The maternal experience in the everyday care of babies at risk

Detalhes bibliográficos
Autor(a) principal: Petrokas, Rejane Cristina
Data de Publicação: 2023
Outros Autores: Galheigo, Sandra Maria
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista de Terapia Ocupacional da Universidade de São Paulo
Texto Completo: https://www.revistas.usp.br/rto/article/view/218725
Resumo: This article proposes to present the maternal experience in the daily routine of caring for babies at-risk. Thematic oral histories were carried out with three mothers of babies attended at a rehabilitation service in the city of São Paulo, selected for convenience. The interviews were recorded, transcribed, textualized and transcreated and, after thematic analysis, two empirical categories were identified: (i) Going home: the first care between joy and fear; (ii) Care at home, the referrals and the personal construction of the network. The study concluded that the arrival of the baby in the post-discharge household was a moment of joy and fear and that the mothers assumed the role of almost exclusive caregiver, having to deal with the instability of the baby's health condition. In addition to routine care, mothers performed specialized procedures and outpatient follow-up of infants. The precarious supply of programs and policies to support post-discharge care required mothers to undertake the personal construction of a care network. Thus, the daily care of at-risk babies at home proved to be an exhausting experience for women, although perceived as pleasant and full of affection.
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spelling The maternal experience in the everyday care of babies at riskA experiência materna no cotidiano de cuidados dos bebês de risco no domicílioMãesRelações mãe-filhoCuidado do LactenteRecém-NascidoAtividades cotidianasTerapia ocupacionalMothersMother-Child RelationsInfant CareInfant, NewbornActivities of Daily LivingThis article proposes to present the maternal experience in the daily routine of caring for babies at-risk. Thematic oral histories were carried out with three mothers of babies attended at a rehabilitation service in the city of São Paulo, selected for convenience. The interviews were recorded, transcribed, textualized and transcreated and, after thematic analysis, two empirical categories were identified: (i) Going home: the first care between joy and fear; (ii) Care at home, the referrals and the personal construction of the network. The study concluded that the arrival of the baby in the post-discharge household was a moment of joy and fear and that the mothers assumed the role of almost exclusive caregiver, having to deal with the instability of the baby's health condition. In addition to routine care, mothers performed specialized procedures and outpatient follow-up of infants. The precarious supply of programs and policies to support post-discharge care required mothers to undertake the personal construction of a care network. Thus, the daily care of at-risk babies at home proved to be an exhausting experience for women, although perceived as pleasant and full of affection.Este artigo se propõe a apresentar a experiência materna no cotidiano domiciliar de cuidados dos bebês de risco. Foram realizadas histórias orais temáticas com três mães de bebês atendidos em serviço de reabilitação no município de São Paulo, selecionadas por conveniência. As entrevistas foram gravadas, transcritas, textualizadas e transcriadas e, após análise temática, foram identificadas duas categorias empíricas: (i) A ida para casa: os primeiros cuidados entre a alegria e o medo; (ii) O cuidado no domicílio, os encaminhamentos e a construção pessoal da rede. O estudo concluiu que a chegada do bebê ao domicílio no pós-alta hospitalar configurou-se como um momento de sentimentos de alegria e medo e que as mães assumiram o papel de cuidadora quase exclusiva, tendo que lidar inclusive com a instabilidade da condição de saúde do bebê. Além do cuidado rotineiro, as mães realizavam procedimentos especializados e acompanhamento ambulatorial dos bebês. A precária oferta de programas e políticas, que apoiassem os cuidados no pós-alta, demandou que as mães empreendessem a construção pessoal de uma rede de cuidados. Assim, o cotidiano de cuidados dos bebês de risco no domicílio se revelou como uma vivência exaustiva para as mulheres, embora percebida como prazerosa e repleta de afeto.Universidade de São Paulo. Faculdade de Medicina2023-12-22info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.revistas.usp.br/rto/article/view/21872510.11606/issn.2238-6149.v33i1-3e218725Revista de Terapia Ocupacional da Universidade de São Paulo; v. 33 n. 1-3 (2023); e218725Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 33 No. 1-3 (2023); e218725Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 33 Núm. 1-3 (2023); e2187252238-61491415-9104reponame:Revista