Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down

Detalhes bibliográficos
Autor(a) principal: Mayer, Maria Grazia Guillen
Data de Publicação: 2015
Tipo de documento: Tese
Idioma: por
Título da fonte: Repositório Institucional da UFSCAR
Texto Completo: https://repositorio.ufscar.br/handle/ufscar/7474
Resumo: Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment.
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spelling Mayer, Maria Grazia GuillenAlmeida, Maria Améliahttp://lattes.cnpq.br/0316944549621648Lopes-Herrera, Simone Aparecidahttp://lattes.cnpq.br/1937961006585927http://lattes.cnpq.br/19801131677772664f2fcd98-b796-4ecd-8bbc-845e0a5086e12016-09-26T20:49:13Z2016-09-26T20:49:13Z2015-03-31MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474.https://repositorio.ufscar.br/handle/ufscar/7474Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment.A síndrome de Down é a causa genética mais comum de déficit intelectual e as alterações das habilidades cognitivas é uma consequência primária, e aparece como resultado de anormalidades estruturais e funcionais do sistema nervoso central. Essas alterações também influenciam nas relações que a criança estabelece no seu ambiente, pressupondo, dessa forma, que a criança atue mais passivamente no meio em que está inserida. Familiares de crianças com síndrome de Down podem ter comportamentos durante a interação que não estimulam adequadamente o desenvolvimento da linguagem dessas crianças. O objetivo do presente estudo foi desenvolver e aplicar um programa de intervenção e orientação sobre a estimulação de linguagem para famílias de crianças com síndrome de Down. No que diz respeito à metodologia, participaram três famílias de crianças com síndrome de Down (SD); foram utilizadas gravações da interação entre um familiar escolhido como participante alvo e a criança. Para a intervenção, a pesquisadora escolheu quatro jogos que podem ser usados para estimulação da linguagem da criança e trabalhou com o participante alvo (no caso dessa pesquisa foram irmãs mais velhas das crianças com síndrome de Down), comportamentos que durante os jogos estimulariam a linguagem dessas crianças. As gravações foram realizadas no próprio domicílio dos participantes e para verificar os resultados da intervenção foi aplicado o delineamento por múltiplas sondagens. Quanto aos resultados verificou-se mudança no comportamento dos participantes alvos após as intervenções e, observou-se que houve melhoras significativas na linguagem receptiva e expressiva das crianças com Síndrome de Down. Ademais a pesquisadora atuou como mediadora levando informações, orientações e auxiliando essas famílias no que diz respeito à escola e SD – o que demonstra a importância da mediação no empoderamento familiar.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)porUniversidade Federal de São CarlosCâmpus São CarlosPrograma de Pós-Graduação em Educação Especial - PPGEEsUFSCarEducação especialSíndrome de DownLinguagemComunicaçãoFonoaudiologiaFamíliaSpecial educationDown SyndromeLanguageCommunicationSpeech therapyFamilyCIENCIAS HUMANAS::EDUCACAOPrograma de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Downinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisOnline6006000f8596ac-a905-4070-851b-9f11cbadabf3info:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINALTeseMGGM.pdfTeseMGGM.pdfapplication/pdf1943442https://repositorio.ufscar.br/bitstream/ufscar/7474/1/TeseMGGM.pdfb39e2b91a2115a93501a46939aa53453MD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81957https://repositorio.ufscar.br/bitstream/ufscar/7474/2/license.txtae0398b6f8b235e40ad82cba6c50031dMD52TEXTTeseMGGM.pdf.txtTeseMGGM.pdf.txtExtracted texttext/plain227771https://repositorio.ufscar.br/bitstream/ufscar/7474/3/TeseMGGM.pdf.txtb7f4ed9744a3daf5f63c8ab14e4a4a15MD53THUMBNAILTeseMGGM.pdf.jpgTeseMGGM.pdf.jpgIM Thumbnailimage/jpeg7595https://repositorio.ufscar.br/bitstream/ufscar/7474/4/TeseMGGM.pdf.jpg207fa9f422f7ee1a914d71cecc2fa1b9MD54ufscar/74742023-09-18 18:30:51.31oai:repositorio.ufscar.br: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Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222023-09-18T18:30:51Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false
dc.title.por.fl_str_mv Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
title Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
spellingShingle Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
Mayer, Maria Grazia Guillen
Educação especial
Síndrome de Down
Linguagem
Comunicação
Fonoaudiologia
Família
Special education
Down Syndrome
Language
Communication
Speech therapy
Family
CIENCIAS HUMANAS::EDUCACAO
title_short Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
title_full Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
title_fullStr Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
title_full_unstemmed Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
title_sort Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
author Mayer, Maria Grazia Guillen
author_facet Mayer, Maria Grazia Guillen
author_role author
dc.contributor.authorlattes.por.fl_str_mv http://lattes.cnpq.br/1980113167777266
dc.contributor.author.fl_str_mv Mayer, Maria Grazia Guillen
dc.contributor.advisor1.fl_str_mv Almeida, Maria Amélia
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/0316944549621648
dc.contributor.advisor-co1.fl_str_mv Lopes-Herrera, Simone Aparecida
dc.contributor.advisor-co1Lattes.fl_str_mv http://lattes.cnpq.br/1937961006585927
dc.contributor.authorID.fl_str_mv 4f2fcd98-b796-4ecd-8bbc-845e0a5086e1
contributor_str_mv Almeida, Maria Amélia
Lopes-Herrera, Simone Aparecida
dc.subject.por.fl_str_mv Educação especial
Síndrome de Down
Linguagem
Comunicação
Fonoaudiologia
Família
topic Educação especial
Síndrome de Down
Linguagem
Comunicação
Fonoaudiologia
Família
Special education
Down Syndrome
Language
Communication
Speech therapy
Family
CIENCIAS HUMANAS::EDUCACAO
dc.subject.eng.fl_str_mv Special education
Down Syndrome
Language
Communication
Speech therapy
Family
dc.subject.cnpq.fl_str_mv CIENCIAS HUMANAS::EDUCACAO
description Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment.
publishDate 2015
dc.date.issued.fl_str_mv 2015-03-31
dc.date.accessioned.fl_str_mv 2016-09-26T20:49:13Z
dc.date.available.fl_str_mv 2016-09-26T20:49:13Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/doctoralThesis
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dc.identifier.citation.fl_str_mv MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474.
dc.identifier.uri.fl_str_mv https://repositorio.ufscar.br/handle/ufscar/7474
identifier_str_mv MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474.
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