Validação de um manual educativo para pacientes com doença de Parkinson

• Autor(a) principal: Bonfadini, Janine de Carvalho
• Data de Publicação: 2023
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Repositório Institucional da Universidade Federal do Ceará (UFC)
• Texto Completo: http://www.repositorio.ufc.br/handle/riufc/70442
• topic: Doença de Parkinson; Educação em Saúde; Estudo de Validação; Letramento em Saúde; Tecnologia Educacional

Objective: To develop and validate educational material for people with Parkinson's disease to facilitate understanding of their condition, including clinical status, treatment and non- pharmacological therapeutic measures. Method: Methodological study with a quantitative and qualitative approach developed in three stages: construction of the manual, validation by experts and validation by the target audience. The manual was developed by health professionals and submitted to the validation of specialists and patients with Parkinson's disease. The manual addresses motor and non-motor symptoms, treatment, complications and coping strategies for Parkinson's disease. Results: The material obtained an agreement level of 90.93% by the experts' judgment and 98.66% by the target audience, being classified with maximum conceptualization by both groups. Patients considered the manual informative, explanatory and motivating for self-care actions. Conclusion: The educational manual proved to be valid in terms of content and appearance. It is an accessible and attractive material for people with Parkinson's disease and their families, which promotes understanding of the disease and presents coping strategies with possible repercussions on quality of life.