Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers

Detalhes bibliográficos
Autor(a) principal: Rocha, Ana Paula
Data de Publicação: 2008
Outros Autores: Afonso, Daniella Romany Viana, Morais, Rosane Luzia de Souza
Tipo de documento: Artigo
Idioma: por
Título da fonte: Fisioterapia e Pesquisa
Texto Completo: https://www.revistas.usp.br/fpusp/article/view/12047
Resumo: When dealing with the child's disabilities, caregivers of children with cerebral palsy (CP) are likely to experience physical or psychological suffering, which may impact their health-related quality of life (QoL). This study searched for a correlation between CP children's functional performance and their caregivers' QoL, also looking for a correlation between gross motor functional level and functional performance in children with CP. The QoL of 17 caregivers of children with CP was assessed by the Short-Form Health Survey (SF-36); children's functional performance was evaluated by means of the Gross Motor Function Classification System (GMFCS) and the Pediatric Evaluation of Disability Inventory (PEDI). Data were statistically analysed. No significant correlation was found between children's GMFCS classification or PEDI scores and their caregivers scores in SF-36. A negative, strong correlation was found between scores at PEDI and GMFCS. The quality of life of caregivers of children with CP was hence not influenced by the children's level of functional limitation. GMFCS has shown to be a good predictor of functional performance in children with cerebral palsy.
id USP-9_0ad76eff41deae370111aae329140c40
oai_identifier_str oai:revistas.usp.br:article/12047
network_acronym_str USP-9
network_name_str Fisioterapia e Pesquisa
repository_id_str
spelling Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers Relação entre desempenho funcional de crianças com paralisia cerebral e qualidade de vida relacionada à saúde de seus cuidadores CriançaCuidadoresParalisia cerebralQualidade de vidaCaregiversCerebral palsyChildQuality of life When dealing with the child's disabilities, caregivers of children with cerebral palsy (CP) are likely to experience physical or psychological suffering, which may impact their health-related quality of life (QoL). This study searched for a correlation between CP children's functional performance and their caregivers' QoL, also looking for a correlation between gross motor functional level and functional performance in children with CP. The QoL of 17 caregivers of children with CP was assessed by the Short-Form Health Survey (SF-36); children's functional performance was evaluated by means of the Gross Motor Function Classification System (GMFCS) and the Pediatric Evaluation of Disability Inventory (PEDI). Data were statistically analysed. No significant correlation was found between children's GMFCS classification or PEDI scores and their caregivers scores in SF-36. A negative, strong correlation was found between scores at PEDI and GMFCS. The quality of life of caregivers of children with CP was hence not influenced by the children's level of functional limitation. GMFCS has shown to be a good predictor of functional performance in children with cerebral palsy. Cuidadores de crianças com paralisia cerebral (PC), ao lidar com as incapacidades da criança, são suscetíveis a detrimento de sua saúde física e bem-estar psicológico, o que pode ter impacto em sua qualidade de vida relacionada à saúde (QV). O objetivo deste estudo foi verificar se há correlação entre o desempenho funcional de crianças com PC e a QV de seus cuidadores, verificando também eventual correlação entre o nível de função motora e o desempenho funcional em crianças com PC. A QV de 17 cuidadores de crianças com PC foi avaliada pelo questionário Short-Form Health Survey (SF-36); a função motora e o desempenho funcional das respectivas crianças foram avaliados pelo Gross Motor Function Classification System (GMFCS) e pelo Inventário de Avaliação Pediátrica de Disfunção (PEDI). Os dados foram tratados estatisticamente. Nenhuma correlação significativa foi encontrada entre a classificação no GMFCS ou o escore no PEDI e os escores dos cuidadores no SF-36. Foi encontrada forte correlação negativa entre os escores das crianças no PEDI e os níveis do GMFCS. A qualidade de vida de cuidadores de crianças com PC não foi pois influenciada pelo grau de limitação funcional de suas crianças. No entanto, o GMFCS mostrou-se um bom preditor de funcionalidade em crianças com paralisia cerebral. Universidade de São Paulo. Faculdade