Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Biblioteca Digital de Teses e Dissertações da UERJ |
Texto Completo: | http://www.bdtd.uerj.br/handle/1/17670 |
Resumo: | How to involve mental health service users in research? From the practice with a mutual help and support group in mental health in Rio de Janeiro-RJ, and the long-term conviviality with its users, a research project was elaborated to answer to this question. Based on the concept of recovery, related to the protagonism of these users, who became co-researchers, the project presented a methodological orientation guided by the conceptual assumption. With the establishment of a co-researchers’ collective, meetings were held to plan the whole thesis, including its objectives and strategies. Based on this initiative, an objective was set to understand the recovery processes of other users of the mental health network in the referred city, through interviews on devices in which the co-researchers were inserted. From the opportunity to do part of the PhD at the Service User Research Enterprise of King’s College London, it was aimed to understand how the mental health service users are involved in research in that context, given the relevance of the British tradition for this area of knowledge. Due to the COVID-19 pandemic, the interviews were replaced by the author’s personal testimony about the research experience with the co-researchers’ collective, in addition to reviews of the world and Brazilian literature on research involving mental health service users. Two British categorizations of forms of service user involvement in research were adopted in the reviews: consultation, contribution, collaboration and control; and principles, purpose, presence, process and impact; the second structured the author’s testimony of the experience with the co-researchers’ collective, considering its formation, mode of operation and impact, besides issues related to ethics, authorship, power relations, group contextualization and transparency. Furthermore, the concept of recovery was debated according to criticisms apprehended in the British reality of mental health and to the conception produced by the collective. The service user involvement in mental health research in England is expressive, however, despite of the public policies that favor inclusion, the tokenistic participation in this area is denounced. In Brazil, the reality of research that includes mental health service users in a more significant way is still incipient. Therefore, the demand for incentives for collaborative research in the country is relevant, in addition to the defense of the role of mental health service users in the production of knowledge about public policies that support the Brazilian psychiatric reform, aiming at advances and the maintenance of democratic practices, considering the setbacks and serious threats to the public health system and social policies in Brazil. |
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Silva, Martinho Braga Batista eVasconcelos, Eduardo MourãoLima, Rossano CabralGuerrero, Francisco Javier OrtegaAndrade, Ana Paula Müller deFurtado, Juarez Pereirahttp://lattes.cnpq.br/Figueiredo, Angela Pereira2022-05-02T16:19:27Z2021-11-22FIGUEIREDO, Angela Pereira. Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas. 2021. 291 f. Tese (Doutorado em Saúde Coletiva) - Instituto de Medicina Social, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2021.http://www.bdtd.uerj.br/handle/1/17670How to involve mental health service users in research? From the practice with a mutual help and support group in mental health in Rio de Janeiro-RJ, and the long-term conviviality with its users, a research project was elaborated to answer to this question. Based on the concept of recovery, related to the protagonism of these users, who became co-researchers, the project presented a methodological orientation guided by the conceptual assumption. With the establishment of a co-researchers’ collective, meetings were held to