How do mothers feel? Life with children with congenital Zika syndrome

• Autor(a) principal: Freitas, Paula de Souza Silva
• Data de Publicação: 2020
• Outros Autores: Soares, Gabriella Barreto, Mocelin, Helaine Jacinta Salvador, Lamonato, Larissa Carolina Xavier Lacerda, Sales, Carolina Maia Martins, Linde-Arias, Ana Rosa, Bussinguer, Elda Coelho de Azevedo, Maciel, Ethel Leonor Noia
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Repositório da Faculdade de Direito de Vitória
• Texto Completo: http://191.252.194.60:8080/handle/fdv/900
• topic: Brazil; Children with disabilities; Congenital Zika syndrome; Microcephaly; Mother–child relationships; Public Health; Zika virus; CNPQ::CIENCIAS SOCIAIS APLICADAS::DIREITO

Objecve: To describe the repercussions, from the perspecves of caregiver mothers, of conrmed congenital Zika syndrome (CZS) in their ospring.Methods: A descripve- exploratory study with a qualitave approach was carried out in the state of Espírito Santo in southeastern Brazil, with 25 women who had a child diagnosed with CZS.Results: Emerging themes from the content analysis were grouped into two categories: (1) inequalies experienced by mothers, including social inequality, poverty, and gender inequality; (2) the impact of a child with CZS on mothering, including feelings at the me of diagnosis, maternal isolaon and mental health, experiences of sgma and prejudice, and exhausng ineraries searching for therapeuc care.Conclusion: The repercussions of CZS were a huge burden on already vulnerable women, and social inequalies and poverty were important markers in the mothers’ reports. Many of the families aected by CZS already lived in precarious social condions and these condions were exacerbated further. Robust public and social policies to support these mothers need eecve implementaon given that babies born with CZS need long- term care and support