International Latin American survey on pediatric intestinal failure team

Detalhes bibliográficos
Autor(a) principal: Spolidoro, José Vicente Noronha
Data de Publicação: 2021
Outros Autores: Goldani, Helena Ayako Sueno, Sandy, Natascha Silva, LASPGHAN Intestinal Failure Working Group
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Institucional da UFRGS
Texto Completo: http://hdl.handle.net/10183/250300
Resumo: There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF teams that managed children on home parenteral nutrition (HPN). Our questionnaire was based on a previously published European study with a similar goal. Twenty-four centers with pediatric IF teams in eight countries completed the survey, representing a total number of 316 children on HPN. The median number of children on parenteral nutrition (PN) at home per team was 5.5 (range 1–50). Teams consisted of the following members: pediatric gastroenterologist and a pediatric surgeon in all teams, dietician (95.8%), nurse (91.7%), social worker (79.2%), pharmacist (70.8%), oral therapist (62.5%), psychologist (58.3%), and physiotherapist (45.8%). The majority of the centers followed international standards of care on vascular access, parenteral and enteral nutrition, and IF medical and surgical management, but a significant percentage reported inability to monitor micronutrients, like vitamins A (37.5%), E (41.7%), B1 (66.7%), B2 (62.5%), B6 (62.5%), active B12 (58.3%); and trace elements—including zinc (29.2%), aluminum (75%), copper (37.5%), chromium (58.3%), selenium (58.3%), and manganese (58.3%). Conclusion: There is wide variation in how IF teams are structured in Latin America—while many countries have well-established Intestinal rehabilitation programs, a few do not follow international standards. Many countries did not report having an IF team managing pediatric patients on HPN.
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spelling Spolidoro, José Vicente NoronhaGoldani, Helena Ayako SuenoSandy, Natascha SilvaLASPGHAN Intestinal Failure Working Group2022-10-26T04:47:09Z20212072-6643http://hdl.handle.net/10183/250300001149840There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF teams that managed children on home parenteral nutrition (HPN). Our questionnaire was based on a previously published European study with a similar goal. Twenty-four centers with pediatric IF teams in eight countries completed the survey, representing a total number of 316 children on HPN. The median number of children on parenteral nutrition (PN) at home per team was 5.5 (range 1–50). Teams consisted of the following members: pediatric gastroenterologist and a pediatric surgeon in all teams, dietician (95.8%), nurse (91.7%), social worker (79.2%), pharmacist (70.8%), oral therapist (62.5%), psychologist (58.3%), and physiotherapist (45.8%). The majority of the centers followed international standards of care on vascular access, parenteral and enteral nutrition, and IF medical and surgical management, but a significant percentage reported inability to monitor micronutrients, like vitamins A (37.5%), E (41.7%), B1 (66.7%), B2 (62.5%), B6 (62.5%), active B12 (58.3%); and trace elements—including zinc (29.2%), aluminum (75%), copper (37.5%), chromium (58.3%), selenium (58.3%), and manganese (58.3%). Conclusion: There is wide variation in how IF teams are structured in Latin America—while many countries have well-established Intestinal rehabilitation programs, a few do not follow international standards. Many countries did not report having an IF team managing pediatric patients on HPN.application/pdfengNutrients. Basel. Vol. 13 (2021), 2754, 18 p.Nutricao parenteral no domicilioReabilitaçãoInsuficiência intestinalHome parenteral nutritionIntestinal failureIntestinal rehabilitationSurveyInternational Latin American survey on pediatric intestinal failure teamEstrangeiroinfo:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFRGSinstname:Universidade Federal do Rio Grande do Sul (UFRGS)instacron:UFRGSTEXT001149840.pdf.txt001149840.pdf.txtExtracted Texttext/plain53256http://www.lume.ufrgs.br/bitstream/10183/250300/2/001149840.pdf.txtbe106d95b4056d2d004046e0df508055MD52ORIGINAL001149840.pdfTexto completo (inglês)application/pdf657446http://www.lume.ufrgs.br/bitstream/10183/250300/1/001149840.pdf7c56fe1ef899d9ab5afa6536ca227156MD5110183/2503002022-10-27 04:50:08.286922oai:www.lume.ufrgs.br:10183/250300Repositório de PublicaçõesPUBhttps://lume.ufrgs.br/oai/requestopendoar:2022-10-27T07:50:08Repositório Institucional da UFRGS - Universidade Federal do Rio Grande do Sul (UFRGS)false
dc.title.pt_BR.fl_str_mv International Latin American survey on pediatric intestinal failure team
title International Latin American survey on pediatric intestinal failure team
spellingShingle International Latin American survey on pediatric intestinal failure team
Spolidoro, José Vicente Noronha
Nutricao parenteral no domicilio
Reabilitação
Insuficiência intestinal
Home parenteral nutrition
Intestinal failure
Intestinal rehabilitation
Survey
title_short International Latin American survey on pediatric intestinal failure team
title_full International Latin American survey on pediatric intestinal failure team
title_fullStr International Latin American survey on pediatric intestinal failure team
title_full_unstemmed International Latin American survey on pediatric intestinal failure team
title_sort International Latin American survey on pediatric intestinal failure team
author Spolidoro, José Vicente Noronha
author_facet Spolidoro, José Vicente Noronha
Goldani, Helena Ayako Sueno
Sandy, Natascha Silva
LASPGHAN Intestinal Failure Working Group
author_role author
author2 Goldani, Helena Ayako Sueno
Sandy, Natascha Silva
LASPGHAN Intestinal Failure Working Group
author2_role author
author
author
dc.contributor.author.fl_str_mv Spolidoro, José Vicente Noronha
Goldani, Helena Ayako Sueno
Sandy, Natascha Silva
LASPGHAN Intestinal Failure Working Group
dc.subject.por.fl_str_mv Nutricao parenteral no domicilio
Reabilitação
Insuficiência intestinal
topic Nutricao parenteral no domicilio
Reabilitação
Insuficiência intestinal
Home parenteral nutrition
Intestinal failure
Intestinal rehabilitation
Survey
dc.subject.eng.fl_str_mv Home parenteral nutrition
Intestinal failure
Intestinal rehabilitation
Survey
description There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF teams that managed children on home parenteral nutrition (HPN). Our questionnaire was based on a previously published European study with a similar goal. Twenty-four centers with pediatric IF teams in eight countries completed the survey, representing a total number of 316 children on HPN. The median number of children on parenteral nutrition (PN) at home per team was 5.5 (range 1–50). Teams consisted of the following members: pediatric gastroenterologist and a pediatric surgeon in all teams, dietician (95.8%), nurse (91.7%), social worker (79.2%), pharmacist (70.8%), oral therapist (62.5%), psychologist (58.3%), and physiotherapist (45.8%). The majority of the centers followed international standards of care on vascular access, parenteral and enteral nutrition, and IF medical and surgical management, but a significant percentage reported inability to monitor micronutrients, like vitamins A (37.5%), E (41.7%), B1 (66.7%), B2 (62.5%), B6 (62.5%), active B12 (58.3%); and trace elements—including zinc (29.2%), aluminum (75%), copper (37.5%), chromium (58.3%), selenium (58.3%), and manganese (58.3%). Conclusion: There is wide variation in how IF teams are structured in Latin America—while many countries have well-established Intestinal rehabilitation programs, a few do not follow international standards. Many countries did not report having an IF team managing pediatric patients on HPN.
publishDate 2021
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dc.relation.ispartof.pt_BR.fl_str_mv Nutrients. Basel. Vol. 13 (2021), 2754, 18 p.
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