The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10316/45411 https://doi.org/10.3109/02770903.2014.885042 |
Resumo: | Introduction. The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. Objective: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reliability and construct validity. Method. The sample included 140 children/adolescents aged 8-18 years, who were diagnosed with asthma, and one of their parents. Both family members assessed HrQoL at the generic (KIDSCREEN-10), chronic-generic (DISABKIDS-12) and asthma-specific (DISABKIDS-AsM) levels. Asthma severity was classified by physicians using Global Initiative for Asthma (GINA) guidelines. Results. Confirmatory factor analysis attested the factorial validity of the correlated two-factor model of the DISABKIDS-AsM, but the low average variance extracted by each factor (Impact and Worry) suggested that a one-factor structure would better fit the Portuguese data. The one-factor model had an acceptable fit (χ2/df = 1.97; comparative fit index = 0.94; root mean square error of approximation = 0.08) and was invariant between age groups (children vs. adolescents) and informants (patient-reports vs. parent-reports). The resulting global index of asthma-specific HrQoL presented good reliability and convergent validity with the generic and chronic-generic measures. The DISABKIDS instruments also detected significant differences in HrQoL regarding asthma severity groups. Conclusion. The DISABKIDS-AsM may be regarded as a specific one-dimensional questionnaire, which, besides suiting pediatric patients in different developmental stages and enabling reliable proxy-reports, is sensitive to asthma clinical characteristics and is cross-culturally comparable, thus representing a valuable tool for assessing asthma-specific HrQoL as a primary health outcome in clinical practice and research contexts. |
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The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescentsAsthma-specific assessmentChildren and adolescentsDISABKIDS questionnairesHealth-related quality of lifePatient-reported and parent-reported outcomesPsychometricsIntroduction. The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. Objective: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reliability and construct validity. Method. The sample included 140 children/adolescents aged 8-18 years, who were diagnosed with asthma, and one of their parents. Both family members assessed HrQoL at the generic (KIDSCREEN-10), chronic-generic (DISABKIDS-12) and asthma-specific (DISABKIDS-AsM) levels. Asthma severity was classified by physicians using Global Initiative for Asthma (GINA) guidelines. Results. Confirmatory factor analysis attested the factorial validity of the correlated two-factor model of the DISABKIDS-AsM, but the low average variance extracted by each factor (Impact and Worry) suggested that a one-factor structure would better fit the Portuguese data. The one-factor model had an acceptable fit (χ2/df = 1.97; comparative fit index = 0.94; root mean square error of approximation = 0.08) and was invariant between age groups (children vs. adolescents) and informants (patient-reports vs. parent-reports). The resulting global index of asthma-specific HrQoL presented good reliability and convergent validity with the generic and chronic-generic measures. The DISABKIDS instruments also detected significant differences in HrQoL regarding asthma severity groups. Conclusion. The DISABKIDS-AsM may be regarded as a specific one-dimensional questionnaire, which, besides suiting pediatric patients in different developmental stages and enabling reliable proxy-reports, is sensitive to asthma clinical characteristics and is cross-culturally comparable, thus representing a valuable tool for assessing asthma-specific HrQoL as a primary health outcome in clinical practice and research contexts.This study was supported by the R&D Unit Institute of Cognitive Psychology, Vocational and Social Development of the University of Coimbra (PEst-OE/PSI/UI0192/2011) and by the Portuguese Foundation for Science and Technology (PhD Grant SFRH/BD/69885/2010).2014info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/45411http://hdl.handle.net/10316/45411https://doi.org/10.3109/02770903.2014.885042engSilva, N., Carona, C., Crespo, C., Bullinger, M., & Canavarro, M. C. (2014). The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents. Journal of Asthma, 51(6), 645-651. doi:10.3109/02770903.2014.885042http://www.tandfonline.com/doi/abs/10.3109/02770903.2014.885042?journalCode=ijas20Silva, NeuzaCarona, CarlosCrespo, CarlaBullinger, MonikaCanavarro, Maria Cristinainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2021-06-29T10:03:39Zoai:estudogeral.uc.pt:10316/45411Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:48:31.121862Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
title |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
spellingShingle |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents Silva, Neuza Asthma-specific assessment Children and adolescents DISABKIDS questionnaires Health-related quality of life Patient-reported and parent-reported outcomes Psychometrics |
title_short |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
title_full |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
title_fullStr |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
title_full_unstemmed |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
title_sort |
The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents |
author |
Silva, Neuza |
author_facet |
Silva, Neuza Carona, Carlos Crespo, Carla Bullinger, Monika Canavarro, Maria Cristina |
author_role |
author |
author2 |
Carona, Carlos Crespo, Carla Bullinger, Monika Canavarro, Maria Cristina |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Silva, Neuza Carona, Carlos Crespo, Carla Bullinger, Monika Canavarro, Maria Cristina |
dc.subject.por.fl_str_mv |
Asthma-specific assessment Children and adolescents DISABKIDS questionnaires Health-related quality of life Patient-reported and parent-reported outcomes Psychometrics |
topic |
Asthma-specific assessment Children and adolescents DISABKIDS questionnaires Health-related quality of life Patient-reported and parent-reported outcomes Psychometrics |
description |
Introduction. The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. Objective: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reliability and construct validity. Method. The sample included 140 children/adolescents aged 8-18 years, who were diagnosed with asthma, and one of their parents. Both family members assessed HrQoL at the generic (KIDSCREEN-10), chronic-generic (DISABKIDS-12) and asthma-specific (DISABKIDS-AsM) levels. Asthma severity was classified by physicians using Global Initiative for Asthma (GINA) guidelines. Results. Confirmatory factor analysis attested the factorial validity of the correlated two-factor model of the DISABKIDS-AsM, but the low average variance extracted by each factor (Impact and Worry) suggested that a one-factor structure would better fit the Portuguese data. The one-factor model had an acceptable fit (χ2/df = 1.97; comparative fit index = 0.94; root mean square error of approximation = 0.08) and was invariant between age groups (children vs. adolescents) and informants (patient-reports vs. parent-reports). The resulting global index of asthma-specific HrQoL presented good reliability and convergent validity with the generic and chronic-generic measures. The DISABKIDS instruments also detected significant differences in HrQoL regarding asthma severity groups. Conclusion. The DISABKIDS-AsM may be regarded as a specific one-dimensional questionnaire, which, besides suiting pediatric patients in different developmental stages and enabling reliable proxy-reports, is sensitive to asthma clinical characteristics and is cross-culturally comparable, thus representing a valuable tool for assessing asthma-specific HrQoL as a primary health outcome in clinical practice and research contexts. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10316/45411 http://hdl.handle.net/10316/45411 https://doi.org/10.3109/02770903.2014.885042 |
url |
http://hdl.handle.net/10316/45411 https://doi.org/10.3109/02770903.2014.885042 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Silva, N., Carona, C., Crespo, C., Bullinger, M., & Canavarro, M. C. (2014). The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents. Journal of Asthma, 51(6), 645-651. doi:10.3109/02770903.2014.885042 http://www.tandfonline.com/doi/abs/10.3109/02770903.2014.885042?journalCode=ijas20 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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