The aging of families with members with intellectual disabilities

• Autor(a) principal: Takebayashi,Renata Balieiro
• Data de Publicação: 2019
• Outros Autores: Fernandes,Hugo, Cruz,Maria Goreti da Silva da, Perseguino,Marcelo Geovane, Marques,Selma Eloy Machado, Horta,Ana Lúcia de Moraes
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Revista Brasileira de Enfermagem (Online)
• Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672019000800184
• topic: Nursing; Family Nursing; Intellectual Disability; Aging; Aged

ABSTRACT Objective: to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability. Method: qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distributed into 10 families that had a member with intellectual disability and whose parents were elderly. The interviews were analyzed with content analysis technique. Results: the following analytical categories were evidenced: “living with intellectual disability”, “communication as a strategy for encounter”, “family isolation and the need for support” and “concerns about care in the future”. Conclusion: families in the late life cycle who had a member with intellectual disability are arranged in a structure that overloads a single caregiver (mother), has little support network, uses communication as an instrument for understanding themselves and the other, besides having difficulties in projecting the future.