plan the whole thesis, including its objectives and strategies. Based on this initiative, an objective was set to understand the recovery processes of other users of the mental health network in the referred city, through interviews on devices in which the co-researchers were inserted. From the opportunity to do part of the PhD at the Service User Research Enterprise of King’s College London, it was aimed to understand how the mental health service users are involved in research in that context, given the relevance of the British tradition for this area of knowledge. Due to the COVID-19 pandemic, the interviews were replaced by the author’s personal testimony about the research experience with the co-researchers’ collective, in addition to reviews of the world and Brazilian literature on research involving mental health service users. Two British categorizations of forms of service user involvement in research were adopted in the reviews: consultation, contribution, collaboration and control; and principles, purpose, presence, process and impact; the second structured the author’s testimony of the experience with the co-researchers’ collective, considering its formation, mode of operation and impact, besides issues related to ethics, authorship, power relations, group contextualization and transparency. Furthermore, the concept of recovery was debated according to criticisms apprehended in the British reality of mental health and to the conception produced by the collective. The service user involvement in mental health research in England is expressive, however, despite of the public policies that favor inclusion, the tokenistic participation in this area is denounced. In Brazil, the reality of research that includes mental health service users in a more significant way is still incipient. Therefore, the demand for incentives for collaborative research in the country is relevant, in addition to the defense of the role of mental health service users in the production of knowledge about public policies that support the Brazilian psychiatric reform, aiming at advances and the maintenance of democratic practices, considering the setbacks and serious threats to the public health system and social policies in Brazil.Como envolver usuários/as de serviços de saúde mental em pesquisas? A partir da prática exercida com os grupos de ajuda e suporte mútuos em saúde mental no Rio de Janeiro-RJ, e da convivência a longo prazo com seus usuários/as, foi elaborado um projeto de pesquisa visando responder a essa questão. Fundamentado no conceito de recovery, relacionado ao protagonismo desses usuários/as, tornados co-pesquisadores, o projeto apresentou uma orientação metodológica guiada pelo pressuposto conceitual. Com a instauração de um coletivo de co-pesquisadores, reuniões foram realizadas para planejamento do conjunto da tese, incluindo seus objetivos e estratégias. A partir dessa iniciativa, um objetivo foi estipulado para compreender os processos de recovery de outros/as usuários/as da rede de saúde mental do referido município, por meio de entrevistas em dispositivos nos quais os/as co-pesquisadores se inseriam. Com a realização do doutorado sanduíche na Service User Research Enterprise da King’s College London, buscou-se compreender como usuários/as de serviços de saúde mental são inseridos/as nas pesquisas daquele contexto, dada a relevância da tradição britânica para esta área de conhecimento. Devido à pandemia da COVID-19, as entrevistas deram lugar à realização de testemunho pessoal da autora sobre a experiência de pesquisa com o coletivo de co-pesquisadores, além de revisões da literatura mundial e brasileira sobre pesquisas com o envolvimento de usuários/as de serviços de saúde mental. Duas categorizações britânicas de modos de envolvimento de usuários/as em pesquisas foram adotadas nas revisões: consulta, contribuição, colaboração e controle; e princípios, propósito, presença, processo e impacto; tendo a segunda estruturado o testemunho da experiência da autora com o