Quality of life of mothers of children with congenital syndrome affected by zika virus

• Autor(a) principal: de Araújo Costa, Paulo Rogério Lobão
• Data de Publicação: 2020
• Outros Autores: Arruda Aragão, Francisca Bruna, do Nascimento Serra, Jacira, Andrade, Marcelo Sousa, Reis, Andréa Dias [UNESP], do Desterro Soares Brandão Nascimento, Maria
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Repositório Institucional da UNESP
• Texto Completo: http://dx.doi.org/10.1590/1984-0462/2020/38/2019231; http://hdl.handle.net/11449/221589
• topic: Microcephaly; Quality of life; Zika virus

Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough’s 2008 assumptions: Quality of Life and Health — quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems — characterized by care instability and fragmentation; Quality of Life and Free Time — lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives — lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children’s care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.