The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Detalhes bibliográficos
Autor(a) principal: Rocha, Susy
Data de Publicação: 2016
Outros Autores: Gandolfi, Lenora, Santos, Josenaide Engracia dos
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Revista da Escola de Enfermagem da USP (Online)
Texto Completo: https://www.revistas.usp.br/reeusp/article/view/112692
Resumo: OBJECTIVE To comprehend the psychosocial effects that Coeliac Disease diagnosis entails. METHOD Qualitative study, achieved through semi-structured interviews, analyzed in accordance to the Association of ideas map Technique. A total 12 recently-diagnosed patients from the Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (Coeliac Disease Prevention, Support and Treatment Diagnose Centre) from the Hospital Universitário de Brasília (University Hospital of Brasilia) were enrolled for the study, between the years of 2013 and 2014. RESULTS The interviewed patients presented negative impacts in three categories: psychoaffective, family and social relationships, indicating issues with social readaptation once the treatment had started, as well as difficulty coping with a gluten free diet. CONCLUSION Coeliac Disease holds substantial impact on psychological functions, family and social relationships to diagnosed patients, requiring a clinical biopsychological assistance for better adherence to treatment and patients quality of life.
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spelling The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease Los impactos psicosociales generados por el diagnóstico y tratamiento de la enfermedad celiaca Os impactos psicossociais gerados pelo diagnóstico e tratamento da doença celíaca OBJECTIVE To comprehend the psychosocial effects that Coeliac Disease diagnosis entails. METHOD Qualitative study, achieved through semi-structured interviews, analyzed in accordance to the Association of ideas map Technique. A total 12 recently-diagnosed patients from the Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (Coeliac Disease Prevention, Support and Treatment Diagnose Centre) from the Hospital Universitário de Brasília (University Hospital of Brasilia) were enrolled for the study, between the years of 2013 and 2014. RESULTS The interviewed patients presented negative impacts in three categories: psychoaffective, family and social relationships, indicating issues with social readaptation once the treatment had started, as well as difficulty coping with a gluten free diet. CONCLUSION Coeliac Disease holds substantial impact on psychological functions, family and social relationships to diagnosed patients, requiring a clinical biopsychological assistance for better adherence to treatment and patients quality of life. OBJETIVO Conocer los impactos psicosociales generados por el diagnóstico y tratamiento de pacientes celiacos. MÉTODO Estudio cualitativo, llevado a cabo mediante entrevistas semiestructuradas, analizadas conforme a la técnica de los mapas de asociación de ideas. Fueron acompañados por el Centro de diagnóstico, tratamiento y apoyo al paciente con enfermedad celiaca (EC) del Hospital Universitario de Brasilia (HUB) 12 pacientes recién diagnosticados con EC, entre los años de 2013 y 2014. RESULTADOS Los pacientes entrevistados presentaron impactos negativos en tres categorías: psicoafectivas, relaciones familiares y relaciones sociales, señalando problemas de readaptación social después del inicio del tratamiento y dificultad en mantener la dieta libre de gluten (DLG). CONCLUSIÓN La enfermedad celiaca presenta impactos sustanciales en las funciones psicológicas, familiares y de relaciones sociales de los pacientes diagnosticados, requiriendo de una visión clínica biopsicosocial para mejor adherencia al tratamiento y calidad de vida del paciente. OBJETIVO Conhecer os impactos psicossociais gerados pelo diagnóstico e tratamento de pacientes celíacos. MÉTODO Estudo qualitativo, realizado através de entrevistas semiestruturadas, analisadas de acordo com a técnica dos mapas de associação de ideias. Foram acompanhados pelo Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (DC) do Hospital Universitário de Brasília (HUB) 12 pacientes recém-diagnosticados com DC, entre os anos de 2013 e 2014. RESULTADOS Os pacientes entrevistados apresentaram impactos negativos em três categorias: psicoafetivas, relações familiares e relações sociais, indicando problemas de readaptação social após o início do tratamento, e dificuldade em manter a dieta livre de