Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar
Autor(a) principal: | |
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Data de Publicação: | 2007 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Hansenologia Internationalis (Online) |
Texto Completo: | https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192 |
Resumo: | Hansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. |
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Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificarLepra para hanseníase: a visão do portador sobre a mudança de terminologiahanseníasepreconceitoterminologiaHansen´s diseasePrejudiceTerminologyHansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. A hanseníase, doença milenar, foi motivo de exclusão compulsória dos entrevistados ao convívio social. Atualmente sua cura é possível, a falta de informação existe e o preconceito ainda é um problema grave. Medidas foram tomadas na tentativa de diminuir o estigma, como a Lei nº 9.010/95, que oficializou a mudança no uso do termo lepra para hanseníase. Este trabalho objetivou investigar as mudanças sob o prisma das pessoas que têm ou tiveram hanseníase. Foi aplicado protocolo próprio contendo perguntas fechadas em 50 entrevistados. A análise estatística foi descritiva, com cálculos percentuais simples e cruzamento de variáveis. Os resultados revelaram que houve predomínio de casados (56%), aposentados (30%) e assalariados (20%); com ensino fundamental incompleto (46%). Dos 64% que conheciam outra terminologia para hanseníase, 93,8% citaram o termo lepra e 90% sabiam do preconceito histórico; 63% julgavam que a mudança do nome pode ter diminuído o preconceito e 76,7% achavam que as pessoas sabiam que a hanseníase era antiga lepra, tanto que ao comentar sobre a doença, a maioria (60%) logo referia o termo à lepra. O medo sob seus vários aspectos, atingiu 50% dos entrevistados. Salientamos a falta de informação em relação a formas de transmissão, instalação de deficiências e tratamento. O passado histórico ainda exerce influência apesar da mudança do nome, pacientes enfrentam preconceitos no meio social, pela associação com termo lepra. A dificuldade no entendimento dos conceitos pode ser uma das causas do estigma. Inferimos que a mudança do termo não foi capaz de eliminar preconceitos.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2007-06-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3519210.47878/hi.2007.v32.35192Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 32 No. 1 (2007); 37-48Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 32 n. 1 (2007); 37-481982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/35192/33660Femina, Luana LaísSoler, Ana Claudia ParraNardi, Susilene Maria TonelliPaschoal, Vânia Del´Arcoinfo:eu-repo/semantics/openAccess2021-05-19T21:26:13Zoai:ojs.periodicos.saude.sp.gov.br:article/35192Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2021-05-19T21:26:13Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false |
dc.title.none.fl_str_mv |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar Lepra para hanseníase: a visão do portador sobre a mudança de terminologia |
title |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
spellingShingle |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar Femina, Luana Laís hanseníase preconceito terminologia Hansen´s disease Prejudice Terminology |
title_short |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
title_full |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
title_fullStr |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
title_full_unstemmed |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
title_sort |
Leprosy for Hansen´s Disease: the effect of this Terminology Change According to the Carriers modificar |
author |
Femina, Luana Laís |
author_facet |
Femina, Luana Laís Soler, Ana Claudia Parra Nardi, Susilene Maria Tonelli Paschoal, Vânia Del´Arco |
author_role |
author |
author2 |
Soler, Ana Claudia Parra Nardi, Susilene Maria Tonelli Paschoal, Vânia Del´Arco |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Femina, Luana Laís Soler, Ana Claudia Parra Nardi, Susilene Maria Tonelli Paschoal, Vânia Del´Arco |
dc.subject.por.fl_str_mv |
hanseníase preconceito terminologia Hansen´s disease Prejudice Terminology |
topic |
hanseníase preconceito terminologia Hansen´s disease Prejudice Terminology |
description |
Hansen´s disease, a very ancient disease, was the reason for patients´ compulsory exclusion into the social environment. Nowadays its cure is possible; there is lack of information and the prejudice is still a serious problem. Some measures were taken in the attempt of reducing the stigma, as the Law nº 9 010/95, which made official the change in the use of the term leprosy for Hansen´s disease. This study aimed at investigating the changesaccording to the people’s point of view who have or had Hansen´s disease. A particular protocol with closed questions was applied to 50 people. The statistical analysis was descriptive, with simple percentile calculations and crossed-variables. The results showed that there was married prevalence (56%), retired (30%) and salary earners (20%); with incomplete elementary education (46%). From the 64% that knew other name for Hansen´s disease, 93.8% mentioned the term leprosy and 90% knew about the historical prejudice; 63% claimed that the change of the name might have reduced the prejudice and 76.7% thought the people knew that leprosy´s disease was the old leprosy, as so much that when talking about the disease, most of them (60%) immediately referred the term to the leprosy. Fear under several aspects reached 50% of the interviewees. We pointed out the lack of information in relation to the transmission forms, disabilities onsets and treatment. The historical past still has influence in spite of the change of the term; patients face prejudices in the social environment due to the association with leprosy term. The difficulty in understanding the concepts can be one of the causes of the stigma. We could point out that the change of the term was not able to eliminate prejudice. |
publishDate |
2007 |
dc.date.none.fl_str_mv |
2007-06-30 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192 10.47878/hi.2007.v32.35192 |
url |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192 |
identifier_str_mv |
10.47878/hi.2007.v32.35192 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35192/33660 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
dc.source.none.fl_str_mv |
Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 32 No. 1 (2007); 37-48 Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 32 n. 1 (2007); 37-48 1982-5161 reponame:Hansenologia Internationalis (Online) instname:Instituto Lauro de Souza Lima (ILSL) instacron:ILSL |
instname_str |
Instituto Lauro de Souza Lima (ILSL) |
instacron_str |
ILSL |
institution |
ILSL |
reponame_str |
Hansenologia Internationalis (Online) |
collection |
Hansenologia Internationalis (Online) |
repository.name.fl_str_mv |
Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL) |
repository.mail.fl_str_mv |
hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br |
_version_ |
1796797578877075456 |