Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar

Detalhes bibliográficos
Autor(a) principal: Femina, Luana Laís
Data de Publicação: 2007
Outros Autores: Soler, Ana Claudia Parra, Nardi, Susilene Maria Tonelli, Paschoal, Vânia Del´Arco
Tipo de documento: Artigo
Idioma: por
Título da fonte: Hansenologia Internationalis (Online)
Texto Completo: https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192
Resumo: Hansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. 
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spelling Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificarLepra para hanseníase: a visão do portador sobre a mudança de terminologiahanseníasepreconceitoterminologiaHansen´s diseasePrejudiceTerminologyHansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. A hanseníase, doença milenar, foi motivo de exclusão compulsória dos entrevistados ao convívio social. Atualmente sua cura é possível, a falta de informação existe e o preconceito ainda é um problema grave. Medidas foram tomadas na tentativa de diminuir o estigma, como a Lei nº 9.010/95, que oficializou a mudança no uso do termo lepra para hanseníase. Este trabalho objetivou investigar as mudanças sob o prisma das pessoas que têm ou tiveram hanseníase. Foi aplicado protocolo próprio contendo perguntas fechadas em 50 entrevistados. A análise estatística foi descritiva, com cálculos percentuais simples e cruzamento de variáveis. Os resultados revelaram que houve predomínio de casados (56%), aposentados (30%) e assalariados (20%); com ensino fundamental incompleto (46%). Dos 64% que conheciam outra terminologia para hanseníase, 93,8% citaram o termo lepra e 90% sabiam do preconceito histórico; 63% julgavam que a mudança do nome pode ter diminuído o preconceito e 76,7% achavam que as pessoas sabiam que a hanseníase era antiga lepra, tanto que ao comentar sobre a doença, a maioria (60%) logo referia o termo à lepra. O medo sob seus vários aspectos, atingiu 50% dos entrevistados. Salientamos a falta de informação em relação a formas de transmissão, instalação de deficiências e tratamento. O passado histórico ainda exerce influência apesar da mudança do nome, pacientes enfrentam preconceitos no meio social, pela associação com termo lepra. A dificuldade no entendimento dos conceitos pode ser uma das causas do estigma. Inferimos que a mudança do termo não foi capaz de eliminar preconceitos.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2007-06-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3519210.47878/hi.2007.v32.35192Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 32 No. 1 (2007); 37-48Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 32 n. 1 (2007); 37-481982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/35192/33660Femina, Luana LaísSoler, Ana Claudia ParraNardi, Susilene Maria TonelliPaschoal, Vânia Del´Arcoinfo:eu-repo/semantics/openAccess2021-05-19T21:26:13Zoai:ojs.periodicos.saude.sp.gov.br:article/35192Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2021-05-19T21:26:13Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false
dc.title.none.fl_str_mv Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
Lepra para hanseníase: a visão do portador sobre a mudança de terminologia
title Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
spellingShingle Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
Femina, Luana Laís
hanseníase
preconceito
terminologia
Hansen´s disease
Prejudice
Terminology
title_short Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
title_full Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
title_fullStr Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
title_full_unstemmed Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
title_sort Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
author Femina, Luana Laís
author_facet Femina, Luana Laís
Soler, Ana Claudia Parra
Nardi, Susilene Maria Tonelli
Paschoal, Vânia Del´Arco
author_role author
author2 Soler, Ana Claudia Parra
Nardi, Susilene Maria Tonelli
Paschoal, Vânia Del´Arco
author2_role author
author
author
dc.contributor.author.fl_str_mv Femina, Luana Laís
Soler, Ana Claudia Parra
Nardi, Susilene Maria Tonelli
Paschoal, Vânia Del´Arco
dc.subject.por.fl_str_mv hanseníase
preconceito
terminologia
Hansen´s disease
Prejudice
Terminology
topic hanseníase
preconceito
terminologia
Hansen´s disease
Prejudice
Terminology
description Hansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. 
publishDate 2007
dc.date.none.fl_str_mv 2007-06-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Avaliado pelos pares
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192
10.47878/hi.2007.v32.35192
url https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192
identifier_str_mv 10.47878/hi.2007.v32.35192
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192/33660
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo
publisher.none.fl_str_mv Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo
dc.source.none.fl_str_mv Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 32 No. 1 (2007); 37-48
Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 32 n. 1 (2007); 37-48
1982-5161
reponame:Hansenologia Internationalis (Online)
instname:Instituto Lauro de Souza Lima (ILSL)
instacron:ILSL
instname_str Instituto Lauro de Souza Lima (ILSL)
instacron_str ILSL
institution ILSL
reponame_str Hansenologia Internationalis (Online)
collection Hansenologia Internationalis (Online)
repository.name.fl_str_mv Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)
repository.mail.fl_str_mv hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br
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