The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany
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Publication Date: | 2017 |
Other Authors: | , , , , , , , , , , , , , , , , , , , , , , , , |
Format: | Article |
Language: | eng |
Source: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Download full: | http://hdl.handle.net/10400.17/2901 |
Summary: | The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016. |
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The Second Team Haemophilia Education Meeting, 2016, Frankfurt, GermanyDelivery of Health CareDisease ManagementEuropeGermanyHealth FacilitiesHemophilia AHemophilia BHumansPatient Care TeamHDE HEM PEDThe first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.John Wiley and SonsRepositório do Centro Hospitalar Universitário de Lisboa Central, EPEBerntorp, EDargaud, YHart, DLobet, SMancuso, MEd'Oiron, RPerry, DPollard, Dvan den Berg, MBlatný, JChambost, HDoria, ASHolme, PAKaczmarek, RMantovani, LMcLaughlin, PNanayakkara, LPetrini, PSannié, TLaane, EMaia, RDettoraki, AFarrell, AHalimeh, SRaza, STaylor, S2018-02-15T12:28:49Z2017-012017-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.17/2901engEur J Haematol. 2017 Jan;98 Suppl 85:1-1510.1111/ejh.12828info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-03-10T09:40:13Zoai:repositorio.chlc.min-saude.pt:10400.17/2901Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T17:20:13.728513Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
title |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
spellingShingle |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany Berntorp, E Delivery of Health Care Disease Management Europe Germany Health Facilities Hemophilia A Hemophilia B Humans Patient Care Team HDE HEM PED |
title_short |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
title_full |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
title_fullStr |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
title_full_unstemmed |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
title_sort |
The Second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany |
author |
Berntorp, E |
author_facet |
Berntorp, E Dargaud, Y Hart, D Lobet, S Mancuso, ME d'Oiron, R Perry, D Pollard, D van den Berg, M Blatný, J Chambost, H Doria, AS Holme, PA Kaczmarek, R Mantovani, L McLaughlin, P Nanayakkara, L Petrini, P Sannié, T Laane, E Maia, R Dettoraki, A Farrell, A Halimeh, S Raza, S Taylor, S |
author_role |
author |
author2 |
Dargaud, Y Hart, D Lobet, S Mancuso, ME d'Oiron, R Perry, D Pollard, D van den Berg, M Blatný, J Chambost, H Doria, AS Holme, PA Kaczmarek, R Mantovani, L McLaughlin, P Nanayakkara, L Petrini, P Sannié, T Laane, E Maia, R Dettoraki, A Farrell, A Halimeh, S Raza, S Taylor, S |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório do Centro Hospitalar Universitário de Lisboa Central, EPE |
dc.contributor.author.fl_str_mv |
Berntorp, E Dargaud, Y Hart, D Lobet, S Mancuso, ME d'Oiron, R Perry, D Pollard, D van den Berg, M Blatný, J Chambost, H Doria, AS Holme, PA Kaczmarek, R Mantovani, L McLaughlin, P Nanayakkara, L Petrini, P Sannié, T Laane, E Maia, R Dettoraki, A Farrell, A Halimeh, S Raza, S Taylor, S |
dc.subject.por.fl_str_mv |
Delivery of Health Care Disease Management Europe Germany Health Facilities Hemophilia A Hemophilia B Humans Patient Care Team HDE HEM PED |
topic |
Delivery of Health Care Disease Management Europe Germany Health Facilities Hemophilia A Hemophilia B Humans Patient Care Team HDE HEM PED |
description |
The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016. |
publishDate |
2017 |
dc.date.none.fl_str_mv |
2017-01 2017-01-01T00:00:00Z 2018-02-15T12:28:49Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.17/2901 |
url |
http://hdl.handle.net/10400.17/2901 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Eur J Haematol. 2017 Jan;98 Suppl 85:1-15 10.1111/ejh.12828 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
John Wiley and Sons |
publisher.none.fl_str_mv |
John Wiley and Sons |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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