O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar
Autor(a) principal: | |
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Data de Publicação: | 2017 |
Tipo de documento: | Trabalho de conclusão de curso |
Idioma: | por |
Título da fonte: | Biblioteca Digital de Monografias da UFMT |
Texto Completo: | http://bdm.ufmt.br/handle/1/961 |
Resumo: | The number of people with physical disabilities has increased significantly in our country, which requires that health services and socio-cultural context to be prepared to receive such demand. When someone acquires some kind of disability and becomes dependent, care is not only performed in a hospital setting, but for a certain time or even a lifetime, this individual will need a home support. Faced with an acquired dependency, family caregivers arise without previous preparation, unexpectedly and suddenly they start to take care of the patient. Knowing the difficulties found in the care and adaptation of the family caregiver is fundamental for the nursing team in order to promote an effective care geared to the needs of each caregiver. Thus, the objective of this research was to analyze the adaptation process of the caregiver font of the need of caring a relative who became dependent due to neurological damage. For that matter, a qualitative research was carried out with descriptive and exploratory approach, in which we recruited eight family caregivers in the Rehabilitation Unit (UDR) of Alta Floresta, State of Mato Grosso. The data collection was done through interviews recorded in audio, after the authorization and consent of the participant. The interviews were performed in the participant's house, in a quiet room, individually and away from the individual care, leaving the caregiver more secure and comfortable for the interview. The semi-structured questionnaire approached questions about the experiences as family caregiver, the difficulties, problems, support found in the day to day, the perspectives, feelings and the confrontation when this person became a domiciliary caregiver. The data were transcribed and analyzed using the thematic content analysis technique, which gave rise to eight categories: Care under the gaze of the caregiver; Emotional dependence in family caregivers; Religiosity and spirituality as a tool facing the new challenge; Between feeling and reason: is caring always an act of love?; Emotional overload, social isolation and impact on the family caregiver's quality of life; The impact of the new living condition and the acceptance process; Technical difficulties found in care and professional support network. In our results family caregivers have shown to be emotionally dependent on patients, with no prospect of not caring them, and that spirituality is a strong tool for facing this situation. Care for caregivers is a mixture of noble and imposed feelings, in the development of complex techniques that demand dedication and commitment in the execution. The quality of life of these caregivers was altered, presenting overload and social isolation. All demonstrated initial difficulty with the acceptance of the new reality and believe in something superior that explains such a situation. Regarding to care techniques, there was an unpreparedness and lack of professional support. To conclude, the lack of preparation and training of these caregivers, insecurity, fear and difficulties, as well as a multiprofessional support network that could provide the wellbeing of the dependent and the family caregiver were noted. |
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O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiarCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMCuidador familiarPacientes domiciliaresEnfermagemEducação em SaúdeReabilitaçãoFamily caregiverHome patientsNursingHealth EducationRehabilitationThe number of people with physical disabilities has increased significantly in our country, which requires that health services and socio-cultural context to be prepared to receive such demand. When someone acquires some kind of disability and becomes dependent, care is not only performed in a hospital setting, but for a certain time or even a lifetime, this individual will need a home support. Faced with an acquired dependency, family caregivers arise without previous preparation, unexpectedly and suddenly they start to take care of the patient. Knowing the difficulties found in the care and adaptation of the family caregiver is fundamental for the nursing team in order to promote an effective care geared to the needs of each caregiver. Thus, the objective of this research was to analyze the adaptation process of the caregiver font of the need of caring a relative who became dependent due to neurological damage. For that matter, a qualitative research was carried out with descriptive and exploratory approach, in which we recruited eight family caregivers in the Rehabilitation Unit (UDR) of Alta Floresta, State of Mato Grosso. The data collection was done through interviews recorded in audio, after the authorization and consent of the participant. The interviews were performed in the participant's house, in a quiet room, individually and away from the individual care, leaving the caregiver more secure and comfortable for the interview. The semi-structured questionnaire approached questions about the experiences as family caregiver, the difficulties, problems, support found in the day to day, the perspectives, feelings and the confrontation when this person became a domiciliary caregiver. The data were transcribed and analyzed using the thematic content analysis technique, which gave rise to eight categories: Care under the gaze of the caregiver; Emotional dependence in family caregivers; Religiosity and spirituality as a tool facing the new challenge; Between feeling and reason: is caring always an act of love?; Emotional overload, social isolation and impact on the family caregiver's quality of life; The