Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down
Autor(a) principal: | |
---|---|
Data de Publicação: | 2015 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFSCAR |
Texto Completo: | https://repositorio.ufscar.br/handle/ufscar/7474 |
Resumo: | Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment. |
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Mayer, Maria Grazia GuillenAlmeida, Maria Améliahttp://lattes.cnpq.br/0316944549621648Lopes-Herrera, Simone Aparecidahttp://lattes.cnpq.br/1937961006585927http://lattes.cnpq.br/19801131677772664f2fcd98-b796-4ecd-8bbc-845e0a5086e12016-09-26T20:49:13Z2016-09-26T20:49:13Z2015-03-31MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474.https://repositorio.ufscar.br/handle/ufscar/7474Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment.A síndrome de Down é a causa genética mais comum de déficit intelectual e as alterações das habilidades cognitivas é uma consequência primária, e aparece como resultado de anormalidades estruturais e funcionais do sistema nervoso central. Essas alterações também influenciam nas relações que a criança estabelece no seu ambiente, pressupondo, dessa forma, que a criança atue mais passivamente no meio em que está inserida. Familiares de crianças com síndrome de Down podem ter comportamentos durante a interação que não estimulam adequadamente o desenvolvimento da linguagem dessas crianças. O objetivo do presente estudo foi desenvolver e aplicar um programa de intervenção e orientação sobre a estimulação de linguagem para famílias de crianças com síndrome de Down. No que diz respeito à metodologia, participaram três famílias de crianças com síndrome de Down (SD); foram utilizadas gravações da interação entre um familiar escolhido como participante alvo e a criança. Para a intervenção, a pesquisadora escolheu quatro jogos que podem ser usados para estimulação da linguagem da criança e trabalhou com o participante alvo (no caso dessa pesquisa foram irmãs mais velhas das crianças com síndrome de Down), comportamentos que durante os jogos estimulariam a linguagem dessas crianças. As gravações foram realizadas no próprio domicílio dos participantes e para verificar os resultados da intervenção foi aplicado o delineamento por múltiplas sondagens. Quanto aos resultados verificou-se mudança no comportamento dos participantes alvos após as intervenções e, observou-se que houve melhoras significativas na linguagem receptiva e expressiva das crianças com Síndrome de Down. Ademais a pesquisadora atuou como mediadora levando informações, orientações e auxiliando essas famílias no que diz respeito à escola e SD – o que demonstra a importância da mediação no empoderamento familiar.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)porUniversidade Federal de São CarlosCâmpus São CarlosPrograma de Pós-Graduação em Educação Especial - PPGEEsUFSCarEducação especialSíndrome de DownLinguagemComunicaçãoFonoaudiologiaFamíliaSpecial educationDown SyndromeLanguageCommunicationSpeech therapyFamilyCIENCIAS HUMANAS::EDUCACAOPrograma de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Downinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisOnline6006000f8596ac-a905-4070-851b-9f11cbadabf3info:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINALTeseMGGM.pdfTeseMGGM.pdfapplication/pdf1943442https://repositorio.ufscar.br/bitstream/ufscar/7474/1/TeseMGGM.pdfb39e2b91a2115a93501a46939aa53453MD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81957https://repositorio.ufscar.br/bitstream/ufscar/7474/2/license.txtae0398b6f8b235e40ad82cba6c50031dMD52TEXTTeseMGGM.pdf.txtTeseMGGM.pdf.txtExtracted texttext/plain227771https://repositorio.ufscar.br/bitstream/ufscar/7474/3/TeseMGGM.pdf.txtb7f4ed9744a3daf5f63c8ab14e4a4a15MD53THUMBNAILTeseMGGM.pdf.jpgTeseMGGM.pdf.jpgIM Thumbnailimage/jpeg7595https://repositorio.ufscar.br/bitstream/ufscar/7474/4/TeseMGGM.pdf.jpg207fa9f422f7ee1a914d71cecc2fa1b9MD54ufscar/74742023-09-18 18:30:51.31oai:repositorio.ufscar.br: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Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222023-09-18T18:30:51Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false |
dc.title.por.fl_str_mv |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
title |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
spellingShingle |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down Mayer, Maria Grazia Guillen Educação especial Síndrome de Down Linguagem Comunicação Fonoaudiologia Família Special education Down Syndrome Language Communication Speech therapy Family CIENCIAS HUMANAS::EDUCACAO |