coletivo, considerando sua formação, modo de funcionamento e impacto, e questões referentes à ética, à autoria, às relações de poder, à contextualização grupal e à transparência. Debateu-se, ainda, o conceito de recovery de acordo com críticas apreendidas na realidade britânica de saúde mental e com a concepção produzida pelo coletivo. É expressivo o envolvimento de usuários/as de serviços de saúde mental em pesquisas na Inglaterra, no entanto, apesar das políticas públicas que favorecem a inclusão, denuncia-se a participação simbólica desses atores nesse âmbito. No Brasil, ainda é incipiente a realidade de pesquisas que incluem usuários/as de saúde mental de modo mais significativo. Diante disso, considera-se fundamental a reivindicação por incentivos a pesquisas colaborativas no país, além da defesa do protagonismo de usuários/as de saúde mental na produção de conhecimento em torno das políticas públicas que sustentam a reforma psiquiátrica brasileira, visando avanços e a manutenção dos fazeres democráticos, considerando os retrocessos e as graves ameaças ao Sistema Único de Saúde e às políticas sociais brasileiras.Submitted by Marcia CB/C (marciagraziadio@yahoo.com.br) on 2022-05-02T16:19:27Z No. of bitstreams: 1 Tese - Angela Pereira Figueiredo - 2021 - Completa.pdf: 1986550 bytes, checksum: afaf8f227d1f1e0b2beb3599344bdd72 (MD5)Made available in DSpace on 2022-05-02T16:19:27Z (GMT). No. of bitstreams: 1 Tese - Angela Pereira Figueiredo - 2021 - Completa.pdf: 1986550 bytes, checksum: afaf8f227d1f1e0b2beb3599344bdd72 (MD5) Previous issue date: 2021-11-22Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESapplication/pdfporUniversidade do Estado do Rio de JaneiroPrograma de Pós-Graduação em Saúde ColetivaUERJBrasilCentro Biomédico::Instituto de Medicina SocialServiços de saúde mentalPesquisa participativa baseada na comunidadeRecuperação da saúde mentalMental health servicesCommunity-based participatory researchMental health recoveryCIENCIAS DA SAUDE::SAUDE COLETIVARecovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisasRecovery, reviews and experiences:forms of mental health service user involvement in researchinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UERJinstname:Universidade do Estado do Rio de Janeiro (UERJ)instacron:UERJORIGINALTese - Angela Pereira Figueiredo - 2021 - Completa.pdfTese - Angela Pereira Figueiredo - 2021 - Completa.pdfapplication/pdf1986550http://www.bdtd.uerj.br/bitstream/1/17670/2/Tese+-+Angela+Pereira+Figueiredo+-+2021+-+Completa.pdfafaf8f227d1f1e0b2beb3599344bdd72MD52LICENSElicense.txtlicense.txttext/plain; charset=utf-82123http://www.bdtd.uerj.br/bitstream/1/17670/1/license.txte5502652da718045d7fcd832b79fca29MD511/176702022-05-11 09:59:20.264oai:www.bdtd.uerj.br:1/17670Tk9UQTogTElDRU7Dh0EgUkVERSBTSVJJVVMKRXN0YSBsaWNlbsOnYSBkZSBleGVtcGxvIMOpIGZvcm5lY2lkYSBhcGVuYXMgcGFyYSBmaW5zIGluZm9ybWF0aXZvcy4KCkxJQ0VOw4dBIERFIERJU1RSSUJVScOHw4NPIE7Dg08tRVhDTFVTSVZBCgpDb20gYSBhcHJlc2VudGHDp8OjbyBkZXN0YSBsaWNlbsOnYSwgdm9jw6ogKG8gYXV0b3IgKGVzKSBvdSBvIHRpdHVsYXIgZG9zIGRpcmVpdG9zIGRlIGF1dG9yKSBjb25jZWRlIMOgIFVuaXZlcnNpZGFkZSAKZG8gRXN0YWRvIGRvIFJpbyBkZSBKYW5laXJvIChVRVJKKSBvIGRpcmVpdG8gbsOjby1leGNsdXNpdm8gZGUgcmVwcm9kdXppciwgIHRyYWR1emlyIChjb25mb3JtZSBkZWZpbmlkbyBhYmFpeG8pLCBlL291IApkaXN0cmlidWlyIGEgc3VhIHRlc2Ugb3UgZGlzc2VydGHDp8OjbyAoaW5jbHVpbmRvIG8gcmVzdW1vKSBwb3IgdG9kbyBvIG11bmRvIG5vIGZvcm1hdG8gaW1wcmVzc28gZSBlbGV0csO0bmljbyBlIAplbSBxdWFscXVlciBtZWlvLCBpbmNsdWluZG8gb3MgZm9ybWF0b3Mgw6F1ZGlvIG91IHbDrWRlby4KClZvY8OqIGNvbmNvcmRhIHF1ZSBhIFVFUkogcG9kZSwgc2VtIGFsdGVyYXIgbyBjb250ZcO6ZG8sIHRyYW5zcG9yIGEgc3VhIHRlc2Ugb3UgZGlzc2VydGHDp8OjbyAKcGFyYSBxdWFscXVlciBtZWlvIG91IGZvcm1hdG8gcGFyYSBmaW5zIGRlIHByZXNlcnZhw6fDo28uCgpWb2PDqiB0YW1iw6ltIGNvbmNvcmRhIHF1ZSBhIFVFUkogcG9kZSBtYW50ZXIgbWFpcyBkZSB1bWEgY8OzcGlhIGEgc3VhIHRlc2Ugb3UgCmRpc3NlcnRhw6fDo28gcGFyYSBmaW5zIGRlIHNlZ3VyYW7Dp2EsIGJhY2stdXAgZSBwcmVzZXJ2YcOnw6NvLgoKVm9jw6ogZGVjbGFyYSBxdWUgYSBzdWEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvIMOpIG9yaWdpbmFsIGUgcXVlIHZvY8OqIHRlbSBvIHBvZGVyIGRlIGNvbmNlZGVyIG9zIGRpcmVpdG9zIGNvbnRpZG9zIApuZXN0YSBsaWNlbsOnYS4gVm9jw6ogdGFtYsOpbSBkZWNsYXJhIHF1ZSBvIGRlcMOzc2l0byBkYSBzdWEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvIG7Do28sIHF1ZSBzZWphIGRlIHNldSAKY29uaGVjaW1lbnRvLCBpbmZyaW5nZSBkaXJlaXRvcyBhdXRvcmFpcyBkZSBuaW5ndcOpbS4KCkNhc28gYSBzdWEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvIGNvbnRlbmhhIG1hdGVyaWFsIHF1ZSB2b2PDqiBuw6NvIHBvc3N1aSBhIHRpdHVsYXJpZGFkZSBkb3MgZGlyZWl0b3MgYXV0b3JhaXMsIHZvY8OqIApkZWNsYXJhIHF1ZSBvYnRldmUgYSBwZXJtaXNzw6NvIGlycmVzdHJpdGEgZG8gZGV0ZW50b3IgZG9zIGRpcmVpdG9zIGF1dG9yYWlzIHBhcmEgY29uY2VkZXIgw6AgVUVSSiBvcyBkaXJlaXRvcyBhcHJlc2VudGFkb3MgbmVzdGEgbGljZW7Dp2EsIGUgcXVlIGVzc2UgbWF0ZXJpYWwgZGUgcHJvcHJpZWRhZGUgZGUgdGVyY2Vpcm9zIGVzdMOhIGNsYXJhbWVudGUgCmlkZW50aWZpY2FkbyBlIHJlY29uaGVjaWRvIG5vIHRleHRvIG91IG5vIGNvbnRlw7pkbyBkYSB0ZXNlIG91IGRpc3NlcnRhw6fDo28gb3JhIGRlcG9zaXRhZGEuCgpDQVNPIEEgVEVTRSBPVSBESVNTRVJUQcOHw4NPIE9SQSBERVBPU0lUQURBIFRFTkhBIFNJRE8gUkVTVUxUQURPIERFIFVNIFBBVFJPQ8ONTklPIE9VIApBUE9JTyBERSBVTUEgQUfDik5DSUEgREUgRk9NRU5UTyBPVSBPVVRSTyBPUkdBTklTTU8gUVVFIE7Dg08gU0VKQSBFU1RBClVOSVZFUlNJREFERSwgVk9Dw4ogREVDTEFSQSBRVUUgUkVTUEVJVE9VIFRPRE9TIEUgUVVBSVNRVUVSIERJUkVJVE9TIERFIFJFVklTw4NPIENPTU8gClRBTULDiU0gQVMgREVNQUlTIE9CUklHQcOHw5VFUyBFWElHSURBUyBQT1IgQ09OVFJBVE8gT1UgQUNPUkRPLgoKQSBVbml2ZXJzaWRhZGUgZG8gRXN0YWRvIGRvIFJpbyBkZSBKYW5laXJvIChVRVJKKSBzZSBjb21wcm9tZXRlIGEgaWRlbnRpZmljYXIgY2xhcmFtZW50ZSBvIHNldSBub21lIChzKSBvdSBvKHMpIG5vbWUocykgZG8ocykgCmRldGVudG9yKGVzKSBkb3MgZGlyZWl0b3MgYXV0b3JhaXMgZGEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvLCBlIG7Do28gZmFyw6EgcXVhbHF1ZXIgYWx0ZXJhw6fDo28sIGFsw6ltIGRhcXVlbGFzIApjb25jZWRpZGFzIHBvciBlc3RhIGxpY2Vuw6dhLgo=Biblioteca Digital de Teses e Dissertaçõeshttp://www.bdtd.uerj.br/PUBhttps://www.bdtd.uerj.br:8443/oai/requestbdtd.suporte@uerj.bropendoar:29032022-05-11T12:59:20Biblioteca Digital de Teses e Dissertações da UERJ - Universidade do Estado do Rio de Janeiro (UERJ)false |
dc.title.por.fl_str_mv |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
dc.title.alternative.eng.fl_str_mv |
Recovery, reviews and experiences:forms of mental health service user involvement in research |
title |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
spellingShingle |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas Figueiredo, Angela Pereira Serviços de saúde mental Pesquisa participativa baseada na comunidade Recuperação da saúde mental Mental health services Community-based participatory research Mental health recovery CIENCIAS DA SAUDE::SAUDE COLETIVA |
title_short |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
title_full |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
title_fullStr |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
title_full_unstemmed |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
title_sort |
Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas |
author |
Figueiredo, Angela Pereira |
author_facet |
Figueiredo, Angela Pereira |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
Silva, Martinho Braga Batista e |
dc.contributor.advisor-co1.fl_str_mv |
Vasconcelos, Eduardo Mourão |
dc.contributor.referee1.fl_str_mv |
Lima, Rossano Cabral |
dc.contributor.referee2.fl_str_mv |
Guerrero, Francisco Javier Ortega |
dc.contributor.referee3.fl_str_mv |
Andrade, Ana Paula Müller de |
dc.contributor.referee4.fl_str_mv |
Furtado, Juarez Pereira |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/ |
dc.contributor.author.fl_str_mv |
Figueiredo, Angela Pereira |
contributor_str_mv |
Silva, Martinho Braga Batista e Vasconcelos, Eduardo Mourão Lima, Rossano Cabral Guerrero, Francisco Javier Ortega Andrade, Ana Paula Müller de Furtado, Juarez Pereira |
dc.subject.por.fl_str_mv |
Serviços de saúde mental Pesquisa participativa baseada na comunidade Recuperação da saúde mental |
topic |
Serviços de saúde mental Pesquisa participativa baseada na comunidade Recuperação da saúde mental Mental health services Community-based participatory research Mental health recovery CIENCIAS DA SAUDE::SAUDE COLETIVA |
