Haemophilia A: health and economic burden of a rare disease in Portugal

Detalhes bibliográficos
Autor(a) principal: Café, Andreia
Data de Publicação: 2019
Outros Autores: Carvalho, Manuela, Crato, Miguel, Faria, Miguel, Kjollerstrom, Paula, Oliveira, Cristina, Pinto, Patrícia Jesus Ribeiro, Salvado, Ramón, Dos Santos, Alexandra Aires, Silva, Catarina
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/1822/62406
Resumo: Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.
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spelling Haemophilia A: health and economic burden of a rare disease in PortugalHaemophilia ACost-of-illnessBurdenDisability-adjusted life yearPortugalHealth economicsCiências Médicas::Medicina BásicaScience & TechnologyHaemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.Financial support for the study was provided by Roche. Eurotrials, Scientific Consultants (Contract Research Organization) was appointed by Roche to conduct the independent expert panel and perform the economic analysis.BMCUniversidade do MinhoCafé, AndreiaCarvalho, ManuelaCrato, MiguelFaria, MiguelKjollerstrom, PaulaOliveira, CristinaPinto, Patrícia Jesus RibeiroSalvado, RamónDos Santos, Alexandra AiresSilva, Catarina2019-09-042019-09-04T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/1822/62406engCafé, A., Carvalho, M., Crato, M., et. al. (2019). Haemophilia A: health and economic burden of a rare disease in Portugal. Orphanet journal of rare diseases, 14(1), 1-11.1750-117210.1186/s13023-019-1175-531484564https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1175-5info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-21T11:53:52Zoai:repositorium.sdum.uminho.pt:1822/62406Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:43:20.264312Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Haemophilia A: health and economic burden of a rare disease in Portugal
title Haemophilia A: health and economic burden of a rare disease in Portugal
spellingShingle Haemophilia A: health and economic burden of a rare disease in Portugal
Café, Andreia
Haemophilia A
Cost-of-illness
Burden
Disability-adjusted life year
Portugal
Health economics
Ciências Médicas::Medicina Básica
Science & Technology
title_short Haemophilia A: health and economic burden of a rare disease in Portugal
title_full Haemophilia A: health and economic burden of a rare disease in Portugal
title_fullStr Haemophilia A: health and economic burden of a rare disease in Portugal
title_full_unstemmed Haemophilia A: health and economic burden of a rare disease in Portugal
title_sort Haemophilia A: health and economic burden of a rare disease in Portugal
author Café, Andreia
author_facet Café, Andreia
Carvalho, Manuela
Crato, Miguel
Faria, Miguel
Kjollerstrom, Paula
Oliveira, Cristina
Pinto, Patrícia Jesus Ribeiro
Salvado, Ramón
Dos Santos, Alexandra Aires
Silva, Catarina
author_role author
author2 Carvalho, Manuela
Crato, Miguel
Faria, Miguel
Kjollerstrom, Paula
Oliveira, Cristina
Pinto, Patrícia Jesus Ribeiro
Salvado, Ramón
Dos Santos, Alexandra Aires
Silva, Catarina
author2_role author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Universidade do Minho
dc.contributor.author.fl_str_mv Café, Andreia
Carvalho, Manuela
Crato, Miguel
Faria, Miguel
Kjollerstrom, Paula
Oliveira, Cristina
Pinto, Patrícia Jesus Ribeiro
Salvado, Ramón
Dos Santos, Alexandra Aires
Silva, Catarina
dc.subject.por.fl_str_mv Haemophilia A
Cost-of-illness
Burden
Disability-adjusted life year
Portugal
Health economics
Ciências Médicas::Medicina Básica
Science & Technology
topic Haemophilia A
Cost-of-illness
Burden
Disability-adjusted life year
Portugal
Health economics
Ciências Médicas::Medicina Básica
Science & Technology
description Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.
publishDate 2019
dc.date.none.fl_str_mv 2019-09-04
2019-09-04T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/1822/62406
url http://hdl.handle.net/1822/62406
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Café, A., Carvalho, M., Crato, M., et. al. (2019). Haemophilia A: health and economic burden of a rare disease in Portugal. Orphanet journal of rare diseases, 14(1), 1-11.
1750-1172
10.1186/s13023-019-1175-5
31484564
https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1175-5
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BMC
publisher.none.fl_str_mv BMC
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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