title_short |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
title_full |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
title_fullStr |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
title_full_unstemmed |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
title_sort |
Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down |
author |
Mayer, Maria Grazia Guillen |
author_facet |
Mayer, Maria Grazia Guillen |
author_role |
author |
dc.contributor.authorlattes.por.fl_str_mv |
http://lattes.cnpq.br/1980113167777266 |
dc.contributor.author.fl_str_mv |
Mayer, Maria Grazia Guillen |
dc.contributor.advisor1.fl_str_mv |
Almeida, Maria Amélia |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/0316944549621648 |
dc.contributor.advisor-co1.fl_str_mv |
Lopes-Herrera, Simone Aparecida |
dc.contributor.advisor-co1Lattes.fl_str_mv |
http://lattes.cnpq.br/1937961006585927 |
dc.contributor.authorID.fl_str_mv |
4f2fcd98-b796-4ecd-8bbc-845e0a5086e1 |
contributor_str_mv |
Almeida, Maria Amélia Lopes-Herrera, Simone Aparecida |
dc.subject.por.fl_str_mv |
Educação especial Síndrome de Down Linguagem Comunicação Fonoaudiologia Família |
topic |
Educação especial Síndrome de Down Linguagem Comunicação Fonoaudiologia Família Special education Down Syndrome Language Communication Speech therapy Family CIENCIAS HUMANAS::EDUCACAO |
dc.subject.eng.fl_str_mv |
Special education Down Syndrome Language Communication Speech therapy Family |
dc.subject.cnpq.fl_str_mv |
CIENCIAS HUMANAS::EDUCACAO |
description |
Down syndrome is the most common genetic cause of intellectual disability and changes in cognitive skills is a primary consequence, and appears as a result of structural and functional abnormalities of the central nervous system. These changes also influence the relationships that the child establishes in her environment, assuming, therefore, that the child acts more passively in the environment in which she operates. Families of children with Down syndrome may have behaviors during the interaction that do not adequately stimulate language development of these children. The aim of this study was to develop and implement an intervention and guidance program on language stimulation for families of children with Down syndrome. Related to the methodology, three families of children with Down syndrome (DS) participated; the interaction recordings between the family member chosen as target participant (in this study the target participants were sisters of children with Down syndrome) and the child were used. For the intervention, the researcher chose four games that can be used to stimulate children's language and worked with the target participants behaviors that during the games stimulate the language of these children. The recordings were made in the participants’ homes and check the intervention results a multiple probe design was applied. As for the results it was found that there was a change in target participants behavior after intervention and it was observed that there were significant improvements in children receptive and expressive language. In addition, the researcher acted as mediator providing information, guidance and helping these families in relation to school aspects and SD - demonstrating the importance of mediation in family Empowerment. |
publishDate |
2015 |
dc.date.issued.fl_str_mv |
2015-03-31 |
dc.date.accessioned.fl_str_mv |
2016-09-26T20:49:13Z |
dc.date.available.fl_str_mv |
2016-09-26T20:49:13Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/doctoralThesis |
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doctoralThesis |
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publishedVersion |
dc.identifier.citation.fl_str_mv |
MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufscar.br/handle/ufscar/7474 |
identifier_str_mv |
MAYER, Maria Grazia Guillen. Programa de intervenção familiar para a estimulação de linguagem em crianças com síndrome de Down. 2015. Tese (Doutorado em Educação Especial) – Universidade Federal de São Carlos, São Carlos, 2015. Disponível em: https://repositorio.ufscar.br/handle/ufscar/7474. |
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https://repositorio.ufscar.br/handle/ufscar/7474 |
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Universidade Federal de São Carlos Câmpus São Carlos |
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Programa de Pós-Graduação em Educação Especial - PPGEEs |
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Universidade Federal de São Carlos Câmpus São Carlos |
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