The landscape of systemic lupus erythematosus in Brazil : an expert panel review and recommendations

• Autor(a) principal: Klumb, Evandro Mendes
• Data de Publicação: 2021
• Outros Autores: Scheinberg, Morton, Souza, Viviane Angelina de, Xavier, Ricardo Machado, Azevedo, Valderílio Feijó, McElwee, Elizabeth, Restrepo, Mariana Rico, Monticielo, Odirlei André
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Repositório Institucional da UFRGS
• Texto Completo: http://hdl.handle.net/10183/245611
• topic: Lupus eritematoso sistêmico; Nefrite lúpica; Terapêutica; Diagnóstico; Brasil; Systemic lupus erythematosus; Brazil; SLE; Lupus nephritis; LN; Innovative treatments

Purpose: The objective of this review is to address the barriers limiting access to diagnosis and treatment of systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil, specifically for patients in the public healthcare system, arguably those with the least access to innovation. Design: A selected panel of Brazilian experts in SLE/LN were provided with a series of relevant questions to address in a multi-day conference. During the conference, responses were discussed and edited by the entire group through numerous drafts and rounds of discussion until a consensus was achieved. Results: The authors propose specific and realistic recommendations for implementing access to innovative diagnostic tools and treatment alternatives for SLE/LN in Brazil. Moreover, in creating these recommendations, the authors strived to address barriers and impediments for technology adoption. The multidisciplinary care required for SLE/LN necessitates the collective participation of all involved stakeholders. Conclusion: A great need exists to expand the adoption of innovative diagnostic tools and treatments for SLE/LN not only in Brazil but also in most countries, as access issues remain an urgent demand. The recommendations presented in this article can serve as a strategy for new technology adoption in other countries in a similar situation.