Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng por |
Título da fonte: | Revista de Direito Sanitário (Online) |
Texto Completo: | https://www.revistas.usp.br/rdisan/article/view/180132 |
Resumo: | The Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families. |
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Revista de Direito Sanitário (Online) |
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Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicializationEfetivação das políticas públicas em saúde protetivas às crianças com síndrome congênita do zika e o impacto na judicialização da saúdeDireito à SaúdeEquidadePolíticas PúblicasSíndrome Congênita do Vírus ZikaRight to HealthEquityPublic PoliciesZika Congenital SyndromeThe Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families.A síndrome congênita do zika fez surgir no Brasil um universo de crianças que necessitam de medicamentos, exames médicos e consultas especializadas, além de uma vigilância rigorosa de seu crescimento e desenvolvimento neuropsicomotor (DNPM). No entanto, nem todas conseguem receber o tratamento adequado e acabam buscando o Poder Judiciário para ter seus direitos efetivados. Nesse contexto, o presente artigo objetivou apresentar as principais demandas que chegam ao Poder Judiciário por parte das famílias que têm filhos com essa síndrome, bem como avaliar o alcance das políticas de saúde instituídas para garantir a integralidade da atenção e a proteção social dessas crianças e suas famílias. Verificou-se que, apesar de o direito à saúde ser assegurado constitucionalmente e imputar ao poder público, em todas as suas esferas, o dever de fornecer assistência médica e farmacêutica com equidade e universalidade, a alocação de recursos e a atenção à saúde dispensadas a essas crianças demonstraram-se insuficientes e precárias, gerando assim, uma transferência de atribuições do Poder Executivo para o Poder Judiciário, que se torna a última esperança das famílias.Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário2020-12-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresPeer-reviewed articleapplication/pdfapplication/pdfhttps://www.revistas.usp.br/rdisan/article/view/18013210.11606/issn.2316-9044.v20i3p74-91Revista de Direito Sanitário; v. 20 n. 3 (2020); 74-91Journal of Health Law; Vol. 20 No. 3 (2020); 74-91Revista de Direito Sanitário; Vol. 20 Núm. 3 (2020); 74-912316-9044reponame:Revista de Direito Sanitário (Online)instname:Universidade de São Paulo (USP)instacron:USPengporhttps://www.revistas.usp.br/rdisan/article/view/180132/169902https://www.revistas.usp.br/rdisan/article/view/180132/166767Copyright (c) 2020 Revista de Direito Sanitáriohttp://creativecommons.org/licenses/by-nc-sa/4.0info:eu-repo/semantics/openAccessVasconcelos, Alessandra Alves deDadalto, LucianaSarsur, Marcelo2021-06-15T18:29:44Zoai:revistas.usp.br:article/180132Revistahttps://www.revistas.usp.br/rdisanPUBhttp://www.revistas.usp.br/rdisan/oaisdallari@usp.br||revdisan@usp.br2316-90441516-4179opendoar:2021-06-15T18:29:44Revista de Direito Sanitário (Online) - Universidade de São Paulo (USP)false |
dc.title.none.fl_str_mv |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization Efetivação das políticas públicas em saúde protetivas às crianças com síndrome congênita do zika e o impacto na judicialização da saúde |
title |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
spellingShingle |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization Vasconcelos, Alessandra Alves de Direito à Saúde Equidade Políticas Públicas Síndrome Congênita do Vírus Zika Right to Health Equity Public Policies Zika Congenital Syndrome |
title_short |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
title_full |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
title_fullStr |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
title_full_unstemmed |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
title_sort |
Enforcement of public health policies protecting children with Congenital Zika Syndrome and the impact on heath judicialization |
author |
Vasconcelos, Alessandra Alves de |
author_facet |
Vasconcelos, Alessandra Alves de Dadalto, Luciana Sarsur, Marcelo |
author_role |
author |
author2 |
Dadalto, Luciana Sarsur, Marcelo |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Vasconcelos, Alessandra Alves de Dadalto, Luciana Sarsur, Marcelo |
dc.subject.por.fl_str_mv |
Direito à Saúde Equidade Políticas Públicas Síndrome Congênita do Vírus Zika Right to Health Equity Public Policies Zika Congenital Syndrome |
topic |
Direito à Saúde Equidade Políticas Públicas Síndrome Congênita do Vírus Zika Right to Health Equity Public Policies Zika Congenital Syndrome |
description |
The Zika’s Congenital Syndrome has led to the emergence in Brazil of a universe of children who require medications, medical exams, specialized consultations, besides a rigorous monitoring of their growth and neuropsychomotor development. However, not all of them are able to receive adequate treatment and end up seeking the Judiciary to have their rights enforced. In this context, this article aimed to present the main demands that come to the Judiciary from families with children with this syndrome, as well as to evaluate the scope of health policies instituted to ensure the comprehensive care and social protection of these children and their families. It was found that although the right to health is guaranteed constitutionally and generates to the Public Power, in all its spheres, the duty to provide medical and pharmaceutical care with equity and universality, the allocation of resources and the health care provided to these children were shown to be insufficient and precarious, thus generating a transfer of powers from the Executive to the Judiciary, which becomes the last hope of these families. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12-21 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado pelos pares Peer-reviewed article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.revistas.usp.br/rdisan/article/view/180132 10.11606/issn.2316-9044.v20i3p74-91 |
url |
https://www.revistas.usp.br/rdisan/article/view/180132 |
identifier_str_mv |
10.11606/issn.2316-9044.v20i3p74-91 |
dc.language.iso.fl_str_mv |
eng por |
language |
eng por |
dc.relation.none.fl_str_mv |
https://www.revistas.usp.br/rdisan/article/view/180132/169902 https://www.revistas.usp.br/rdisan/article/view/180132/166767 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2020 Revista de Direito Sanitário http://creativecommons.org/licenses/by-nc-sa/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2020 Revista de Direito Sanitário http://creativecommons.org/licenses/by-nc-sa/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário |
publisher.none.fl_str_mv |
Universidade de São Paulo. Núcleo de Pesquisa em Direito Sanitário. Centro de Estudos e Pesquisas de Direito Sanitário |
dc.source.none.fl_str_mv |
Revista de Direito Sanitário; v. 20 n. 3 (2020); 74-91 Journal of Health Law; Vol. 20 No. 3 (2020); 74-91 Revista de Direito Sanitário; Vol. 20 Núm. 3 (2020); 74-91 2316-9044 reponame:Revista de Direito Sanitário (Online) instname:Universidade de São Paulo (USP) instacron:USP |
instname_str |
Universidade de São Paulo (USP) |
instacron_str |
USP |
institution |
USP |
reponame_str |
Revista de Direito Sanitário (Online) |
collection |
Revista de Direito Sanitário (Online) |
repository.name.fl_str_mv |
Revista de Direito Sanitário (Online) - Universidade de São Paulo (USP) |
repository.mail.fl_str_mv |
sdallari@usp.br||revdisan@usp.br |
_version_ |
1787713914555858944 |