Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba

Detalhes bibliográficos
Autor(a) principal: Araujo, Alexandre Neiva de
Data de Publicação: 2023
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca Digital de Teses e Dissertações da UEFS
Texto Completo: http://tede2.uefs.br:8080/handle/tede/1642
Resumo: Cancer, in addition to being a chronic disease that threatens life, is a disease that symbolizes suffering. Thus, as every disease generates instability in family dynamics, cancer, in turn, generates doubts and uncertainties regarding its discovery, treatment and control, since it is a disease with a poor prognosis, especially when related to the child, which implies a better understanding of the impact of the disease. When the person who falls ill is a child, all these emotional reactions can be more intense for the little patient (Castillo; Chesla, 2003). Childhood cancer affects all aspects of your life, as uncertainties generate stress and anxiety that are present throughout the illness until its cure. The object of study of this Master's thesis is the Beaba Cancer Guide (2021), a manual created to offer support and guidance to children facing the diagnosis of cancer. However, for the Guide to effectively fulfill its purpose, it is essential to assess the readability and textual accessibility of the terms contained therein, ensuring that the information is conveyed in an understandable manner. Taking the contribution of Terminological Textual Accessibility (Finatto, 2022; Temmerman, 2004)), Readability (Dubay, 2004, Fulgêncio; Liberato, 2007) and Legibility (Dubay, 2004), our general objective is to analyze the level of readability, readability and textual accessibility of the terms contained in the Symptoms category of the Beaba Cancer Guide (2021). The specific objectives pervade the assessment of the adequacy of technical terms, identification of the clarity of entries and investigation of the ease of use of the Guide for pediatric patients. Methodologically, after selecting the terms, we used the digital platforms Textual Legibility Analysis – ALT and Portulan Clarin to help in the process of identifying the levels of readability, readability and lexical density of the eight terms, in order to verify whether they are really understandable to the target audience of the research. When studying these terms, it was possible to perceive that it is necessary to use a simple and accessible language, making the text more understandable for child patients, as they contribute to the understanding of specific information and combat the spread of misinformation caused by lack of knowledge, leading a certain child to feel unable to inform himself, thus reducing his self-confidence during the journey. We believe that our research constitutes an important contribution to terminological studies, with regard to specialized languages ​​in the medical field. In the context of textual accessibility, information needs to be conveyed in simple language, with conditions for the public that seeks it to be used, in the case of the Guide, the child cancer patient.
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spelling Marengo, Sandro Marcio Drumond Alveshttps://orcid.org/0000-0003-4658-004Xhttp://lattes.cnpq.br/6298566119978760https://orcid.org/0000-0003-3507-1215http://lattes.cnpq.br/0646376187915502Araujo, Alexandre Neiva de2024-04-12T14:59:50Z2023-07-31ARAUJO, Alexandre Neiva de. Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba. 2023. 115f. Dissertação (Mestrado Acadêmico em Estudos Linguísticos) - Departamento de Letras e Artes, Universidade Estadual de Feira de Santana, Feira de Santana, 2023.http://tede2.uefs.br:8080/handle/tede/1642Cancer, in addition to being a chronic disease that threatens life, is a disease that symbolizes suffering. Thus, as every disease generates instability in family dynamics, cancer, in turn, generates doubts and uncertainties regarding its discovery, treatment and control, since it is a disease with a poor prognosis, especially when related to the child, which implies a better understanding of the impact of the disease. When the person who falls ill is a child, all these emotional reactions can be more intense for the little patient (Castillo; Chesla, 2003). Childhood cancer affects all aspects of your life, as uncertainties generate stress and anxiety that are present throughout the illness until its cure. The object of study of this Master's thesis is the Beaba Cancer Guide (2021), a manual created to offer support and guidance to children facing the diagnosis of cancer. However, for the Guide to effectively fulfill its purpose, it is essential to assess the readability and textual accessibility of the terms contained therein, ensuring that the information is conveyed in an understandable manner. Taking the contribution of Terminological Textual Accessibility (Finatto, 2022; Temmerman, 2004)), Readability (Dubay, 2004, Fulgêncio; Liberato, 2007) and Legibility (Dubay, 2004), our general objective is to analyze the level of readability, readability and textual accessibility of the terms contained in the Symptoms category of the Beaba Cancer Guide (2021). The specific objectives pervade the assessment of the adequacy of technical terms, identification of the clarity of entries and investigation of the ease of use of the Guide for pediatric patients. Methodologically, after selecting the terms, we used the digital platforms Textual Legibility Analysis – ALT and Portulan Clarin to help in the process of identifying the levels of readability, readability and lexical density of