Oncogenetics and Status of Cancer Patients: bioethical and legal foundations

Detalhes bibliográficos
Autor(a) principal: Meirelles Araújo, Ana Thereza
Data de Publicação: 2023
Outros Autores: Guindalini, Rodrigo Santa Cruz
Tipo de documento: Artigo
Idioma: por
spa
eng
Título da fonte: Revista Bioética (online)
Texto Completo: https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289
Resumo: This paper analyzes bioethical and legal foundations that contributed to establish the current normative discipline of access to oncogenetic resources from the perspective of the Statute of the Person with Cancer. It sought to evaluate the current state of legislation that upholds the rights of patients regarding oncological demands, considering the fundamental rights to life and health. The central premise was to clarify the status of oncology-related resources, which includes precision medicine and oncogenetics, to subsequently address limitations on their access within the Unified Health System or supplementary health. This is a theoretical research based on the survey of national and international references, specialized publications, and current Brazilian legislation.  
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spelling Oncogenetics and Status of Cancer Patients: bioethical and legal foundationsOncogenética y Estatuto de la Persona con Cáncer: fundamentos bioético-legalesOncogenética e Estatuto da Pessoa com Câncer: fundamentos bioético-jurídicosRight to health. Medical oncology. Bioethics.Derecho a la salud. Oncología médica. Bioética.Direito à saúde. Oncologia. Bioética.This paper analyzes bioethical and legal foundations that contributed to establish the current normative discipline of access to oncogenetic resources from the perspective of the Statute of the Person with Cancer. It sought to evaluate the current state of legislation that upholds the rights of patients regarding oncological demands, considering the fundamental rights to life and health. The central premise was to clarify the status of oncology-related resources, which includes precision medicine and oncogenetics, to subsequently address limitations on their access within the Unified Health System or supplementary health. This is a theoretical research based on the survey of national and international references, specialized publications, and current Brazilian legislation.  Este artículo tiene como objetivo analizar los fundamentos de la bioética y del derecho que contribuyeron a establecer la disciplina normativa vigente del acceso a los recursos oncogenéticos desde la perspectiva del Estatuto de la Persona con Cáncer. Su objetivo es evaluar el estado actual de la legislación que trata los derechos de los pacientes frente a las demandas oncológicas, considerando los derechos a la vida y a la salud como fundamentales. La premisa central fue esclarecer la situación de los recursos relacionados con la oncología, que incluye la medicina de precisión y la oncogenética, para posteriormente abordar las limitaciones en su acceso en el ámbito del Sistema Único de Salud o de la salud complementaria. El estudio de naturaleza teórica realizó una búsqueda de referencias nacionales y extranjeras de publicaciones especializadas, así como en la legislación brasileña vigente.Este artigo visa analisar fundamentos da bioética e do direito que contribuíram para estabelecer a disciplina normativa atual do acesso aos recursos da oncogenética sob a perspectiva do Estatuto da Pessoa com Câncer. Buscou-se avaliar o estado atual da legislação que apregoa os direitos dos pacientes quanto às demandas oncológicas, tendo em vista a fundamentalidade dos direitos à vida e à saúde. A premissa central foi esclarecer a situação dos recursos relacionados à oncologia, o que inclui a medicina de precisão e a oncogenética, para, posteriormente, abordar as limitações sobre o seu acesso, no âmbito do Sistema Único de Saúde ou da saúde suplementar. A pesquisa tem natureza teórica, consistindo em levantamento de referências nacionais e estrangeiras, em publicações especializadas, bem como na legislação brasileira vigente.  CFM2023-01-03info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado por ParesPesquisa teórica e qualitativaapplication/pdfapplication/pdfapplication/pdfhttps://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289Revista Bioética; Vol. 30 No. 4 (2022): Revista Bioética 30 (4)Revista Bioética; Vol. 30 Núm. 4 (2022): Revista Bioética 30 (4)Revista Bioética; v. 30 n. 4 (2022): Revista Bioética 30 (4)1983-80341983-8042reponame:Revista Bioética (online)instname:Conselho Federal de Medicina (CFM)instacron:CFMporspaenghttps://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3008https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3050https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3053Copyright (c) 2023 Revista Bioéticainfo:eu-repo/semantics/openAccessMeirelles Araújo, Ana TherezaGuindalini, Rodrigo Santa Cruz2023-01-19T15:59:26Zoai:ojs.emnuvens.com.br:article/3289Revistahttps://revistabioetica.cfm.org.br/revista_bioeticaPUBhttps://revistabioetica.cfm.org.br/revista_bioetica/oaibioetica@portalmedico.org.br||revistabioetica@gmail.com1983-80421983-8034opendoar:2023-01-19T15:59:26Revista Bioética (online) - Conselho Federal de Medicina (CFM)false
dc.title.none.fl_str_mv Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
Oncogenética y Estatuto de la Persona con Cáncer: fundamentos bioético-legales
Oncogenética e Estatuto da Pessoa com Câncer: fundamentos bioético-jurídicos
title Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
spellingShingle Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
Meirelles Araújo, Ana Thereza
Right to health. Medical oncology. Bioethics.
