Social networks about Autism Spectrum Disorder on Facebook as an interpersonal support: implications in the processes of health governance

• Autor(a) principal: Prychodco, Robson Celestino
• Data de Publicação: 2019
• Outros Autores: Bittencourt, Zelia Zilda Lourenço de Camargo
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: RECIIS (Online)
• Texto Completo: https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/1670
• topic: Social network; Clinical governance; Interpersonal relations; Autism spectrum disorder; Social support.; Red social; Gestión clínica; Relaciones interpersonales; Trastorno del espectro autista; Apoyo social.; Rede social; Governança clínica; Relações interpessoais; Transtorno do espectro autista; Apoio social.

The formation of Virtual Social Networks (RSVs) in communities as Facebook has become an important tool for searching for socialization and information. This article presents data on the sources of information used by those responsible for children with Autism Spectrum Disorder (ASD), and how they interfere in the perception of interpersonal support and health governance processes. In the quantitative study, 90 members from the 3 largest RSVs on ASD participated. For the data collection, a semi-structured questionnaire was used. Responses were quantified to facilitate visualization of the data. The results showed that participation in these networks is the main source of information for half of the participants, especially for the portion of the population with lower income; 70/90 volunteers reported feeling supported by RSV partners and 63/90 reported feeling helpless by society in general. A phenomenon that can be explained by the formation of social bonds marked by the reciprocity of lived situations.