Burden and quality of life of informal caregivers of children with cerebral palsy

Detalhes bibliográficos
Autor(a) principal: Davis, Abigail Oluwadunni
Data de Publicação: 2021
Outros Autores: Olagbegi, Oladapo Michael, Orekoya, Kayode, Adekunle, Mathew, Oyewole, Olufemi Oyeleye, Adepoju, Modinat, Soetan, Oluyemisi
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Rev Rene (Online)
Texto Completo: http://periodicos.ufc.br/rene/article/view/61752
Resumo: Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.
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spelling Burden and quality of life of informal caregivers of children with cerebral palsySobrecarga e qualidade de vida de cuidadores informais de crianças com paralisia cerebralCaregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.Cuidadores; Assistência ao Paciente; Esgotamento Psicológico; Qualidade de Vida; Paralisia Cerebral.Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.Objetivo: analisar a sobrecarga e qualidade de vida de cuidadores informais de crianças com paralisia cerebral. Métodos: o estudo transversal envolveu 109 cuidadores recrutados em uma clínica de fisioterapia em um hospital terciário. A qualidade de vida e a sobrecarga foram avaliadas por meio do Personal Wellbeing Index e do Modified Caregivers’ Strain Index, respectivamente. Os dados foram analisados de forma descritiva e inferencial. Resultados: as médias do índice de sobrecarga e dos escores de qualidade de vida foram 11,85 ± 5,72 e 64,68 ± 8,03, respectivamente. A maioria (67,9%) dos cuidadores apresentou bem-estar pessoal razoável, enquanto cerca de um terço (33,0%) apresentou alta sobrecarga. Idade da criança (B=2,454; p<0,005) e ocupação dos cuidadores (B= -2,547; p=0,001) foram preditores de tensão do cuidador. Conclusão: cuidar de crianças com paralisia cerebral impôs uma sobrecarga substancial aos cuidadores e a idade da criança e a ocupação dos cuidadores foram variáveis preditoras.Universidade Federal do Ceará2021-05-03info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttp://periodicos.ufc.br/rene/article/view/6175210.15253/2175-6783.20212261752Rev Rene; Vol 22 (2021): Rev Rene; e61752Rev Rene; v. 22 (2021): Rev Rene; e617522175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCporenghttp://periodicos.ufc.br/rene/article/view/61752/196795http://periodicos.ufc.br/rene/article/view/61752/196796Copyright (c) 2021 Rev Renehttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessDavis, Abigail OluwadunniOlagbegi, Oladapo MichaelOrekoya, Kayode Adekunle, Mathew Oyewole, Olufemi OyeleyeAdepoju, Modinat Soetan, Oluyemisi 2021-05-03T14:06:49Zoai:periodicos.ufc:article/61752Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2021-05-03T14:06:49Rev Rene (Online) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Burden and quality of life of informal caregivers of children with cerebral palsy
Sobrecarga e qualidade de vida de cuidadores informais de crianças com paralisia cerebral
title Burden and quality of life of informal caregivers of children with cerebral palsy
spellingShingle Burden and quality of life of informal caregivers of children with cerebral palsy
Davis, Abigail Oluwadunni
Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
Cuidadores; Assistência ao Paciente; Esgotamento Psicológico; Qualidade de Vida; Paralisia Cerebral.
title_short Burden and quality of life of informal caregivers of children with cerebral palsy
title_full Burden and quality of life of informal caregivers of children with cerebral palsy
title_fullStr Burden and quality of life of informal caregivers of children with cerebral palsy
title_full_unstemmed Burden and quality of life of informal caregivers of children with cerebral palsy
title_sort Burden and quality of life of informal caregivers of children with cerebral palsy
author Davis, Abigail Oluwadunni
author_facet Davis, Abigail Oluwadunni
Olagbegi, Oladapo Michael
Orekoya, Kayode
Adekunle, Mathew
Oyewole, Olufemi Oyeleye
Adepoju, Modinat
Soetan, Oluyemisi
author_role author
author2 Olagbegi, Oladapo Michael
Orekoya, Kayode
Adekunle, Mathew
Oyewole, Olufemi Oyeleye
Adepoju, Modinat
Soetan, Oluyemisi
author2_role author
author
author
author
author
author
dc.contributor.author.fl_str_mv Davis, Abigail Oluwadunni
Olagbegi, Oladapo Michael
Orekoya, Kayode
Adekunle, Mathew
Oyewole, Olufemi Oyeleye
Adepoju, Modinat
Soetan, Oluyemisi
dc.subject.por.fl_str_mv Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
Cuidadores; Assistência ao Paciente; Esgotamento Psicológico; Qualidade de Vida; Paralisia Cerebral.
topic Caregivers; Patient Care; Burnout, Psychological; Quality of Life; Cerebral Palsy.
Cuidadores; Assistência ao Paciente; Esgotamento Psicológico; Qualidade de Vida; Paralisia Cerebral.
description Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.
publishDate 2021
dc.date.none.fl_str_mv 2021-05-03
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufc.br/rene/article/view/61752
10.15253/2175-6783.20212261752
url http://periodicos.ufc.br/rene/article/view/61752
identifier_str_mv 10.15253/2175-6783.20212261752
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv http://periodicos.ufc.br/rene/article/view/61752/196795
http://periodicos.ufc.br/rene/article/view/61752/196796
dc.rights.driver.fl_str_mv Copyright (c) 2021 Rev Rene
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 Rev Rene
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade Federal do Ceará
publisher.none.fl_str_mv Universidade Federal do Ceará
dc.source.none.fl_str_mv Rev Rene; Vol 22 (2021): Rev Rene; e61752
Rev Rene; v. 22 (2021): Rev Rene; e61752
2175-6783
1517-3852
reponame:Rev Rene (Online)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Rev Rene (Online)
collection Rev Rene (Online)
repository.name.fl_str_mv Rev Rene (Online) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv rene@ufc.br||
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