dc.subject.eng.fl_str_mv |
Mental health services Community-based participatory research Mental health recovery |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::SAUDE COLETIVA |
description |
How to involve mental health service users in research? From the practice with a mutual help and support group in mental health in Rio de Janeiro-RJ, and the long-term conviviality with its users, a research project was elaborated to answer to this question. Based on the concept of recovery, related to the protagonism of these users, who became co-researchers, the project presented a methodological orientation guided by the conceptual assumption. With the establishment of a co-researchers’ collective, meetings were held to plan the whole thesis, including its objectives and strategies. Based on this initiative, an objective was set to understand the recovery processes of other users of the mental health network in the referred city, through interviews on devices in which the co-researchers were inserted. From the opportunity to do part of the PhD at the Service User Research Enterprise of King’s College London, it was aimed to understand how the mental health service users are involved in research in that context, given the relevance of the British tradition for this area of knowledge. Due to the COVID-19 pandemic, the interviews were replaced by the author’s personal testimony about the research experience with the co-researchers’ collective, in addition to reviews of the world and Brazilian literature on research involving mental health service users. Two British categorizations of forms of service user involvement in research were adopted in the reviews: consultation, contribution, collaboration and control; and principles, purpose, presence, process and impact; the second structured the author’s testimony of the experience with the co-researchers’ collective, considering its formation, mode of operation and impact, besides issues related to ethics, authorship, power relations, group contextualization and transparency. Furthermore, the concept of recovery was debated according to criticisms apprehended in the British reality of mental health and to the conception produced by the collective. The service user involvement in mental health research in England is expressive, however, despite of the public policies that favor inclusion, the tokenistic participation in this area is denounced. In Brazil, the reality of research that includes mental health service users in a more significant way is still incipient. Therefore, the demand for incentives for collaborative research in the country is relevant, in addition to the defense of the role of mental health service users in the production of knowledge about public policies that support the Brazilian psychiatric reform, aiming at advances and the maintenance of democratic practices, considering the setbacks and serious threats to the public health system and social policies in Brazil. |
publishDate |
2021 |
dc.date.issued.fl_str_mv |
2021-11-22 |
dc.date.accessioned.fl_str_mv |
2022-05-02T16:19:27Z |
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info:eu-repo/semantics/publishedVersion |
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publishedVersion |
dc.identifier.citation.fl_str_mv |
FIGUEIREDO, Angela Pereira. Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas. 2021. 291 f. Tese (Doutorado em Saúde Coletiva) - Instituto de Medicina Social, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2021. |
dc.identifier.uri.fl_str_mv |
http://www.bdtd.uerj.br/handle/1/17670 |
identifier_str_mv |
FIGUEIREDO, Angela Pereira. Recovery, revisões e experiências: modos de envolvimento de usuários e usuárias de serviços de saúde mental em pesquisas. 2021. 291 f. Tese (Doutorado em Saúde Coletiva) - Instituto de Medicina Social, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2021. |
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Universidade do Estado do Rio de Janeiro |
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