Derecho a la salud. Oncología médica. Bioética.
Direito à saúde. Oncologia. Bioética.
title_short Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
title_full Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
title_fullStr Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
title_full_unstemmed Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
title_sort Oncogenetics and Status of Cancer Patients: bioethical and legal foundations
author Meirelles Araújo, Ana Thereza
author_facet Meirelles Araújo, Ana Thereza
Guindalini, Rodrigo Santa Cruz
author_role author
author2 Guindalini, Rodrigo Santa Cruz
author2_role author
dc.contributor.author.fl_str_mv Meirelles Araújo, Ana Thereza
Guindalini, Rodrigo Santa Cruz
dc.subject.por.fl_str_mv Right to health. Medical oncology. Bioethics.
Derecho a la salud. Oncología médica. Bioética.
Direito à saúde. Oncologia. Bioética.
topic Right to health. Medical oncology. Bioethics.
Derecho a la salud. Oncología médica. Bioética.
Direito à saúde. Oncologia. Bioética.
description This paper analyzes bioethical and legal foundations that contributed to establish the current normative discipline of access to oncogenetic resources from the perspective of the Statute of the Person with Cancer. It sought to evaluate the current state of legislation that upholds the rights of patients regarding oncological demands, considering the fundamental rights to life and health. The central premise was to clarify the status of oncology-related resources, which includes precision medicine and oncogenetics, to subsequently address limitations on their access within the Unified Health System or supplementary health. This is a theoretical research based on the survey of national and international references, specialized publications, and current Brazilian legislation.  
publishDate 2023
dc.date.none.fl_str_mv 2023-01-03
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Avaliado por Pares
Pesquisa teórica e qualitativa
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dc.identifier.uri.fl_str_mv https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289
url https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289
dc.language.iso.fl_str_mv por
spa
eng
language por
spa
eng
dc.relation.none.fl_str_mv https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3008
https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3050
https://revistabioetica.cfm.org.br/revista_bioetica/article/view/3289/3053
dc.rights.driver.fl_str_mv Copyright (c) 2023 Revista Bioética
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Revista Bioética
eu_rights_str_mv openAccess
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application/pdf
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dc.publisher.none.fl_str_mv CFM
publisher.none.fl_str_mv CFM
dc.source.none.fl_str_mv Revista Bioética; Vol. 30 No. 4 (2022): Revista Bioética 30 (4)
Revista Bioética; Vol. 30 Núm. 4 (2022): Revista Bioética 30 (4)
Revista Bioética; v. 30 n. 4 (2022): Revista Bioética 30 (4)
1983-8034
1983-8042
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instname_str Conselho Federal de Medicina (CFM)
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reponame_str Revista Bioética (online)
collection Revista Bioética (online)
repository.name.fl_str_mv Revista Bioética (online) - Conselho Federal de Medicina (CFM)
repository.mail.fl_str_mv bioetica@portalmedico.org.br||revistabioetica@gmail.com
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