de Medicina2008-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.revistas.usp.br/fpusp/article/view/1204710.1590/S1809-29502008000300013Fisioterapia e Pesquisa; Vol. 15 No. 3 (2008); 292-297 Fisioterapia e Pesquisa; Vol. 15 Núm. 3 (2008); 292-297 Fisioterapia e Pesquisa; v. 15 n. 3 (2008); 292-297 2316-91171809-2950reponame:Fisioterapia e Pesquisainstname:Universidade de São Paulo (USP)instacron:USPporhttps://www.revistas.usp.br/fpusp/article/view/12047/13824Copyright (c) 2017 Fisioterapia e Pesquisainfo:eu-repo/semantics/openAccessRocha, Ana PaulaAfonso, Daniella Romany VianaMorais, Rosane Luzia de Souza2012-05-13T15:50:28Zoai:revistas.usp.br:article/12047Revistahttp://www.revistas.usp.br/fpuspPUBhttps://www.revistas.usp.br/fpusp/oai||revfisio@usp.br2316-91171809-2950opendoar:2012-05-13T15:50:28Fisioterapia e Pesquisa - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
Relação entre desempenho funcional de crianças com paralisia cerebral e qualidade de vida relacionada à saúde de seus cuidadores
title Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
spellingShingle Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
Rocha, Ana Paula
Criança
Cuidadores
Paralisia cerebral
Qualidade de vida
Caregivers
Cerebral palsy
Child
Quality of life
title_short Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
title_full Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
title_fullStr Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
title_full_unstemmed Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
title_sort Relationship between functional performance of children with cerebral palsy and health-related quality of life of their caregivers
author Rocha, Ana Paula
author_facet Rocha, Ana Paula
Afonso, Daniella Romany Viana
Morais, Rosane Luzia de Souza
author_role author
author2 Afonso, Daniella Romany Viana
Morais, Rosane Luzia de Souza
author2_role author
author
dc.contributor.author.fl_str_mv Rocha, Ana Paula
Afonso, Daniella Romany Viana
Morais, Rosane Luzia de Souza
dc.subject.por.fl_str_mv Criança
Cuidadores
Paralisia cerebral
Qualidade de vida
Caregivers
Cerebral palsy
Child
Quality of life
topic Criança
Cuidadores
Paralisia cerebral
Qualidade de vida
Caregivers
Cerebral palsy
Child
Quality of life
description When dealing with the child's disabilities, caregivers of children with cerebral palsy (CP) are likely to experience physical or psychological suffering, which may impact their health-related quality of life (QoL). This study searched for a correlation between CP children's functional performance and their caregivers' QoL, also looking for a correlation between gross motor functional level and functional performance in children with CP. The QoL of 17 caregivers of children with CP was assessed by the Short-Form Health Survey (SF-36); children's functional performance was evaluated by means of the Gross Motor Function Classification System (GMFCS) and the Pediatric Evaluation of Disability Inventory (PEDI). Data were statistically analysed. No significant correlation was found between children's GMFCS classification or PEDI scores and their caregivers scores in SF-36. A negative, strong correlation was found between scores at PEDI and GMFCS. The quality of life of caregivers of children with CP was hence not influenced by the children's level of functional limitation. GMFCS has shown to be a good predictor of functional performance in children with cerebral palsy.
publishDate 2008
dc.date.none.fl_str_mv 2008-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/fpusp/article/view/12047
10.1590/S1809-29502008000300013
url https://www.revistas.usp.br/fpusp/article/view/12047
identifier_str_mv 10.1590/S1809-29502008000300013
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/fpusp/article/view/12047/13824
dc.rights.driver.fl_str_mv Copyright (c) 2017 Fisioterapia e Pesquisa
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2017 Fisioterapia e Pesquisa
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
dc.source.none.fl_str_mv Fisioterapia e Pesquisa; Vol. 15 No. 3 (2008); 292-297
Fisioterapia e Pesquisa; Vol. 15 Núm. 3 (2008); 292-297
Fisioterapia e Pesquisa; v. 15 n. 3 (2008); 292-297
2316-9117
1809-2950
reponame:Fisioterapia e Pesquisa
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Fisioterapia e Pesquisa
collection Fisioterapia e Pesquisa
repository.name.fl_str_mv Fisioterapia e Pesquisa - Universidade de São Paulo (USP)
repository.mail.fl_str_mv ||revfisio@usp.br
_version_ 1787713733423792128

Registros relacionados