Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care

Detalhes bibliográficos
Autor(a) principal: Costa, Aline Rodrigues
Data de Publicação: 2020
Outros Autores: Nobre, Camila Magroski Goulart, Gomes, Giovana Calcagno, Ribeiro, Juliane Portella, Mota, Marina Soares, Minasi, Alex Sandra Avila
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/3707
Resumo: Objective: The presented research aims to know the changes in living from the diagnosis of the child/adolescent with HIV/AIDS and facilities in the exercised care. Methodology: Descriptive, exploratory and qualitative carried out in southern Brazil in 2018. Participated 20 family caregivers of HIV-positive children/adolescents. Data were collected through interviews and submitted to Content Analysis. Ethical principles were respected. Results: About changes, it was found that the family caregiver starts to dedicate themselves exclusively to care, they are concerned that only the nuclear family is dedicated to the care of the child/adolescent. They reported that the disease served to unite the familyand that there was a change in diet. Concerning the facilities, on the other hand, reported not having difficulties, as the child/adolescent does not bother, accepts all the care and routines proposed for their well-being. They stated that they have a life like that of any other child/adolescent, and have no difficulties. They mentioned that the child/adolescent accepts his diagnosis and does not suffer prejudice. They also referred obtaining a judicial benefit by giving them more time to care for the child. Conclusion: the importance of constant nursing work with families is perceived through health education and guidance, to instruct and prepare them to deal with existing routines and adversities.
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spelling Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in careCambios en el vivir a partir del diagnóstico del niño/adolescente con VIH/SIDA y facilidades encontradas en el cuidadoMudanças no viver a partir do diagnóstico da criança/adolescente com HIV/AIDS e facilidades encontradas no cuidadoChildAdolescentFamilyAcquired Immunodeficiency SyndromeNursing.CriançaAdolescenteFamíliaSíndrome de Imunodeficiência AdquiridaEnfermagem.NiñoAdolescenteFamiliaSíndrome de Inmunodeficiencia AdquiridaEnfermería.Objective: The presented research aims to know the changes in living from the diagnosis of the child/adolescent with HIV/AIDS and facilities in the exercised care. Methodology: Descriptive, exploratory and qualitative carried out in southern Brazil in 2018. Participated 20 family caregivers of HIV-positive children/adolescents. Data were collected through interviews and submitted to Content Analysis. Ethical principles were respected. Results: About changes, it was found that the family caregiver starts to dedicate themselves exclusively to care, they are concerned that only the nuclear family is dedicated to the care of the child/adolescent. They reported that the disease served to unite the familyand that there was a change in diet. Concerning the facilities, on the other hand, reported not having difficulties, as the child/adolescent does not bother, accepts all the care and routines proposed for their well-being. They stated that they have a life like that of any other child/adolescent, and have no difficulties. They mentioned that the child/adolescent accepts his diagnosis and does not suffer prejudice. They also referred obtaining a judicial benefit by giving them more time to care for the child. Conclusion: the importance of constant nursing work with families is perceived through health education and guidance, to instruct and prepare them to deal with existing routines and adversities.Objetivo: La investigación presentada tiene como objetivo conocer los cambios en la vida a partir del diagnóstico del niño/adolescente con VIH/SIDA y las facilidades en la atención brindada. Metodología: descriptiva, exploratoria y cualitativa realizada en el sur de Brasil en 2018. Participaron 20 cuidadores familiares de niños/adolescentes VIH positivos. Los datos fueron recolectados a través de entrevistas y enviados a Análisis de Contenido. Se respetaron los principios éticos. Resultados:En cuanto a los cambios, se descubrió que el cuidador familiar comienza a dedicarse exclusivamente al cuidado, les preocupa que solo la familia nuclear se dedique al cuidado del niño/adolescente. Informaron que la enfermedad sirvió para unir a la familia y que hubo un cambio en la dieta. Las instalaciones, por otro lado, informaron que no tienen dificultades, ya que el niño/adolescente no molesta y acepta todos los cuidados y rutinas que se proponen para su bienestar. Afirmaron que tienen una vida como la de cualquier otro niño/adolescente y que no tienen dificultades. Mencionaron que el niño/adolescente acepta su diagnóstico y no sufre prejuicios. También se refirieron a la obtención de un beneficio judicial dándoles más tiempo para cuidar al niño. Conclusión: la importancia del trabajo constante de enfermería con las familias se percibe a través de la educación y orientación en salud, para instruirlos y prepararlos para enfrentar las rutinas y adversidades existentes.Objetivo: A pesquisa que se apresenta tem como objetivo conhecer as mudanças no viver a partir do diagnóstico da criança/adolescente com HIV/AIDS e facilidades no cuidado exercido. Metodologia: descritiva, exploratória e qualitativa realizada no sul do Brasil em 2018. Participaram 20 familiares cuidadores de crianças/adolescentes soropositivos. Os dados foram coletados por entrevistas e submetidos à Análise de Conteúdo. Respeitaram-se os princípios éticos. Resultados: Quanto as mudanças, verificou-se que o familiar cuidador passa a dedicar-se exclusivamente ao cuidado, preocupam-se