Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review

Detalhes bibliográficos
Autor(a) principal: Guckert, Suelen Bernardo
Data de Publicação: 2022
Outros Autores: Arakawa-Belaunde, Aline Megumi
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/28818
Resumo: Objective: to investigate existing research in the literature on aspects related to the caregiver burden of a child diagnosed with Autism Spectrum Disorder (APT), such as: support network, access to health services for follow-up with specialized professionals, financial support and housing. Methodology: This is a literature review. The search for studies was carried out in eight databases, using the combination of the following descriptors: “Child”, “Autistic Spectrum Disorder” and “Caregiver”, as well as their respective synonyms in Portuguese, English and Spanish. Studies from the last 10 years were selected. Results: The caregivers are mainly female, with an average age of 42 years, more than half have some degree of training, this being higher education training or some other course. Caregivers have difficulties with the daily care of the child, financial difficulties and hardly have a support network. Conclusion: From the results obtained, it is observed that these caregivers are overloaded and need help, especially with regard to the care and needs of the child.
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spelling Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature reviewAspectos relacionados con la sobrecarga del cuidador de un niño con Trastorno del Espectro Autista: una revisión de la literaturaAspectos relacionados a sobrecarga do cuidador de uma criança com Transtorno do Espectro Autista: uma revisão de literaturaAutism Spectrum DisorderCaregiversChildTeaching.Trastorno del espectro autistaCuidadoresNiñoEnseñanza.Transtorno do Espectro AutistaCuidadorCriançaEnsino.Objective: to investigate existing research in the literature on aspects related to the caregiver burden of a child diagnosed with Autism Spectrum Disorder (APT), such as: support network, access to health services for follow-up with specialized professionals, financial support and housing. Methodology: This is a literature review. The search for studies was carried out in eight databases, using the combination of the following descriptors: “Child”, “Autistic Spectrum Disorder” and “Caregiver”, as well as their respective synonyms in Portuguese, English and Spanish. Studies from the last 10 years were selected. Results: The caregivers are mainly female, with an average age of 42 years, more than half have some degree of training, this being higher education training or some other course. Caregivers have difficulties with the daily care of the child, financial difficulties and hardly have a support network. Conclusion: From the results obtained, it is observed that these caregivers are overloaded and need help, especially with regard to the care and needs of the child.Objetivo: investigar investigaciones existentes en la literatura sobre aspectos relacionados con la sobrecarga del cuidador de un niño con diagnóstico de Trastorno del Espectro Autista (APT), tales como: red de apoyo, acceso a servicios de salud para seguimiento con profesionales especializados, apoyo económico y vivienda . Metodología: Se trata de una revisión bibliográfica. La búsqueda de estudios se realizó en ocho bases de datos, utilizando la combinación de los siguientes descriptores: “Child”, “Autistic Spectrum Disorder” y “Caregiver”, así como sus respectivos sinónimos en portugués, inglés y español. Se seleccionaron estudios de los últimos 10 años. Resultados: Los cuidadores son en su mayoría del sexo femenino, con una edad promedio de 42 años, más de la mitad tiene algún grado de formación, siendo esta formación superior o algún otro curso. Los cuidadores tienen dificultades con el cuidado diario del niño, dificultades económicas y apenas cuentan con una red de apoyo. Conclusión: A partir de los resultados obtenidos, se observa que estos cuidadores están sobrecargados y necesitan ayuda, sobre todo en lo que se refiere a los cuidados y necesidades del niño.Objetivo: Investigar as pesquisas existentes na literatura sobre os aspectos relacionados à sobrecarga do cuidador de uma criança com o diagnóstico de Transtorno do Espectro Autista, tais como: rede de apoio, acesso aos serviços de saúde para o acompanhamento com profissionais especializados, suporte financeiro e moradia. Metodologia: Trata-se de uma pesquisa do tipo revisão de literatura. A busca dos estudos foi realizada em oito bases de dados, utilizando a combinação dos seguintes descritores: “Criança”, “Transtorno do Espectro Autista” e “Cuidador”, bem como seus respectivos sinônimos nos idiomas português, inglês e espanhol. Foram selecionados estudos dos últimos 10 anos. Resultados: Os cuidadores são principalmente do gênero feminino, com idade média de 42 anos, mais da metade possui algum diploma de formação, sendo esta formação de ensino superior ou algum outro curso. Os cuidadores apresentam dificuldades com os cuidados diários com a criança, dificuldade financeira e dificilmente possuem rede de apoio.  