Pais frente à malformação craniofacial do filho: uma contribuição da enfermagem para a equipe interdisciplinar

• Autor(a) principal: Fontes, Fernanda da Silva
• Data de Publicação: 2015
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações da UERJ
• Texto Completo: http://www.bdtd.uerj.br/handle/1/11364
• topic: Craniofacial anomalies; Parent-child relationship; Nursing cares; Anormalidades craniofaciais; Relações pais-filho; Cuidados de enfermagem; CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM

This paper is a qualitative descriptive research that studies the parents' confrontation strategies when in the birth of a child with a craniofacial anomaly. It targeted to identify the impact on parents of a birth of a child with craniofacial anomaly; to describe the parents' confrontation strategies to create a bounding with their ill-formed child. This paper used the Life's Narrative method through an interview with fifteen mothers and seven fathers of children with craniofacial anomaly. This study was approved by the Rio de Janeiro State University Ethics Committee. The data gathering took place between June and August 2014. The narratives pointed to the emerging of three categories: having a child with craniofacial anomaly: impacting situation; Confrontation strategies used by the parents of children with craniofacial anomaly; Parents and healthcare workers: a disturbed relationship. The categories were able to clarify that the ill-formation's news generate an impact and a crisis in the parents' life and in the family unity. The pregnancy's big anticipation for a perfect baby turns into frustration, shock and guilt. In face of this adversity, the families start to develop confrontation's strategies that assist the bounding with the ill-formed child. This capacity to develop forces and abilities to adapt to this new reality, minimizing its negative effects, is called resilience. The narratives point to the religious experience and the support system as the main confrontation strategies used by the participants. The healthcare team is called to support the parents through the adapting process to an ill-formed child. The healthcare professionals can auxiliate on supporting those parents through adaptation to this new condition being promoting agents of the therapeutical listening. Understanding what is behind each unveiled history brings aids to strengthen the resilience in the institutional reception of the parents and their family.