glúten (DLG). CONCLUSÃO A doença celíaca apresenta impactos substanciais nas funções psicológicas, familiares e de relações sociais dos pacientes diagnosticados, exigindo uma visão clínica biopsicossocial para melhor aderência ao tratamento e qualidade de vida do paciente. Universidade de São Paulo. Escola de Enfermagem2016-02-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://www.revistas.usp.br/reeusp/article/view/11269210.1590/S0080-623420160000100009Revista da Escola de Enfermagem da USP; v. 50 n. 1 (2016); 65-70Revista da Escola de Enfermagem da USP; Vol. 50 No. 1 (2016); 65-70Revista da Escola de Enfermagem da USP; Vol. 50 Núm. 1 (2016); 65-701980-220X0080-6234reponame:Revista da Escola de Enfermagem da USP (Online)instname:Universidade de São Paulo (USP)instacron:USPengporhttps://www.revistas.usp.br/reeusp/article/view/112692/110609https://www.revistas.usp.br/reeusp/article/view/112692/110610http://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessRocha, SusyGandolfi, LenoraSantos, Josenaide Engracia dos2016-03-22T14:10:12Zoai:revistas.usp.br:article/112692Revistahttps://www.revistas.usp.br/reeuspPUBhttps://www.revistas.usp.br/reeusp/oai||nursingscholar@usp.br1980-220X0080-6234opendoar:2016-03-22T14:10:12Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
Los impactos psicosociales generados por el diagnóstico y tratamiento de la enfermedad celiaca
Os impactos psicossociais gerados pelo diagnóstico e tratamento da doença celíaca
title The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
spellingShingle The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
Rocha, Susy
title_short The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
title_full The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
title_fullStr The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
title_full_unstemmed The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
title_sort The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease
author Rocha, Susy
author_facet Rocha, Susy
Gandolfi, Lenora
Santos, Josenaide Engracia dos
author_role author
author2 Gandolfi, Lenora
Santos, Josenaide Engracia dos
author2_role author
author
dc.contributor.author.fl_str_mv Rocha, Susy
Gandolfi, Lenora
Santos, Josenaide Engracia dos
description OBJECTIVE To comprehend the psychosocial effects that Coeliac Disease diagnosis entails. METHOD Qualitative study, achieved through semi-structured interviews, analyzed in accordance to the Association of ideas map Technique. A total 12 recently-diagnosed patients from the Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (Coeliac Disease Prevention, Support and Treatment Diagnose Centre) from the Hospital Universitário de Brasília (University Hospital of Brasilia) were enrolled for the study, between the years of 2013 and 2014. RESULTS The interviewed patients presented negative impacts in three categories: psychoaffective, family and social relationships, indicating issues with social readaptation once the treatment had started, as well as difficulty coping with a gluten free diet. CONCLUSION Coeliac Disease holds substantial impact on psychological functions, family and social relationships to diagnosed patients, requiring a clinical biopsychological assistance for better adherence to treatment and patients quality of life.
publishDate 2016
dc.date.none.fl_str_mv 2016-02-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/reeusp/article/view/112692
10.1590/S0080-623420160000100009
url https://www.revistas.usp.br/reeusp/article/view/112692
identifier_str_mv 10.1590/S0080-623420160000100009
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/reeusp/article/view/112692/110609
https://www.revistas.usp.br/reeusp/article/view/112692/110610
dc.rights.driver.fl_str_mv http://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem
publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem
dc.source.none.fl_str_mv Revista da Escola de Enfermagem da USP; v. 50 n. 1 (2016); 65-70
Revista da Escola de Enfermagem da USP; Vol. 50 No. 1 (2016); 65-70
Revista da Escola de Enfermagem da USP; Vol. 50 Núm. 1 (2016); 65-70
1980-220X
0080-6234
reponame:Revista da Escola de Enfermagem da USP (Online)
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Revista da Escola de Enfermagem da USP (Online)
collection Revista da Escola de Enfermagem da USP (Online)
repository.name.fl_str_mv Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)
repository.mail.fl_str_mv ||nursingscholar@usp.br
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