the eight terms, in order to verify whether they are really understandable to the target audience of the research. When studying these terms, it was possible to perceive that it is necessary to use a simple and accessible language, making the text more understandable for child patients, as they contribute to the understanding of specific information and combat the spread of misinformation caused by lack of knowledge, leading a certain child to feel unable to inform himself, thus reducing his self-confidence during the journey. We believe that our research constitutes an important contribution to terminological studies, with regard to specialized languages ​​in the medical field. In the context of textual accessibility, information needs to be conveyed in simple language, with conditions for the public that seeks it to be used, in the case of the Guide, the child cancer patient.O câncer, além de ser uma enfermidade crônica que ameaça a vida, é uma doença que simboliza o sofrimento. Assim, como toda doença gera instabilidade na dinâmica familiar, o câncer, por sua vez, gera dúvidas e incertezas quanto à sua descoberta, tratamento e controle, pois é uma doença com prognóstico sombrio, principalmente quando relacionado à criança, o que implica mais compreensão do impacto da doença. Quando a pessoa que adoece é uma criança todas estas reações emocionais podem ser mais intensas para o pequeno paciente (Castillo; Chesla, 2003). O câncer infantil afeta todos os aspectos da sua vida, uma vez que inseguranças geram estresse e ansiedade presentes durante toda a enfermidade até a sua cura. O objeto de estudo dessa dissertação de Mestrado é o Guia Beaba do Câncer (2021), um manual criado para oferecer apoio e orientação as crianças que enfrentam o diagnóstico de câncer. No entanto, para que o Guia cumpra efetivamente seu propósito, é fundamental avaliar a legibilidade e acessibilidade textual dos termos nele contidos, garantindo que a informação seja transmitida de forma compreensível. Tomando o aporte da Acessibilidade Textual Terminológica (Finatto, 2022; Temmerman, 2004), Leiturabilidade (Dubay, 2004, Fulgêncio; Liberato, 2007) e Legibilidade (Dubay, 2004), nosso objetivo geral é analisar o nível de legibilidade, leiturabilidade e acessibilidade textual dos termos constantes na categoria Sintomas do Guia Beaba do Câncer (2021). Os objetivos específicos perpassam pela avaliação da adequação dos termos técnicos, identificação da clareza dos verbetes e investigação da facilidade do uso do Guia para os pacientes infantis. Metodologicamente, após a seleção dos termos, fizemos uso das plataformas digitais Análise de Legibilidade Textual - ALT e Portulan Clarin para auxiliar no processo de identificação dos níveis de legibilidade, leiturabilidade e densidade lexical dos oito termos, a fim de verificar se, realmente, são compreensíveis ao público-alvo da pesquisa. Ao estudarmos estes termos, foi possível perceber que é necessária a utilização de uma linguagem simples e acessível, tornando o texto mais compreensível para os pacientes infantis, pois contribuem para o entendimento de uma informação específica e combate à propagação de desinformação provocada pela falta de conhecimento, levando determinada criança sentir-se incapaz de se informar, diminuindo assim sua autoconfiança durante a jornada. Acreditamos que nossa pesquisa constitui uma contribuição importante para os estudos terminológicos, no que diz respeito as linguagens especializadas da área médica. No contexto da acessibilidade textual, a informação precisa ser transmitida com condições de aproveitamento do público que a busca, no caso do Guia, o paciente infantil.Submitted by Renata Aline Souza Silva (rassilva@uefs.br) on 2024-04-12T14:59:50Z No. of bitstreams: 1 DISSERTAÇÃO - ALEXANDRE NEIVA DE ARAUJO.pdf: 1413258 bytes, checksum: 4c013707e638c570026e67599d4a3351 (MD5)Made available in DSpace on 2024-04-12T14:59:50Z (GMT). No. of bitstreams: 1 DISSERTAÇÃO - ALEXANDRE NEIVA DE ARAUJO.pdf: 1413258 bytes, checksum: 4c013707e638c570026e67599d4a3351 (MD5) Previous issue date: 2023-07-31Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESapplication/pdfporUniversidade Estadual de Feira de SantanaMestrado Acadêmico em Estudos LinguísticosUEFSBrasilDEPARTAMENTO DE LETRAS E ARTESSintomasCâncer infantilTerminologiaAcessibilidade textualLeiturabilidadeSymptomsChildhood cancerTerminologyText accessibilityReadabilityLINGUISTICA, LETRAS E ARTES::LINGUISTICALINGUISTICA, LETRAS E ARTESSintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beabainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesis82446110579956289106006006006006006451293484473876986795525995478551078348280260230440179923590462550136975366info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UEFSinstname:Universidade Estadual de Feira de Santana (UEFS)instacron:UEFSORIGINALDISSERTAÇÃO - ALEXANDRE NEIVA DE ARAUJO.pdfDISSERTAÇÃO - ALEXANDRE NEIVA DE ARAUJO.pdfapplication/pdf1413258http://tede2.uefs.br:8080/bitstream/tede/1642/2/DISSERTA%C3%87%C3%83O+-+ALEXANDRE+NEIVA+DE+ARAUJO.pdf4c013707e638c570026e67599d4a3351MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-82089http://tede2.uefs.br:8080/bitstream/tede/1642/1/license.txt7b5ba3d2445355f386edab96125d42b7MD51tede/16422024-04-12 11:59:50.833oai:tede2.uefs.br:8080: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Biblioteca Digital de Teses e Dissertaçõeshttp://tede2.uefs.br:8080/PUBhttp://tede2.uefs.br:8080/oai/requestbcuefs@uefs.br|| bcref@uefs.br||bcuefs@uefs.bropendoar:2024-04-12T14:59:50Biblioteca Digital de Teses e Dissertações da UEFS - Universidade Estadual de Feira de Santana (UEFS)false
