
title Quality of life of mothers of children with congenital syndrome affected by Zika virus
spellingShingle Quality of life of mothers of children with congenital syndrome affected by Zika virus
Lobao de Araujo Costa, Paulo Rogerio
Quality of life
Microcephaly
Zika virus
title_short Quality of life of mothers of children with congenital syndrome affected by Zika virus
title_full Quality of life of mothers of children with congenital syndrome affected by Zika virus
title_fullStr Quality of life of mothers of children with congenital syndrome affected by Zika virus
title_full_unstemmed Quality of life of mothers of children with congenital syndrome affected by Zika virus
title_sort Quality of life of mothers of children with congenital syndrome affected by Zika virus
author Lobao de Araujo Costa, Paulo Rogerio
author_facet Lobao de Araujo Costa, Paulo Rogerio
Arruda Aragao, Francisca Bruna
Serra, Jacira do Nascimento
Andrade, Marcelo Sousa
Reis, Andrea Dias [UNESP]
Soares Brandao Nascimento, Maria do Desterro
author_role author
author2 Arruda Aragao, Francisca Bruna
Serra, Jacira do Nascimento
Andrade, Marcelo Sousa
Reis, Andrea Dias [UNESP]
Soares Brandao Nascimento, Maria do Desterro
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Univ Fed Maranhao
Universidade de São Paulo (USP)
Universidade Estadual Paulista (Unesp)
dc.contributor.author.fl_str_mv Lobao de Araujo Costa, Paulo Rogerio
Arruda Aragao, Francisca Bruna
Serra, Jacira do Nascimento
Andrade, Marcelo Sousa
Reis, Andrea Dias [UNESP]
Soares Brandao Nascimento, Maria do Desterro
dc.subject.por.fl_str_mv Quality of life
Microcephaly
Zika virus
topic Quality of life
Microcephaly
Zika virus
description Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough's 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children's care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.
publishDate 2021
dc.date.none.fl_str_mv 2021-06-25T11:21:09Z
2021-06-25T11:21:09Z
2021-01-01
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://dx.doi.org/10.1590/1984-0462/2021/39/2019231
Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021.
0103-0582
http://hdl.handle.net/11449/208809
10.1590/1984-0462/2021/39/2019231
S0103-05822021000100416
WOS:000569176100022
S0103-05822021000100416.pdf
url http://dx.doi.org/10.1590/1984-0462/2021/39/2019231
http://hdl.handle.net/11449/208809
identifier_str_mv Revista Paulista De Pediatria. Sao Paulo Sp: Soc Pediatria Sao Paulo, v. 39, 6 p., 2021.
0103-0582
10.1590/1984-0462/2021/39/2019231
S0103-05822021000100416
WOS:000569176100022
S0103-05822021000100416.pdf
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv Revista Paulista De Pediatria
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
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dc.publisher.none.fl_str_mv Soc Pediatria Sao Paulo
publisher.none.fl_str_mv Soc Pediatria Sao Paulo
dc.source.none.fl_str_mv Web of Science
reponame:Repositório Institucional da UNESP
instname:Universidade Estadual Paulista (UNESP)
instacron:UNESP
instname_str Universidade Estadual Paulista (UNESP)
instacron_str UNESP
institution UNESP
reponame_str Repositório Institucional da UNESP
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