Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal

Detalhes bibliográficos
Autor(a) principal: Café, A
Data de Publicação: 2019
Outros Autores: Carvalho, M, Crato, M, Faria, M, Kjollerstrom, P, Oliveira, C, Pinto, PR, Salvado, R, Dos Santos, AA, Silva, C
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.17/3701
Resumo: Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.
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spelling Haemophilia A: Health and Economic Burden of a Rare Disease in PortugalAdolescentChildChild, PreschoolFemaleHealth Care CostsHemophilia AHumansInfantInfant, NewbornMalePortugalQuality of LifeQuality-Adjusted Life YearsRare DiseasesSurveys and QuestionnairesHDE HEM PEDHaemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.BMCRepositório do Centro Hospitalar Universitário de Lisboa Central, EPECafé, ACarvalho, MCrato, MFaria, MKjollerstrom, POliveira, CPinto, PRSalvado, RDos Santos, AASilva, C2021-05-27T07:19:52Z20192019-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.17/3701engOrphanet J Rare Dis . 2019 Sep 4;14(1):211.10.1186/s13023-019-1175-5info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-03-10T09:44:00Zoai:repositorio.chlc.min-saude.pt:10400.17/3701Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T17:21:00.644523Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
title Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
spellingShingle Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
Café, A
Adolescent
Child
Child, Preschool
Female
Health Care Costs
Hemophilia A
Humans
Infant
Infant, Newborn
Male
Portugal
Quality of Life
Quality-Adjusted Life Years
Rare Diseases
Surveys and Questionnaires
HDE HEM PED
title_short Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
title_full Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
title_fullStr Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
title_full_unstemmed Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
title_sort Haemophilia A: Health and Economic Burden of a Rare Disease in Portugal
author Café, A
author_facet Café, A
Carvalho, M
Crato, M
Faria, M
Kjollerstrom, P
Oliveira, C
Pinto, PR
Salvado, R
Dos Santos, AA
Silva, C
author_role author
author2 Carvalho, M
Crato, M
Faria, M
Kjollerstrom, P
Oliveira, C
Pinto, PR
Salvado, R
Dos Santos, AA
Silva, C
author2_role author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório do Centro Hospitalar Universitário de Lisboa Central, EPE
dc.contributor.author.fl_str_mv Café, A
Carvalho, M
Crato, M
Faria, M
Kjollerstrom, P
Oliveira, C
Pinto, PR
Salvado, R
Dos Santos, AA
Silva, C
dc.subject.por.fl_str_mv Adolescent
Child
Child, Preschool
Female
Health Care Costs
Hemophilia A
Humans
Infant
Infant, Newborn
Male
Portugal
Quality of Life
Quality-Adjusted Life Years
Rare Diseases
Surveys and Questionnaires
HDE HEM PED
topic Adolescent
Child
Child, Preschool
Female
Health Care Costs
Hemophilia A
Humans
Infant
Infant, Newborn
Male
Portugal
Quality of Life
Quality-Adjusted Life Years
Rare Diseases
Surveys and Questionnaires
HDE HEM PED
description Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.
publishDate 2019
dc.date.none.fl_str_mv 2019
2019-01-01T00:00:00Z
2021-05-27T07:19:52Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.17/3701
url http://hdl.handle.net/10400.17/3701
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Orphanet J Rare Dis . 2019 Sep 4;14(1):211.
10.1186/s13023-019-1175-5
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BMC
publisher.none.fl_str_mv BMC
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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