Ketogenic diet in the treatment of intractable epilepsy in children: mothers view

Detalhes bibliográficos
Autor(a) principal: TOMÉ, Alexsandra
Data de Publicação: 2003
Outros Autores: Schmidt Passos de AMORIM, Suely Teresinha, Baptista MENDONÇA, Deise Regina
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista de Nutrição
Texto Completo: https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132
Resumo: The purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. 
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spelling Ketogenic diet in the treatment of intractable epilepsy in children: mothers viewDieta cetogênica no tratamento das epilepsias graves da infância: percepção das mãesketogenic dietepilepsyprofessional performancechilddieta cetogênicaepilepsiaatuação profissionalcriançaThe purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. Este estudo teve como propósito perceber os sentimentos e dificuldades de mães de crianças com epilepsia resistente ao tratamento medicamentoso em relação à adoção e ao seguimento da dieta cetogênica, bem como auxiliar a influência dessa dietoterapia na rotina familiar. A metodologia utilizada foi a da pesquisa qualitativa, tendo como técnica de coleta de dados a entrevista semi-estruturada, realizada com três mães atendidas pelo Centro de Neuropediatria do Hospital de Clínicas da Universidade Federal do Paraná. Em virtude das características da dieta cetogênica, os resultados mostram que o período inicial, o da sua adoção, é bastante difícil, tanto para a criança como para toda a sua família. Entretanto, com a diminuição das crisesepilépticas e a adaptação ao tratamento, uma mudança de sentimentos é observada. O estudo revela também a importância da atuação de profissionais, não apenas com competência técnica mas também com sensibilidade e empatia, no apoio às famílias das crianças em tratamento.Núcleo de Editoração – PUC-Campinas2003-06-25info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/9132Brazilian Journal of Nutrition; Vol. 16 No. 2 (2003): Revista de NutriçãoRevista de Nutrição; Vol. 16 Núm. 2 (2003): Revista de NutriçãoRevista de Nutrição; v. 16 n. 2 (2003): Revista de Nutrição1678-9865reponame:Revista de Nutriçãoinstname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/9132/6515Copyright (c) 2023 Alexsandra TOMÉ, Suely Teresinha Schmidt Passos de AMORIM, Deise Regina Baptista MENDONÇAhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessTOMÉ, Alexsandra Schmidt Passos de AMORIM, Suely Teresinha Baptista MENDONÇA, Deise Regina 2024-04-08T14:11:15Zoai:ojs.periodicos.puc-campinas.edu.br:article/9132Revistahttp://www.scielo.br/rnPRIhttps://periodicos.puc-campinas.edu.br/nutricao/oai||sbi.submissionrn@puc-campinas.edu.br1678-98651415-5273opendoar:2024-04-08T14:11:15Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
Dieta cetogênica no tratamento das epilepsias graves da infância: percepção das mães
title Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
spellingShingle Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
TOMÉ, Alexsandra
ketogenic diet
epilepsy
professional performance
child
dieta cetogênica
epilepsia
atuação profissional
criança
title_short Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
title_full Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
title_fullStr Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
title_full_unstemmed Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
title_sort Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
author TOMÉ, Alexsandra
author_facet TOMÉ, Alexsandra
Schmidt Passos de AMORIM, Suely Teresinha
Baptista MENDONÇA, Deise Regina
author_role author
author2 Schmidt Passos de AMORIM, Suely Teresinha
Baptista MENDONÇA, Deise Regina
author2_role author
author
dc.contributor.author.fl_str_mv TOMÉ, Alexsandra
Schmidt Passos de AMORIM, Suely Teresinha
Baptista MENDONÇA, Deise Regina
dc.subject.por.fl_str_mv ketogenic diet
epilepsy
professional performance
child
dieta cetogênica
epilepsia
atuação profissional
criança
topic ketogenic diet
epilepsy
professional performance
child
dieta cetogênica
epilepsia
atuação profissional
criança
description The purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. 
publishDate 2003
dc.date.none.fl_str_mv 2003-06-25
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132
url https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132/6515
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Núcleo de Editoração – PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração – PUC-Campinas
dc.source.none.fl_str_mv Brazilian Journal of Nutrition; Vol. 16 No. 2 (2003): Revista de Nutrição
Revista de Nutrição; Vol. 16 Núm. 2 (2003): Revista de Nutrição
Revista de Nutrição; v. 16 n. 2 (2003): Revista de Nutrição
1678-9865
reponame:Revista de Nutrição
instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron:PUC_CAMP
instname_str Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron_str PUC_CAMP
institution PUC_CAMP
reponame_str Revista de Nutrição
collection Revista de Nutrição
repository.name.fl_str_mv Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
repository.mail.fl_str_mv ||sbi.submissionrn@puc-campinas.edu.br
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