Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19)
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/6661 |
Resumo: | This is a scientific essay aiming to reflect the experiences of family caregivers of people with chronic kidney disease undergoing hemodialysis during the Novel Corona Virus Pandemic (COVID-19). Its main argument is that the imperative need for keeping the person in hemodialysis sessions in the period when health agencies recommend social isolation has triggered and intensified negative feelings in the family caregivers. The foundations for reflection include: health condition vulnerability of the family member who performs hemodialysis, frustration before the impossibility of keeping him/her in social isolation, apprehension and fear of his/her own exposure to the risk of getting the virus and transmit it to the person under his/her care, or even falling ill and die leaving the sick person without family support. The pandemic is considered to have challenged people to be creative and to reframe their spaces and relationships to overcome fear, pessimistic or alarmist thoughts. Thus, personal self-achievement encouragement, discovery of pleasant activities, practice of hobbies, conversations with and listening to family members and friends even if it is through the virtual network, sharing of emotions and feelings, spiritual and religious practice, and dialysis unit formal support with institutional reorganization, expansion of care and psychological support measures, can serve as a basis for family caregivers and sick people undergoing hemodialysis to overcome this adverse period. |
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Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19)Experiencias de familiares de personas en hemodiálisis durante la nueva pandemia del virus corona (COVID-19)Vivências de familiares de pessoas em hemodiálise durante a pandemia do novo corona vírus (COVID-19)HemodiáliseDoença renal crônicaFamiliar cuidadorPandemiaCOVID-19.HemodialysisChronic kidney diseaseFamily caregiverPandemicCOVID-19.HemodiálisisEnfermedad renal crónicaCuidador familiarPandemiaCOVID-19.This is a scientific essay aiming to reflect the experiences of family caregivers of people with chronic kidney disease undergoing hemodialysis during the Novel Corona Virus Pandemic (COVID-19). Its main argument is that the imperative need for keeping the person in hemodialysis sessions in the period when health agencies recommend social isolation has triggered and intensified negative feelings in the family caregivers. The foundations for reflection include: health condition vulnerability of the family member who performs hemodialysis, frustration before the impossibility of keeping him/her in social isolation, apprehension and fear of his/her own exposure to the risk of getting the virus and transmit it to the person under his/her care, or even falling ill and die leaving the sick person without family support. The pandemic is considered to have challenged people to be creative and to reframe their spaces and relationships to overcome fear, pessimistic or alarmist thoughts. Thus, personal self-achievement encouragement, discovery of pleasant activities, practice of hobbies, conversations with and listening to family members and friends even if it is through the virtual network, sharing of emotions and feelings, spiritual and religious practice, and dialysis unit formal support with institutional reorganization, expansion of care and psychological support measures, can serve as a basis for family caregivers and sick people undergoing hemodialysis to overcome this adverse period. Este es un ensayo científico destinado para reflexionar sobre las experiencias de cuidadores familiares de personas con enfermedad renal crónica sometidas a hemodiálisis durante el COVID-19. Su argumento principal es que la necesidad imperiosa de mantener a la persona en sesiones de hemodiálisis cuando agencias de salud recomiendan aislamiento social ha desencadenado e intensificado sentimientos negativos en cuidadores familiares, especialmente considerando la vulnerabilidad de condiciones de salud del miembro de la familia que realiza hemodiálisis, frustración ante la imposibilidad de mantenerlo en aislamiento social y aprensión y miedo a su propia exposición al riesgo de contraer el virus y transmitirlo a la persona bajo su cuidado, o incluso enfermarse y morir dejando a la persona enferma sin el apoyo familiar. Se considera que la pandemia ha desafiado a las personas a ser creativas y a redefinir sus espacios y relaciones para superar el miedo, pensamientos alarmistas o pesimistas. Por lo tanto, el fomento de autorrealización personal, el descubrimiento de actividades placenteras, la práctica de pasatiempos, conversaciones y escucha con familiares y amigos, incluso a través de la red virtual, el intercambio de emociones y sentimientos, la práctica espiritual y religiosa, y el apoyo formal de la unidad de diálisis con medidas de reorganización institucional, expansión de medidas de atención y apoyo psicológico, pueden servir como base para cuidadores familiares y personas enfermas sometidas a hemodiálisis superen este período adverso.Trata-se de ensaio científico que tem como objetivo refletir sobre as vivências de familiares cuidadores de pessoas com doença renal crônica submetidas à hemodiálise durante a Pandemia do Novo Corona Vírus (COVID-19). Tem como principal argumento que a imperiosa necessidade de manter a pessoa em sessões de hemodiálise no período em que os órgãos de saúde recomendam o isolamento social tem desencadeado e intensificado sentimentos negativos nos familiares cuidadores. Como fundamentos para a reflexão tem-se: a vulnerabilidade das condições