The role of university extension in the context of the COVID-19 pandemic for families of children and adolescents with sickle cell disease: an experience report

• Autor(a) principal: Santiago, Luiza Gabriela Noronha
• Data de Publicação: 2021
• Outros Autores: Gesteira, Elaine Cristina Rodrigues, Cruz, Charlene Regina da, Carvalho, Larissa Mirelly Mendes, Santos, Letícia Camilo, Coelho, Nicolle Fraga, Correia, Nely Fernandes Xavier, Andrade, Thayane Ingrid Xavier de, Oliveira, Patrícia Peres de, Silveira, Edilene Aparecida Araújo da, Cortes, Vanessa Faria, Santos, Walquíria Jesusmara dos
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Research, Society and Development
• Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/19590
• topic: Educación en Salud; Anemia de Células Falciformes; COVID-19; Cuidado del Niño; Salud de la familia.; Educação em Saúde; Doença Falciforme; COVID-19; Cuidado da Criança; Saúde da família.; Health Education; Sickle Cell Disease; COVID-19; Child care; Family health.

Sickle Cell Disease (SCD) is the nomenclature used to designate a set of hemoglobinopathies resulting from a mutation in the beta-globin gene on chromosome 11. Among them, sickle cell anemia (HbSS) stands out for its high prevalence and high potential for morbidity and mortality. In this scenario, a family with a child or adolescent with SCD changes its biopsychosocial dynamic entirely, especially in the context of the COVID-19 pandemic, in which social distancing is recommended. This work intend to present the successful experience of the Extension Program "Educar Falciforme", linked to the Federal University of São João Del-Rei, a pillar in the support network for the management of patients and families with SDC, in a period that new processes, especially online, became necessary for the provision of healthcare for chronic non-communicable diseases (NCDs). The experience report and the bibliographical research were proposed as a methodology. Based on this experience, the results showed that despite adverse circumstances, virtual dynamics are necessary to maintain comprehensive care for families with SCD in a pandemic period. It is concluded that the extension is an important tool for support in the health community network.