Conclusão: A partir dos resultados obtidos, observa-se que esses cuidadores estão sobrecarregados e necessitam de auxílio, principalmente no que diz respeito aos cuidados e necessidades da criança.Research, Society and Development2022-04-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/2881810.33448/rsd-v11i6.28818Research, Society and Development; Vol. 11 No. 6; e34511628818Research, Society and Development; Vol. 11 Núm. 6; e34511628818Research, Society and Development; v. 11 n. 6; e345116288182525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/28818/25280Copyright (c) 2022 Suelen Bernardo Guckert; Aline Megumi Arakawa-Belaundehttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessGuckert, Suelen BernardoArakawa-Belaunde, Aline Megumi2022-05-13T18:04:10Zoai:ojs.pkp.sfu.ca:article/28818Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:46:05.362899Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
Aspectos relacionados con la sobrecarga del cuidador de un niño con Trastorno del Espectro Autista: una revisión de la literatura
Aspectos relacionados a sobrecarga do cuidador de uma criança com Transtorno do Espectro Autista: uma revisão de literatura
title Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
spellingShingle Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
Guckert, Suelen Bernardo
Autism Spectrum Disorder
Caregivers
Child
Teaching.
Trastorno del espectro autista
Cuidadores
Niño
Enseñanza.
Transtorno do Espectro Autista
Cuidador
Criança
Ensino.
title_short Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
title_full Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
title_fullStr Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
title_full_unstemmed Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
title_sort Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review
author Guckert, Suelen Bernardo
author_facet Guckert, Suelen Bernardo
Arakawa-Belaunde, Aline Megumi
author_role author
author2 Arakawa-Belaunde, Aline Megumi
author2_role author
dc.contributor.author.fl_str_mv Guckert, Suelen Bernardo
Arakawa-Belaunde, Aline Megumi
dc.subject.por.fl_str_mv Autism Spectrum Disorder
Caregivers
Child
Teaching.
Trastorno del espectro autista
Cuidadores
Niño
Enseñanza.
Transtorno do Espectro Autista
Cuidador
Criança
Ensino.
topic Autism Spectrum Disorder
Caregivers
Child
Teaching.
Trastorno del espectro autista
Cuidadores
Niño
Enseñanza.
Transtorno do Espectro Autista
Cuidador
Criança
Ensino.
description Objective: to investigate existing research in the literature on aspects related to the caregiver burden of a child diagnosed with Autism Spectrum Disorder (APT), such as: support network, access to health services for follow-up with specialized professionals, financial support and housing. Methodology: This is a literature review. The search for studies was carried out in eight databases, using the combination of the following descriptors: “Child”, “Autistic Spectrum Disorder” and “Caregiver”, as well as their respective synonyms in Portuguese, English and Spanish. Studies from the last 10 years were selected. Results: The caregivers are mainly female, with an average age of 42 years, more than half have some degree of training, this being higher education training or some other course. Caregivers have difficulties with the daily care of the child, financial difficulties and hardly have a support network. Conclusion: From the results obtained, it is observed that these caregivers are overloaded and need help, especially with regard to the care and needs of the child.
publishDate 2022
dc.date.none.fl_str_mv 2022-04-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/28818
10.33448/rsd-v11i6.28818
url https://rsdjournal.org/index.php/rsd/article/view/28818
identifier_str_mv 10.33448/rsd-v11i6.28818
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/28818/25280
dc.rights.driver.fl_str_mv Copyright (c) 2022 Suelen Bernardo Guckert; Aline Megumi Arakawa-Belaunde
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2022 Suelen Bernardo Guckert; Aline Megumi Arakawa-Belaunde
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 11 No. 6; e34511628818
Research, Society and Development; Vol. 11 Núm. 6; e34511628818
Research, Society and Development; v. 11 n. 6; e34511628818
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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