Social support network and quality of life in multiple sclerosis patients

Detalhes bibliográficos
Autor(a) principal: Costa, David Castro
Data de Publicação: 2017
Outros Autores: Sá, Maria José, Calheiros, José
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10284/8985
Resumo: To analyse the relationship between the social support network (SSN) and health related quality of life (HRQOL) in multiple sclerosis (MS) patients. Methods: The sample comprised 150 consecutive MS patients attending our MS clinic. To assess the socio-demographic data, a specifically designed questionnaire was applied. The HRQOL dimensions were measured with the Short-Form Health Survey Questionnaire-SF36 and the SSN with the Medical Outcomes Study Social Support Survey. Spearman’s correlation was used to compare the magnitude of the relationship between the SSN and HRQOL. Results: The mean patient age was 41.7 years (± 10.4; range: 18–70 yr); the mean Expanded Disability Status Score was 2.5 (±2.4; range: 0–9). There was a statistically significant correlation between the structure of the SSN and the HRQOL. Conclusion: The composition of the SSN, social group membership and participation in voluntary work have an important role in the HRQOL of patients with MS.
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spelling Social support network and quality of life in multiple sclerosis patientsMultiple sclerosisSocial networkingQuality of lifeEsclerose múltiplaRede socialQualidade de vidaTo analyse the relationship between the social support network (SSN) and health related quality of life (HRQOL) in multiple sclerosis (MS) patients. Methods: The sample comprised 150 consecutive MS patients attending our MS clinic. To assess the socio-demographic data, a specifically designed questionnaire was applied. The HRQOL dimensions were measured with the Short-Form Health Survey Questionnaire-SF36 and the SSN with the Medical Outcomes Study Social Support Survey. Spearman’s correlation was used to compare the magnitude of the relationship between the SSN and HRQOL. Results: The mean patient age was 41.7 years (± 10.4; range: 18–70 yr); the mean Expanded Disability Status Score was 2.5 (±2.4; range: 0–9). There was a statistically significant correlation between the structure of the SSN and the HRQOL. Conclusion: The composition of the SSN, social group membership and participation in voluntary work have an important role in the HRQOL of patients with MS.Objetivo: Analisar a relação entre a rede de apoio social (RAS) e a qualidade de vida relacionada com a saúde (QVRS) em pacientes com esclerose múltipla (EM). Métodos: Foram avaliados consecutivamente 150 pacientes na consulta de esclerose múltipla. As dimensões da QVRS foram medidas com Short-Form Health Survey Questionnaire-SF36 e a RAS com o Medical Outcomes Study Social Support Survey. A correlação de Spearman foi utilizada para comparar a magnitude da relação entre a RAS e a QVRS. Resultados: A idade média dos pacientes foi 41,7 anos (± 10,4; intervalo: 18–70 anos); a média da EDSS foi 2,5 (± 2,4; intervalo: 0–9). Foi encontrada uma correlação estatisticamente significativa entre a estrutura da RAS e a QVRS. Conclusão: A composição da RAS, a pertença a um grupo social e a participação em trabalho voluntário têm um papel importante na QVRS dos pacientes com MS.Repositório Institucional da Universidade Fernando PessoaCosta, David CastroSá, Maria JoséCalheiros, José2020-09-18T16:35:15Z2020-03-14T21:33:08Z2017-05-01T00:00:00Z2017-05-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10284/8985eng0004-282Xcv-prod-109422410.1590/0004-282x20170036metadata only accessinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2022-09-06T02:08:03Zoai:bdigital.ufp.pt:10284/8985Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:45:33.799380Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Social support network and quality of life in multiple sclerosis patients
title Social support network and quality of life in multiple sclerosis patients
spellingShingle Social support network and quality of life in multiple sclerosis patients
Costa, David Castro
Multiple sclerosis
Social networking
Quality of life
Esclerose múltipla
Rede social
Qualidade de vida
title_short Social support network and quality of life in multiple sclerosis patients
title_full Social support network and quality of life in multiple sclerosis patients
title_fullStr Social support network and quality of life in multiple sclerosis patients
title_full_unstemmed Social support network and quality of life in multiple sclerosis patients
title_sort Social support network and quality of life in multiple sclerosis patients
author Costa, David Castro
author_facet Costa, David Castro
Sá, Maria José
Calheiros, José
author_role author
author2 Sá, Maria José
Calheiros, José
author2_role author
author
dc.contributor.none.fl_str_mv Repositório Institucional da Universidade Fernando Pessoa
dc.contributor.author.fl_str_mv Costa, David Castro
Sá, Maria José
Calheiros, José
dc.subject.por.fl_str_mv Multiple sclerosis
Social networking
Quality of life
Esclerose múltipla
Rede social
Qualidade de vida
topic Multiple sclerosis
Social networking
Quality of life
Esclerose múltipla
Rede social
Qualidade de vida
description To analyse the relationship between the social support network (SSN) and health related quality of life (HRQOL) in multiple sclerosis (MS) patients. Methods: The sample comprised 150 consecutive MS patients attending our MS clinic. To assess the socio-demographic data, a specifically designed questionnaire was applied. The HRQOL dimensions were measured with the Short-Form Health Survey Questionnaire-SF36 and the SSN with the Medical Outcomes Study Social Support Survey. Spearman’s correlation was used to compare the magnitude of the relationship between the SSN and HRQOL. Results: The mean patient age was 41.7 years (± 10.4; range: 18–70 yr); the mean Expanded Disability Status Score was 2.5 (±2.4; range: 0–9). There was a statistically significant correlation between the structure of the SSN and the HRQOL. Conclusion: The composition of the SSN, social group membership and participation in voluntary work have an important role in the HRQOL of patients with MS.
publishDate 2017
dc.date.none.fl_str_mv 2017-05-01T00:00:00Z
2017-05-01T00:00:00Z
2020-09-18T16:35:15Z
2020-03-14T21:33:08Z
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cv-prod-1094224
10.1590/0004-282x20170036
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