de Terapia Ocupacional da Universidade de São Pauloinstname:Universidade de São Paulo (USP)instacron:USPporhttps://www.revistas.usp.br/rto/article/view/218725/202662Copyright (c) 2023 Revista de Terapia Ocupacional da Universidade de São Paulohttps://creativecommons.org/licenses/by-nc-sa/4.0info:eu-repo/semantics/openAccessPetrokas, Rejane Cristina Galheigo, Sandra Maria2024-04-16T21:16:57Zoai:revistas.usp.br:article/218725Revistahttp://www.revistas.usp.br/rtoPUBhttps://www.revistas.usp.br/rto/oai||revto@usp.br2238-61491415-9104opendoar:2024-04-16T21:16:57Revista de Terapia Ocupacional da Universidade de São Paulo - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv The maternal experience in the everyday care of babies at risk
A experiência materna no cotidiano de cuidados dos bebês de risco no domicílio
title The maternal experience in the everyday care of babies at risk
spellingShingle The maternal experience in the everyday care of babies at risk
Petrokas, Rejane Cristina
Mães
Relações mãe-filho
Cuidado do Lactente
Recém-Nascido
Atividades cotidianas
Terapia ocupacional
Mothers
Mother-Child Relations
Infant Care
Infant, Newborn
Activities of Daily Living
title_short The maternal experience in the everyday care of babies at risk
title_full The maternal experience in the everyday care of babies at risk
title_fullStr The maternal experience in the everyday care of babies at risk
title_full_unstemmed The maternal experience in the everyday care of babies at risk
title_sort The maternal experience in the everyday care of babies at risk
author Petrokas, Rejane Cristina
author_facet Petrokas, Rejane Cristina
Galheigo, Sandra Maria
author_role author
author2 Galheigo, Sandra Maria
author2_role author
dc.contributor.author.fl_str_mv Petrokas, Rejane Cristina
Galheigo, Sandra Maria
dc.subject.por.fl_str_mv Mães
Relações mãe-filho
Cuidado do Lactente
Recém-Nascido
Atividades cotidianas
Terapia ocupacional
Mothers
Mother-Child Relations
Infant Care
Infant, Newborn
Activities of Daily Living
topic Mães
Relações mãe-filho
Cuidado do Lactente
Recém-Nascido
Atividades cotidianas
Terapia ocupacional
Mothers
Mother-Child Relations
Infant Care
Infant, Newborn
Activities of Daily Living
description This article proposes to present the maternal experience in the daily routine of caring for babies at-risk. Thematic oral histories were carried out with three mothers of babies attended at a rehabilitation service in the city of São Paulo, selected for convenience. The interviews were recorded, transcribed, textualized and transcreated and, after thematic analysis, two empirical categories were identified: (i) Going home: the first care between joy and fear; (ii) Care at home, the referrals and the personal construction of the network. The study concluded that the arrival of the baby in the post-discharge household was a moment of joy and fear and that the mothers assumed the role of almost exclusive caregiver, having to deal with the instability of the baby's health condition. In addition to routine care, mothers performed specialized procedures and outpatient follow-up of infants. The precarious supply of programs and policies to support post-discharge care required mothers to undertake the personal construction of a care network. Thus, the daily care of at-risk babies at home proved to be an exhausting experience for women, although perceived as pleasant and full of affection.
publishDate 2023
dc.date.none.fl_str_mv 2023-12-22
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/rto/article/view/218725
10.11606/issn.2238-6149.v33i1-3e218725
url https://www.revistas.usp.br/rto/article/view/218725
identifier_str_mv 10.11606/issn.2238-6149.v33i1-3e218725
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/rto/article/view/218725/202662
dc.rights.driver.fl_str_mv Copyright (c) 2023 Revista de Terapia Ocupacional da Universidade de São Paulo
https://creativecommons.org/licenses/by-nc-sa/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Revista de Terapia Ocupacional da Universidade de São Paulo
https://creativecommons.org/licenses/by-nc-sa/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
dc.source.none.fl_str_mv Revista de Terapia Ocupacional da Universidade de São Paulo; v. 33 n. 1-3 (2023); e218725
Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 33 No. 1-3 (2023); e218725
Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 33 Núm. 1-3 (2023); e218725
2238-6149
1415-9104
reponame:Revista de Terapia Ocupacional da Universidade de São Paulo
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Revista de Terapia Ocupacional da Universidade de São Paulo
collection Revista de Terapia Ocupacional da Universidade de São Paulo
repository.name.fl_str_mv Revista de Terapia Ocupacional da Universidade de São Paulo - Universidade de São Paulo (USP)
repository.mail.fl_str_mv ||revto@usp.br
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