Haemophilia A: health and economic burden of a rare disease in Portugal
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/1822/62406 |
Resumo: | Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal. |
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Haemophilia A: health and economic burden of a rare disease in PortugalHaemophilia ACost-of-illnessBurdenDisability-adjusted life yearPortugalHealth economicsCiências Médicas::Medicina BásicaScience & TechnologyHaemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.Financial support for the study was provided by Roche. Eurotrials, Scientific Consultants (Contract Research Organization) was appointed by Roche to conduct the independent expert panel and perform the economic analysis.BMCUniversidade do MinhoCafé, AndreiaCarvalho, ManuelaCrato, MiguelFaria, MiguelKjollerstrom, PaulaOliveira, CristinaPinto, Patrícia Jesus RibeiroSalvado, RamónDos Santos, Alexandra AiresSilva, Catarina2019-09-042019-09-04T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/1822/62406engCafé, A., Carvalho, M., Crato, M., et. al. (2019). Haemophilia A: health and economic burden of a rare disease in Portugal. Orphanet journal of rare diseases, 14(1), 1-11.1750-117210.1186/s13023-019-1175-531484564https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1175-5info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-21T11:53:52Zoai:repositorium.sdum.uminho.pt:1822/62406Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:43:20.264312Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Haemophilia A: health and economic burden of a rare disease in Portugal |
title |
Haemophilia A: health and economic burden of a rare disease in Portugal |
spellingShingle |
Haemophilia A: health and economic burden of a rare disease in Portugal Café, Andreia Haemophilia A Cost-of-illness Burden Disability-adjusted life year Portugal Health economics Ciências Médicas::Medicina Básica Science & Technology |
title_short |
Haemophilia A: health and economic burden of a rare disease in Portugal |
title_full |
Haemophilia A: health and economic burden of a rare disease in Portugal |
title_fullStr |
Haemophilia A: health and economic burden of a rare disease in Portugal |
title_full_unstemmed |
Haemophilia A: health and economic burden of a rare disease in Portugal |
title_sort |
Haemophilia A: health and economic burden of a rare disease in Portugal |
author |
Café, Andreia |
author_facet |
Café, Andreia Carvalho, Manuela Crato, Miguel Faria, Miguel Kjollerstrom, Paula Oliveira, Cristina Pinto, Patrícia Jesus Ribeiro Salvado, Ramón Dos Santos, Alexandra Aires Silva, Catarina |
author_role |
author |
author2 |
Carvalho, Manuela Crato, Miguel Faria, Miguel Kjollerstrom, Paula Oliveira, Cristina Pinto, Patrícia Jesus Ribeiro Salvado, Ramón Dos Santos, Alexandra Aires Silva, Catarina |
author2_role |
author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Universidade do Minho |
dc.contributor.author.fl_str_mv |
Café, Andreia Carvalho, Manuela Crato, Miguel Faria, Miguel Kjollerstrom, Paula Oliveira, Cristina Pinto, Patrícia Jesus Ribeiro Salvado, Ramón Dos Santos, Alexandra Aires Silva, Catarina |
dc.subject.por.fl_str_mv |
Haemophilia A Cost-of-illness Burden Disability-adjusted life year Portugal Health economics Ciências Médicas::Medicina Básica Science & Technology |
topic |
Haemophilia A Cost-of-illness Burden Disability-adjusted life year Portugal Health economics Ciências Médicas::Medicina Básica Science & Technology |
description |
Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-09-04 2019-09-04T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/1822/62406 |
url |
http://hdl.handle.net/1822/62406 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Café, A., Carvalho, M., Crato, M., et. al. (2019). Haemophilia A: health and economic burden of a rare disease in Portugal. Orphanet journal of rare diseases, 14(1), 1-11. 1750-1172 10.1186/s13023-019-1175-5 31484564 https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1175-5 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
BMC |
publisher.none.fl_str_mv |
BMC |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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