dc.title.por.fl_str_mv Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
title Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
spellingShingle Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
Araujo, Alexandre Neiva de
Sintomas
Câncer infantil
Terminologia
Acessibilidade textual
Leiturabilidade
Symptoms
Childhood cancer
Terminology
Text accessibility
Readability
LINGUISTICA, LETRAS E ARTES::LINGUISTICA
LINGUISTICA, LETRAS E ARTES
title_short Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
title_full Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
title_fullStr Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
title_full_unstemmed Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
title_sort Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba
author Araujo, Alexandre Neiva de
author_facet Araujo, Alexandre Neiva de
author_role author
dc.contributor.advisor1.fl_str_mv Marengo, Sandro Marcio Drumond Alves
dc.contributor.advisor1ID.fl_str_mv https://orcid.org/0000-0003-4658-004X
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/6298566119978760
dc.contributor.authorID.fl_str_mv https://orcid.org/0000-0003-3507-1215
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/0646376187915502
dc.contributor.author.fl_str_mv Araujo, Alexandre Neiva de
contributor_str_mv Marengo, Sandro Marcio Drumond Alves
dc.subject.por.fl_str_mv Sintomas
Câncer infantil
Terminologia
Acessibilidade textual
Leiturabilidade
topic Sintomas
Câncer infantil
Terminologia
Acessibilidade textual
Leiturabilidade
Symptoms
Childhood cancer
Terminology
Text accessibility
Readability
LINGUISTICA, LETRAS E ARTES::LINGUISTICA
LINGUISTICA, LETRAS E ARTES
dc.subject.eng.fl_str_mv Symptoms
Childhood cancer
Terminology
Text accessibility
Readability
dc.subject.cnpq.fl_str_mv LINGUISTICA, LETRAS E ARTES::LINGUISTICA
LINGUISTICA, LETRAS E ARTES
description Cancer, in addition to being a chronic disease that threatens life, is a disease that symbolizes suffering. Thus, as every disease generates instability in family dynamics, cancer, in turn, generates doubts and uncertainties regarding its discovery, treatment and control, since it is a disease with a poor prognosis, especially when related to the child, which implies a better understanding of the impact of the disease. When the person who falls ill is a child, all these emotional reactions can be more intense for the little patient (Castillo; Chesla, 2003). Childhood cancer affects all aspects of your life, as uncertainties generate stress and anxiety that are present throughout the illness until its cure. The object of study of this Master's thesis is the Beaba Cancer Guide (2021), a manual created to offer support and guidance to children facing the diagnosis of cancer. However, for the Guide to effectively fulfill its purpose, it is essential to assess the readability and textual accessibility of the terms contained therein, ensuring that the information is conveyed in an understandable manner. Taking the contribution of Terminological Textual Accessibility (Finatto, 2022; Temmerman, 2004)), Readability (Dubay, 2004, Fulgêncio; Liberato, 2007) and Legibility (Dubay, 2004), our general objective is to analyze the level of readability, readability and textual accessibility of the terms contained in the Symptoms category of the Beaba Cancer Guide (2021). The specific objectives pervade the assessment of the adequacy of technical terms, identification of the clarity of entries and investigation of the ease of use of the Guide for pediatric patients. Methodologically, after selecting the terms, we used the digital platforms Textual Legibility Analysis – ALT and Portulan Clarin to help in the process of identifying the levels of readability, readability and lexical density of the eight terms, in order to verify whether they are really understandable to the target audience of the research. When studying these terms, it was possible to perceive that it is necessary to use a simple and accessible language, making the text more understandable for child patients, as they contribute to the understanding of specific information and combat the spread of misinformation caused by lack of knowledge, leading a certain child to feel unable to inform himself, thus reducing his self-confidence during the journey. We believe that our research constitutes an important contribution to terminological studies, with regard to specialized languages ​​in the medical field. In the context of textual accessibility, information needs to be conveyed in simple language, with conditions for the public that seeks it to be used, in the case of the Guide, the child cancer patient.
publishDate 2023
dc.date.issued.fl_str_mv 2023-07-31
dc.date.accessioned.fl_str_mv 2024-04-12T14:59:50Z
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dc.identifier.citation.fl_str_mv ARAUJO, Alexandre Neiva de. Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba. 2023. 115f. Dissertação (Mestrado Acadêmico em Estudos Linguísticos) - Departamento de Letras e Artes, Universidade Estadual de Feira de Santana, Feira de Santana, 2023.
dc.identifier.uri.fl_str_mv http://tede2.uefs.br:8080/handle/tede/1642
identifier_str_mv ARAUJO, Alexandre Neiva de. Sintomas do câncer infantil à luz da linguagem: uma análise de legibilidade e acessibilidade terminológica no Guia Beaba. 2023. 115f. Dissertação (Mestrado Acadêmico em Estudos Linguísticos) - Departamento de Letras e Artes, Universidade Estadual de Feira de Santana, Feira de Santana, 2023.
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