de saúde do familiar que realiza hemodiálise; a frustração ante a impossibilidade de mantê-lo em isolamento social; e a apreensão e o medo da própria exposição ao risco de adquirir o vírus e transmitir à pessoa sob seus cuidados, ou ainda, adoecer e falecer deixando a pessoa adoecida sem suporte familiar. Considera-se que a pandemia tem desafiado às pessoas a serem criativas e ressignificarem seus espaços e relações para superar o medo, pensamentos alarmistas ou pessimistas. Assim, o estímulo a autorrealização pessoal, a descoberta de atividades prazerosas, a prática de hobbies, as conversas e escutas com familiares e amigos mesmo que pela rede virtual, o compartilhamento de emoções e sentimentos, a prática espiritual e religiosa, e o apoio formal da unidade de diálise com reorganização institucional, ampliação de medidas de cuidado e de suporte psicológico, podem servir de base para que os familiares cuidadores e as pessoas adoecidas submetidas à hemodiálise superem esse período adverso.Research, Society and Development2020-08-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/666110.33448/rsd-v9i8.6661Research, Society and Development; Vol. 9 No. 8; e887986661Research, Society and Development; Vol. 9 Núm. 8; e887986661Research, Society and Development; v. 9 n. 8; e8879866612525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/6661/5979Copyright (c) 2020 Aline Mota de Almeida, Elaine Pedreira Rabinovichhttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessAlmeida, Aline Mota deRabinovich, Elaine Pedreira2020-08-20T18:00:17Zoai:ojs.pkp.sfu.ca:article/6661Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:29:42.308045Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) Experiencias de familiares de personas en hemodiálisis durante la nueva pandemia del virus corona (COVID-19) Vivências de familiares de pessoas em hemodiálise durante a pandemia do novo corona vírus (COVID-19) |
title |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
spellingShingle |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) Almeida, Aline Mota de Hemodiálise Doença renal crônica Familiar cuidador Pandemia COVID-19. Hemodialysis Chronic kidney disease Family caregiver Pandemic COVID-19. Hemodiálisis Enfermedad renal crónica Cuidador familiar Pandemia COVID-19. |
title_short |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
title_full |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
title_fullStr |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
title_full_unstemmed |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
title_sort |
Experiences of family members of people on hemodialysis during the novel corona virus pandemic (COVID-19) |
author |
Almeida, Aline Mota de |
author_facet |
Almeida, Aline Mota de Rabinovich, Elaine Pedreira |
author_role |
author |
author2 |
Rabinovich, Elaine Pedreira |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Almeida, Aline Mota de Rabinovich, Elaine Pedreira |
dc.subject.por.fl_str_mv |
Hemodiálise Doença renal crônica Familiar cuidador Pandemia COVID-19. Hemodialysis Chronic kidney disease Family caregiver Pandemic COVID-19. Hemodiálisis Enfermedad renal crónica Cuidador familiar Pandemia COVID-19. |
topic |
Hemodiálise Doença renal crônica Familiar cuidador Pandemia COVID-19. Hemodialysis Chronic kidney disease Family caregiver Pandemic COVID-19. Hemodiálisis Enfermedad renal crónica Cuidador familiar Pandemia COVID-19. |
description |
This is a scientific essay aiming to reflect the experiences of family caregivers of people with chronic kidney disease undergoing hemodialysis during the Novel Corona Virus Pandemic (COVID-19). Its main argument is that the imperative need for keeping the person in hemodialysis sessions in the period when health agencies recommend social isolation has triggered and intensified negative feelings in the family caregivers. The foundations for reflection include: health condition vulnerability of the family member who performs hemodialysis, frustration before the impossibility of keeping him/her in social isolation, apprehension and fear of his/her own exposure to the risk of getting the virus and transmit it to the person under his/her care, or even falling ill and die leaving the sick person without family support. The pandemic is considered to have challenged people to be creative and to reframe their spaces and relationships to overcome fear, pessimistic or alarmist thoughts. Thus, personal self-achievement encouragement, discovery of pleasant activities, practice of hobbies, conversations with and listening to family members and friends even if it is through the virtual network, sharing of emotions and feelings, spiritual and religious practice, and dialysis unit formal support with institutional reorganization, expansion of care and psychological support measures, can serve as a basis for family caregivers and sick people undergoing hemodialysis to overcome this adverse period. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-08-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/6661 10.33448/rsd-v9i8.6661 |
url |
https://rsdjournal.org/index.php/rsd/article/view/6661 |
identifier_str_mv |
10.33448/rsd-v9i8.6661 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/6661/5979 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2020 Aline Mota de Almeida, Elaine Pedreira Rabinovich http://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2020 Aline Mota de Almeida, Elaine Pedreira Rabinovich http://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 9 No. 8; e887986661 Research, Society and Development; Vol. 9 Núm. 8; e887986661 Research, Society and Development; v. 9 n. 8; e887986661 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052655297626112 |