impact of the new living condition and the acceptance process; Technical difficulties found in care and professional support network. In our results family caregivers have shown to be emotionally dependent on patients, with no prospect of not caring them, and that spirituality is a strong tool for facing this situation. Care for caregivers is a mixture of noble and imposed feelings, in the development of complex techniques that demand dedication and commitment in the execution. The quality of life of these caregivers was altered, presenting overload and social isolation. All demonstrated initial difficulty with the acceptance of the new reality and believe in something superior that explains such a situation. Regarding to care techniques, there was an unpreparedness and lack of professional support. To conclude, the lack of preparation and training of these caregivers, insecurity, fear and difficulties, as well as a multiprofessional support network that could provide the wellbeing of the dependent and the family caregiver were noted.O número de pessoas com deficiência física tem aumentado significativamente em nosso país, exigindo que os serviços de saúde e o contexto sociocultural estejam preparados para receber tal demanda. Quando a pessoa adquire algum tipo de deficiência e se torna dependente, os cuidados não são realizados somente em âmbito hospitalar, mas por um determinado tempo ou até por toda a vida, esse indivíduo vai necessitar de um suporte domiciliar. Diante de uma dependência adquirida, cuidadores familiares surgem sem preparação prévia, de forma inesperada e súbita e assumem os cuidados ao paciente. Conhecer as dificuldades encontradas no cuidado e adaptação do cuidador familiar é fundamental para a equipe de enfermagem a fim de promover uma assistência eficaz e voltada para as necessidades de cada cuidador. Desse modo, o objetivo geral desta pesquisa foi analisar o processo de adaptação do cuidador frente à necessidade de cuidado do familiar que se tornou dependente em virtude de um dano neurológico. Para o alcance dos objetivos, foi realizada uma pesquisa qualitativa com abordagem descritiva e exploratória, na qual o recrutamento dos oito cuidadores familiares ocorreu na Unidade de reabilitação (UDR) de Alta Floresta, MT. A coleta de dados se deu por meio de entrevistas gravadas em áudio, realizadas na casa do participante, em um cômodo calmo e silencioso, diante da autorização e consentimento do mesmo, de forma individual e longe do sujeito cuidado, deixando o cuidador mais seguro e confortável para a entrevista. O roteiro semiestruturado abordou perguntas sobre as vivências como cuidador familiar, as dificuldades, problemáticas, apoio encontrado no dia a dia, as perspectivas, sentimentos e o enfrentamento quando se tornou cuidador domiciliar. Os dados foram transcritos e analisados por meio da técnica de análise de conteúdo temática, que deu origem a oito categorias: O cuidado sob o olhar do cuidador; Dependência emocional em familiares cuidadores; Religiosidade e espiritualidade como ferramenta de enfrentamento; Entre o sentimento e a razão: cuidar é sempre um ato de amor?; Sobrecarga emocional, isolamento social e impacto na qualidade de vida do familiar cuidador; O impacto da nova condição de vida e o processo de aceitação; Dificuldades técnicas encontradas no cuidado e Rede de apoio profissional. No que diz respeito aos resultados, os cuidadores familiares se demonstraram dependentes emocionalmente dos pacientes, sem perspectiva de deixar de cuidar e que a espiritualidade é uma forte ferramenta para o enfrentamento. O cuidado, para os cuidadores é uma mistura de sentimentos nobres e impostos, no desenvolvimento de técnicas complexas que demandam dedicação e compromisso na execução. A qualidade de vida desses cuidadores se mostrou alterada, apresentando sobrecarga e isolamento social. Todos demostraram dificuldade inicial com a aceitação da nova realidade e acreditam em algo superior que explica tal situação. Quanto às técnicas de cuidado, evidenciou-se um despreparo e falta de apoio profissional. Com isso, notou-se a falta de preparo e capacitação desses cuidadores, insegurança, medo e dificuldades, assim como uma rede de apoio multiprofissional que pudesse proporcionar um bem-estar do dependente e do cuidador familiar.Universidade Federal de Mato GrossoBrasilInstitutos de Ciências da Saúde (ICS) – SinopUFMT CUS - SinopEnfermagem - CUSPrimão, Juliana Cristina Magnanihttp://lattes.cnpq.br/2537751518309392Primão, Juliana Cristina Magnanihttp://lattes.cnpq.br/2537751518309392Masochini, Rosângela Guerinohttp://lattes.cnpq.br/8307120602114632Moschen, Geseli Mariahttp://lattes.cnpq.br/9237340318835143Cardoso, Thaís Fogaça2019-04-17T14:05:42Z2017-11-272019-04-17T14:05:42Z2017-11-27info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/bachelorThesisinfo:eu-repo/semantics/datasetCARDOSO, Thaís Fogaça. O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar. 2017. 83f. Trabalho de Conclusão de Curso (Graduação em Enfermagem) – Universidade Federal de Mato Grosso, Instituto de Ciências da Saúde, Sinop, 2017.http://bdm.ufmt.br/handle/1/961porinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Monografias da UFMTinstname:Universidade Federal de Mato Grosso (UFMT)instacron:UFMT2019-04-20T07:00:22Zoai:localhost:1/961Biblioteca Digital de Monografiahttps://bdm.ufmt.br/PUBhttp://200.129.241.122/oai/requestopendoar:2019-04-20T07:00:22falseBiblioteca Digital de Monografiahttps://bdm.ufmt.br/PUBhttp://200.129.241.122/oai/requestbibliotecacentral@ufmt.br||opendoar:2019-04-20T07:00:22Biblioteca Digital de Monografias da UFMT - Universidade Federal de Mato Grosso (UFMT)false |
dc.title.none.fl_str_mv |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
title |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
spellingShingle |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar Cardoso, Thaís Fogaça CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM Cuidador familiar Pacientes domiciliares Enfermagem Educação em Saúde Reabilitação Family caregiver Home patients Nursing Health Education Rehabilitation |
