Ketogenic diet in the treatment of intractable epilepsy in children: mothers view
Autor(a) principal: | |
---|---|
Data de Publicação: | 2003 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista de Nutrição |
Texto Completo: | https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132 |
Resumo: | The purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. |
id |
PUC_CAMP-2_28a7331ecb11f388a8b81faf684e583d |
---|---|
oai_identifier_str |
oai:ojs.periodicos.puc-campinas.edu.br:article/9132 |
network_acronym_str |
PUC_CAMP-2 |
network_name_str |
Revista de Nutrição |
repository_id_str |
|
spelling |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers viewDieta cetogênica no tratamento das epilepsias graves da infância: percepção das mãesketogenic dietepilepsyprofessional performancechilddieta cetogênicaepilepsiaatuação profissionalcriançaThe purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. Este estudo teve como propósito perceber os sentimentos e dificuldades de mães de crianças com epilepsia resistente ao tratamento medicamentoso em relação à adoção e ao seguimento da dieta cetogênica, bem como auxiliar a influência dessa dietoterapia na rotina familiar. A metodologia utilizada foi a da pesquisa qualitativa, tendo como técnica de coleta de dados a entrevista semi-estruturada, realizada com três mães atendidas pelo Centro de Neuropediatria do Hospital de Clínicas da Universidade Federal do Paraná. Em virtude das características da dieta cetogênica, os resultados mostram que o período inicial, o da sua adoção, é bastante difícil, tanto para a criança como para toda a sua família. Entretanto, com a diminuição das crisesepilépticas e a adaptação ao tratamento, uma mudança de sentimentos é observada. O estudo revela também a importância da atuação de profissionais, não apenas com competência técnica mas também com sensibilidade e empatia, no apoio às famílias das crianças em tratamento.Núcleo de Editoração – PUC-Campinas2003-06-25info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/9132Brazilian Journal of Nutrition; Vol. 16 No. 2 (2003): Revista de NutriçãoRevista de Nutrição; Vol. 16 Núm. 2 (2003): Revista de NutriçãoRevista de Nutrição; v. 16 n. 2 (2003): Revista de Nutrição1678-9865reponame:Revista de Nutriçãoinstname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/9132/6515Copyright (c) 2023 Alexsandra TOMÉ, Suely Teresinha Schmidt Passos de AMORIM, Deise Regina Baptista MENDONÇAhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessTOMÉ, Alexsandra Schmidt Passos de AMORIM, Suely Teresinha Baptista MENDONÇA, Deise Regina 2024-04-08T14:11:15Zoai:ojs.periodicos.puc-campinas.edu.br:article/9132Revistahttp://www.scielo.br/rnPRIhttps://periodicos.puc-campinas.edu.br/nutricao/oai||sbi.submissionrn@puc-campinas.edu.br1678-98651415-5273opendoar:2024-04-08T14:11:15Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false |
dc.title.none.fl_str_mv |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view Dieta cetogênica no tratamento das epilepsias graves da infância: percepção das mães |
title |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
spellingShingle |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view TOMÉ, Alexsandra ketogenic diet epilepsy professional performance child dieta cetogênica epilepsia atuação profissional criança |
title_short |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
title_full |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
title_fullStr |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
title_full_unstemmed |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
title_sort |
Ketogenic diet in the treatment of intractable epilepsy in children: mothers view |
author |
TOMÉ, Alexsandra |
author_facet |
TOMÉ, Alexsandra Schmidt Passos de AMORIM, Suely Teresinha Baptista MENDONÇA, Deise Regina |
author_role |
author |
author2 |
Schmidt Passos de AMORIM, Suely Teresinha Baptista MENDONÇA, Deise Regina |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
TOMÉ, Alexsandra Schmidt Passos de AMORIM, Suely Teresinha Baptista MENDONÇA, Deise Regina |
dc.subject.por.fl_str_mv |
ketogenic diet epilepsy professional performance child dieta cetogênica epilepsia atuação profissional criança |
topic |
ketogenic diet epilepsy professional performance child dieta cetogênica epilepsia atuação profissional criança |
description |
The purpose of this study was to identify the feelings and difficulties experienced by mothers of children with drug-resistant epilepsy concerning the adoption of the ketogenic diet and its follow-up, as well as to evaluate the influence of this dietotherapy on the family routine. The qualitative research methodology was used, and data were collected through semi-structured interview, carried out with three mothers who attended the Neuropediatrics Center of the Clinical Hospital of the Federal University of Paraná, Brazil. Because of the characteristics of the ketogenic diet, the results show that the initial period, corresponding to the phase ofadoption, is very difficult, for both the child and all the family. However, with the decrease in the epileptic crises and the adaptation to the treatment, a change in the feelings is observed. The study also reveals the importance of the performance of the professional, who should act not only with technical competence but also with sensibility and empathy, giving support to the families of children under treatment. |
publishDate |
2003 |
dc.date.none.fl_str_mv |
2003-06-25 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132 |
url |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/9132/6515 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Núcleo de Editoração – PUC-Campinas |
publisher.none.fl_str_mv |
Núcleo de Editoração – PUC-Campinas |
dc.source.none.fl_str_mv |
Brazilian Journal of Nutrition; Vol. 16 No. 2 (2003): Revista de Nutrição Revista de Nutrição; Vol. 16 Núm. 2 (2003): Revista de Nutrição Revista de Nutrição; v. 16 n. 2 (2003): Revista de Nutrição 1678-9865 reponame:Revista de Nutrição instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) instacron:PUC_CAMP |
instname_str |
Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
instacron_str |
PUC_CAMP |
institution |
PUC_CAMP |
reponame_str |
Revista de Nutrição |
collection |
Revista de Nutrição |
repository.name.fl_str_mv |
Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
repository.mail.fl_str_mv |
||sbi.submissionrn@puc-campinas.edu.br |
_version_ |
1799126071862362112 |