Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization

Detalhes bibliográficos
Autor(a) principal: Vasconcelos, Alessandra Alves de
Data de Publicação: 2020
Outros Autores: Dadalto, Luciana, Sarsur, Marcelo
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Revista de Direito Sanitário (Online)
Texto Completo: https://www.revistas.usp.br/rdisan/article/view/180132
Resumo: The Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families.
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spelling Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicializationEfetivação das políticas públicas em saúde protetivas às crianças com síndrome congênita do zika e o impacto na judicialização da saúdeDireito à SaúdeEquidadePolíticas PúblicasSíndrome Congênita do Vírus ZikaRight to HealthEquityPublic PoliciesZika Congenital SyndromeThe Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families.A síndrome congênita do zika fez surgir no Brasil um universo de crianças que necessitam de medicamentos, exames médicos e consultas especializadas, além de uma vigilância rigorosa de seu crescimento e desenvolvimento neuropsicomotor (DNPM). No entanto, nem todas conseguem receber o tratamento adequado e acabam buscando o Poder Judiciário para ter seus direitos efetivados. Nesse contexto, o presente artigo objetivou apresentar as principais demandas que chegam ao Poder Judiciário por parte das famílias que têm filhos com essa síndrome, bem como avaliar o alcance das políticas de saúde instituídas para garantir a integralidade da atenção e a proteção social dessas crianças e suas famílias. Verificou-se que, apesar de o direito à saúde ser assegurado constitucionalmente e imputar ao poder público, em todas as suas esferas, o dever de fornecer assistência médica e farmacêutica com equidade e universalidade, a alocação de recursos e a atenção à saúde dispensadas a essas crianças demonstraram-se insuficientes e precárias, gerando assim, uma transferência de atribuições do Poder Executivo para o Poder Judiciário, que se torna a última esperança das famílias.Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário2020-12-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresPeer-reviewed articleapplication/pdfapplication/pdfhttps://www.revistas.usp.br/rdisan/article/view/18013210.11606/issn.2316-9044.v20i3p74-91Revista de Direito Sanitário; v. 20 n. 3 (2020); 74-91Journal of Health Law; Vol. 20 No. 3 (2020); 74-91Revista de Direito Sanitário; Vol. 20 Núm. 3 (2020); 74-912316-9044reponame:Revista de Direito Sanitário (Online)instname:Universidade de São Paulo (USP)instacron:USPengporhttps://www.revistas.usp.br/rdisan/article/view/180132/169902https://www.revistas.usp.br/rdisan/article/view/180132/166767Copyright (c) 2020 Revista de Direito Sanitáriohttp://creativecommons.org/licenses/by-nc-sa/4.0info:eu-repo/semantics/openAccessVasconcelos, Alessandra Alves deDadalto, LucianaSarsur, Marcelo2021-06-15T18:29:44Zoai:revistas.usp.br:article/180132Revistahttps://www.revistas.usp.br/rdisanPUBhttp://www.revistas.usp.br/rdisan/oaisdallari@usp.br||revdisan@usp.br2316-90441516-4179opendoar:2021-06-15T18:29:44Revista de Direito Sanitário (Online) - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
Efetivação das políticas públicas em saúde protetivas às crianças com síndrome congênita do zika e o impacto na judicialização da saúde
title Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
spellingShingle Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
Vasconcelos, Alessandra Alves de
Direito à Saúde
Equidade
Políticas Públicas
Síndrome Congênita do Vírus Zika
Right to Health
Equity
Public Policies
Zika Congenital Syndrome
title_short Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
title_full Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
title_fullStr Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
title_full_unstemmed Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
title_sort Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
author Vasconcelos, Alessandra Alves de
author_facet Vasconcelos, Alessandra Alves de
Dadalto, Luciana
Sarsur, Marcelo
author_role author
author2 Dadalto, Luciana
Sarsur, Marcelo
author2_role author
author
dc.contributor.author.fl_str_mv Vasconcelos, Alessandra Alves de
Dadalto, Luciana
Sarsur, Marcelo
dc.subject.por.fl_str_mv Direito à Saúde
Equidade
Políticas Públicas
Síndrome Congênita do Vírus Zika
Right to Health
Equity
Public Policies
Zika Congenital Syndrome
topic Direito à Saúde
Equidade
Políticas Públicas
Síndrome Congênita do Vírus Zika
Right to Health
Equity
Public Policies
Zika Congenital Syndrome
description The Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families.
publishDate 2020
dc.date.none.fl_str_mv 2020-12-21
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Avaliado pelos pares
Peer-reviewed article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/rdisan/article/view/180132
10.11606/issn.2316-9044.v20i3p74-91
url https://www.revistas.usp.br/rdisan/article/view/180132
identifier_str_mv 10.11606/issn.2316-9044.v20i3p74-91
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/rdisan/article/view/180132/169902
https://www.revistas.usp.br/rdisan/article/view/180132/166767
dc.rights.driver.fl_str_mv Copyright (c) 2020 Revista de Direito Sanitário
http://creativecommons.org/licenses/by-nc-sa/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2020 Revista de Direito Sanitário
http://creativecommons.org/licenses/by-nc-sa/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário
publisher.none.fl_str_mv Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário
dc.source.none.fl_str_mv Revista de Direito Sanitário; v. 20 n. 3 (2020); 74-91
Journal of Health Law; Vol. 20 No. 3 (2020); 74-91
Revista de Direito Sanitário; Vol. 20 Núm. 3 (2020); 74-91
2316-9044
reponame:Revista de Direito Sanitário (Online)
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Revista de Direito Sanitário (Online)
collection Revista de Direito Sanitário (Online)
repository.name.fl_str_mv Revista de Direito Sanitário (Online) - Universidade de São Paulo (USP)
repository.mail.fl_str_mv sdallari@usp.br||revdisan@usp.br
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