Evolution of the completeness and consistency of the gastroschisis registry in the Brazilian Live Birth Information System, from 2005 to 2020

• Autor(a) principal: Tavares Regadas, Claudia
• Data de Publicação: 2023
• Outros Autores: Caminha Escosteguy, Claudia, Costa Fonseca, Sandra, Sobrino Pinheiro, Rejane, Medina Coeli, Claudia
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Cadernos de Saúde Pública
• Texto Completo: https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8218
• topic: Estatísticas Vitais; Sistemas de Informação em Saúde; Qualidade dos Dados; Gastrosquise; Malformações Congênitas; Estadísticas Vitales; Sistemas de Información en Salud; Calidad de los Datos; Gastrosquisis; Malformaciones Congénitas; Vital Statistics; Health Information Systems; Data Qualities; Gastroschisis; Fetal Malformations

This study aimed to evaluate the evolution of the completeness and consistency of the gastroschisis registry in the Brazilian Live Birth Information System (SINASC). It is a time-series study on the completeness of the variable “occurrence of congenital anomaly” and the consistency of gastroschisis diagnosis in SINASC, in biennia from 2005 to 2020, for federative units, region, and Brazil. The consistency was estimated by the ratio between deaths from gastroschisis registered in the Brazilian Mortality Information System (SIM) and the total number of cases recorded in SINASC. Temporal trend was analyzed by joinpoint regression. In the period, 46,574,995 live births and 10,024 cases of gastroschisis were recorded. A total of 5,632 infant deaths due to gastroschisis were identified. The percentage of incompleteness decreased from 6.52% to 1.87%, with an annual percentage variation (APV) of -14.5%, and completeness reached excellence (≤ 5% of incompleteness), except in the Central-West Region. Case/death ratios above 1 were found in the North and Northeast regions and in some federative units in the Central-West, but there was a decrease, approaching the mortality found in studies in the South and Southeast regions. Its reduction was more pronounced until 2009-2010 (APV = -10.7%) and smaller later (APV = -4.4%). The quality of the gastroschisis registry reflects regional differences in the overall quality of SINASC, constituting as a marker for malformations that require complex neonatal care.