title_short |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
title_full |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
title_fullStr |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
title_full_unstemmed |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
title_sort |
O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar |
author |
Cardoso, Thaís Fogaça |
author_facet |
Cardoso, Thaís Fogaça |
author_role |
author |
dc.contributor.none.fl_str_mv |
Primão, Juliana Cristina Magnani http://lattes.cnpq.br/2537751518309392 Primão, Juliana Cristina Magnani http://lattes.cnpq.br/2537751518309392 Masochini, Rosângela Guerino http://lattes.cnpq.br/8307120602114632 Moschen, Geseli Maria http://lattes.cnpq.br/9237340318835143 |
dc.contributor.author.fl_str_mv |
Cardoso, Thaís Fogaça |
dc.subject.por.fl_str_mv |
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM Cuidador familiar Pacientes domiciliares Enfermagem Educação em Saúde Reabilitação Family caregiver Home patients Nursing Health Education Rehabilitation |
topic |
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM Cuidador familiar Pacientes domiciliares Enfermagem Educação em Saúde Reabilitação Family caregiver Home patients Nursing Health Education Rehabilitation |
description |
The number of people with physical disabilities has increased significantly in our country, which requires that health services and socio-cultural context to be prepared to receive such demand. When someone acquires some kind of disability and becomes dependent, care is not only performed in a hospital setting, but for a certain time or even a lifetime, this individual will need a home support. Faced with an acquired dependency, family caregivers arise without previous preparation, unexpectedly and suddenly they start to take care of the patient. Knowing the difficulties found in the care and adaptation of the family caregiver is fundamental for the nursing team in order to promote an effective care geared to the needs of each caregiver. Thus, the objective of this research was to analyze the adaptation process of the caregiver font of the need of caring a relative who became dependent due to neurological damage. For that matter, a qualitative research was carried out with descriptive and exploratory approach, in which we recruited eight family caregivers in the Rehabilitation Unit (UDR) of Alta Floresta, State of Mato Grosso. The data collection was done through interviews recorded in audio, after the authorization and consent of the participant. The interviews were performed in the participant's house, in a quiet room, individually and away from the individual care, leaving the caregiver more secure and comfortable for the interview. The semi-structured questionnaire approached questions about the experiences as family caregiver, the difficulties, problems, support found in the day to day, the perspectives, feelings and the confrontation when this person became a domiciliary caregiver. The data were transcribed and analyzed using the thematic content analysis technique, which gave rise to eight categories: Care under the gaze of the caregiver; Emotional dependence in family caregivers; Religiosity and spirituality as a tool facing the new challenge; Between feeling and reason: is caring always an act of love?; Emotional overload, social isolation and impact on the family caregiver's quality of life; The impact of the new living condition and the acceptance process; Technical difficulties found in care and professional support network. In our results family caregivers have shown to be emotionally dependent on patients, with no prospect of not caring them, and that spirituality is a strong tool for facing this situation. Care for caregivers is a mixture of noble and imposed feelings, in the development of complex techniques that demand dedication and commitment in the execution. The quality of life of these caregivers was altered, presenting overload and social isolation. All demonstrated initial difficulty with the acceptance of the new reality and believe in something superior that explains such a situation. Regarding to care techniques, there was an unpreparedness and lack of professional support. To conclude, the lack of preparation and training of these caregivers, insecurity, fear and difficulties, as well as a multiprofessional support network that could provide the wellbeing of the dependent and the family caregiver were noted. |
publishDate |
2017 |
dc.date.none.fl_str_mv |
2017-11-27 2017-11-27 2019-04-17T14:05:42Z 2019-04-17T14:05:42Z |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/publishedVersion info:eu-repo/semantics/bachelorThesis info:eu-repo/semantics/dataset |
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bachelorThesis |
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publishedVersion |
dc.identifier.uri.fl_str_mv |
CARDOSO, Thaís Fogaça. O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar. 2017. 83f. Trabalho de Conclusão de Curso (Graduação em Enfermagem) – Universidade Federal de Mato Grosso, Instituto de Ciências da Saúde, Sinop, 2017. http://bdm.ufmt.br/handle/1/961 |
identifier_str_mv |
CARDOSO, Thaís Fogaça. O desabrochar do cuidado : a vivência de cuidadores frente à dependência adquirida do familiar. 2017. 83f. Trabalho de Conclusão de Curso (Graduação em Enfermagem) – Universidade Federal de Mato Grosso, Instituto de Ciências da Saúde, Sinop, 2017. |
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Universidade Federal de Mato Grosso Brasil Institutos de Ciências da Saúde (ICS) – Sinop UFMT CUS - Sinop Enfermagem - CUS |
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Universidade Federal de Mato Grosso Brasil Institutos de Ciências da Saúde (ICS) – Sinop UFMT CUS - Sinop Enfermagem - CUS |
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