que apenas a família nuclear dedique-se ao cuidado a criança/adolescente. Referiram que a doença serviu para unir a família e que houve uma mudança na alimentação. Já as facilidades, referiram não ter dificuldades, pois a criança/adolescente não incomoda, aceita todos os cuidados e rotinas que são propostos para o seu bem estar. Afirmaram que a mesma possui uma vida como a de qualquer outra criança/adolescente, não possuindo dificuldades. Referiram que a criança/adolescente aceita o seu diagnóstico e não sofre preconceitos. Também referiram à obtenção de um benefício judicial fazendo com que tivesse mais tempo para cuidar da criança. Conclusão: percebe-se a importância da atuação constante da enfermagem com as famílias por meio da educação em saúde e das orientações, para instrui-los e prepará-los para lidar com as rotinas e adversidades existentes.Research, Society and Development2020-04-28info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/370710.33448/rsd-v9i7.3707Research, Society and Development; Vol. 9 No. 7; e55973707Research, Society and Development; Vol. 9 Núm. 7; e55973707Research, Society and Development; v. 9 n. 7; e559737072525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/3707/3238Copyright (c) 2020 Aline Rodrigues Costa, Camila Magroski Goulart Nobre, Giovana Calcagno Gomes, Juliane Portella Ribeiro, Marina Soares Mota, Alex Sandra Avila Minasiinfo:eu-repo/semantics/openAccessCosta, Aline RodriguesNobre, Camila Magroski GoulartGomes, Giovana CalcagnoRibeiro, Juliane PortellaMota, Marina SoaresMinasi, Alex Sandra Avila2020-08-20T18:05:03Zoai:ojs.pkp.sfu.ca:article/3707Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:27:49.026545Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
Cambios en el vivir a partir del diagnóstico del niño/adolescente con VIH/SIDA y facilidades encontradas en el cuidado
Mudanças no viver a partir do diagnóstico da criança/adolescente com HIV/AIDS e facilidades encontradas no cuidado
title Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
spellingShingle Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
Costa, Aline Rodrigues
Child
Adolescent
Family
Acquired Immunodeficiency Syndrome
Nursing.
Criança
Adolescente
Família
Síndrome de Imunodeficiência Adquirida
Enfermagem.
Niño
Adolescente
Familia
Síndrome de Inmunodeficiencia Adquirida
Enfermería.
title_short Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
title_full Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
title_fullStr Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
title_full_unstemmed Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
title_sort Changes in living from the child / adolescent diagnosis with HIV/AIDS and facilities found in care
author Costa, Aline Rodrigues
author_facet Costa, Aline Rodrigues
Nobre, Camila Magroski Goulart
Gomes, Giovana Calcagno
Ribeiro, Juliane Portella
Mota, Marina Soares
Minasi, Alex Sandra Avila
author_role author
author2 Nobre, Camila Magroski Goulart
Gomes, Giovana Calcagno
Ribeiro, Juliane Portella
Mota, Marina Soares
Minasi, Alex Sandra Avila
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Costa, Aline Rodrigues
Nobre, Camila Magroski Goulart
Gomes, Giovana Calcagno
Ribeiro, Juliane Portella
Mota, Marina Soares
Minasi, Alex Sandra Avila
dc.subject.por.fl_str_mv Child
Adolescent
Family
Acquired Immunodeficiency Syndrome
Nursing.
Criança
Adolescente
Família
Síndrome de Imunodeficiência Adquirida
Enfermagem.
Niño
Adolescente
Familia
Síndrome de Inmunodeficiencia Adquirida
Enfermería.
topic Child
Adolescent
Family
Acquired Immunodeficiency Syndrome
Nursing.
Criança
Adolescente
Família
Síndrome de Imunodeficiência Adquirida
Enfermagem.
Niño
Adolescente
Familia
Síndrome de Inmunodeficiencia Adquirida
Enfermería.
description Objective: The presented research aims to know the changes in living from the diagnosis of the child/adolescent with HIV/AIDS and facilities in the exercised care. Methodology: Descriptive, exploratory and qualitative carried out in southern Brazil in 2018. Participated 20 family caregivers of HIV-positive children/adolescents. Data were collected through interviews and submitted to Content Analysis. Ethical principles were respected. Results: About changes, it was found that the family caregiver starts to dedicate themselves exclusively to care, they are concerned that only the nuclear family is dedicated to the care of the child/adolescent. They reported that the disease served to unite the familyand that there was a change in diet. Concerning the facilities, on the other hand, reported not having difficulties, as the child/adolescent does not bother, accepts all the care and routines proposed for their well-being. They stated that they have a life like that of any other child/adolescent, and have no difficulties. They mentioned that the child/adolescent accepts his diagnosis and does not suffer prejudice. They also referred obtaining a judicial benefit by giving them more time to care for the child. Conclusion: the importance of constant nursing work with families is perceived through health education and guidance, to instruct and prepare them to deal with existing routines and adversities.
publishDate 2020
dc.date.none.fl_str_mv 2020-04-28
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/3707
10.33448/rsd-v9i7.3707
url https://rsdjournal.org/index.php/rsd/article/view/3707
identifier_str_mv 10.33448/rsd-v9i7.3707
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/3707/3238
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 9 No. 7; e55973707
Research, Society and Development; Vol. 9 Núm. 7; e55973707
Research, Society and Development; v. 9 n. 7; e55973707
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
_version_ 1797052802424373248

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