Síndrome de Down: desempenho funcional, influência do nível socioeconômico e qualidade de vida de seus cuidadores

• Autor(a) principal: Nascimento, Ludmila Brasileiro do
• Data de Publicação: 2011
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações do Mackenzie
• Texto Completo: http://dspace.mackenzie.br/handle/10899/22478
• topic: síndrome de down; habilidades funcionais; qualidade de vida; nível socioeconômico; down syndrome; functional skills; socioeconomic level; quality of life; CNPQ::CIENCIAS HUMANAS::EDUCACAO

Discovered in 1866 by John Langdon Down, Down syndrome (DS) is characterized by an error in the distribution of cell chromosome. People with this syndrome develop physical and mental characteristics specific. So have the later development of physical and cognitive functions, being taken to delay the acquisition of "motor milestones" basic. Some factors may jeopardize the motor performance of these children, among which we mention the low socioeconomic status. The DS affects not only the child but also his entire family, which is a key part of this development process, affecting mainly the quality of life of primary family caregiver.The aim of this study was to investigate the influence of socioeconomic status on the functional performance of children with Down syndrome and quality of life of their caregivers. It is a cross-sectional study with 20 family caregivers of children with DS, aged 2-5 years seen at the Centro Integrado de Educação EspeciaL- CIES in the city of Teresina-PI. We used the following instruments: Inventory Pediatric Evaluation of Disability (PEDI), Economic Classification Criteria of Brazil, Whoqol-short and an identification sheet with information about the child and caregiver.The results revealed that children with higher socioeconomic status (SS) had worse functional performance under the three areas of functional abilities (self-care, mobility and social function) compared with children from higher socioeconomic levels. The area had the lowest average was the social function of self-care and then, finally, mobility. Regarding quality of life, met with lower scores in the four areas of family caregivers of lower socioeconomic status, being the most affected environmental field. When comparing the quality of life and functional ability, there was a moderate correlation between self-care area with the environmental and weak linear correlation between the other areas of functional ability with the areas of quality of life.We conclude that the SS has an influence on the functional performance of children with Down syndrome and quality of life of their caregivers. Since the functional performance of children have a weak relationship to quality of life of caregivers. Thus, it is believed that the multidisciplinary treatment, educational lectures for parents and the implementation of appropriate public policies can diminish the negative influence of SS in the child's functional performance and quality of life of the caregiver.