Family caregiving in chronic illness
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Reme (Online) |
Texto Completo: | https://periodicos.ufmg.br/index.php/reme/article/view/50144 |
Resumo: | This study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed. |
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Family caregiving in chronic illnessCuidados familiares en la experiencia de enfermedad crónica de un jovenCuidado familiar na experiência do adoecimento crônico de um jovem: a young person's experienceRelaciones FamiliaresAcontecimientos que cambian la vidaEnfermedad CrónicaCuidadoresRelações FamiliaresAcontecimentos que mudam a vidaDoença CrônicaCuidadoresFamily RelationsLife Change EventsChronic DiseaseCaregiversThis study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed.El presente estudio tuvo como objetivo entender cómo se forma el cuidado familiar en la experiencia de enfermedad crónica de un joven con cáncer y problemas renales desde la niñez y en la adolescencia. Se trata de una investigación comprensiva proyectada como análisis de la situación desde la historia de vida. Durante el trabajo de campo se utilizaron la entrevista en profundidad y la observación para obtener elementos oídos, vistos y vividos, registrados en el diario de campo. Luego, se fue formando el corpus de análisis que, después de su lectura vertical y horizontal, mostró diferentes aspectos que impregnaban la narración. Se elaboró el genograma del joven y de su familia. A medida que los daños de la enfermedad crónica del joven repercutían en la vida de los familiares, éstos eran obligados a cuidarlo, en una sinergia de acciones y constante movimiento, brindándole una especie de apoyo. Hubo otras situaciones en la experiencia de enfermedad del joven y su familia y ante cada nueva condición impuesta, ellos fueron buscando nuevos medios de superación.Objetivou-se compreender como se moldou o cuidado familiar na experiência de adoecimento crônico que perpassou a infância e a adolescência de jovem acometido por doença renal e câncer. Estudo de abordagem compreensiva, moldado como análise situacional a partir da história de vida. No trabalho de campo, empregou-se a entrevista em profundidade e observação para apreensão dos elementos ouvidos, vistos e experienciados, registrados em diário de campo. A partir deste último, moldou-se o corpus de análise que, após leituras vertical e horizontal, evidenciou aspectos que permeiam as diferentes narrativas. Do corpus, desenhou-se o genograma do jovem e família. Conforme os afetamentos do adoecimento crônico do jovem repercutiam na vida dos familiares, estes eram compelidos a cuidar dele, numa sinergia de atuações e constante movimento, oferecendo-lhe certa sustentação. Desenvolveram-se outras normalidades na vivência do adoecimento pelo jovem e família e a cada nova condição imposta, novos meios de superação foram por eles desenvolvidos.Universidade Federal de Minas Gerais2014-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/plainapplication/pdfapplication/pdfhttps://periodicos.ufmg.br/index.php/reme/article/view/5014410.5935/1415-2762.20140053REME-Revista Mineira de Enfermagem; Vol. 18 No. 3 (2014)REME-Revista Mineira de Enfermagem; Vol. 18 Núm. 3 (2014)REME-Revista Mineira de Enfermagem; v. 18 n. 3 (2014)2316-93891415-2762reponame:Reme (Online)instname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGporenghttps://periodicos.ufmg.br/index.php/reme/article/view/50144/41345https://periodicos.ufmg.br/index.php/reme/article/view/50144/41346https://periodicos.ufmg.br/index.php/reme/article/view/50144/41347Copyright (c) 2014 Reme: Revista Mineira de Enfermageminfo:eu-repo/semantics/openAccessAlmeida, Karla Beatriz Barros deAraújo, Laura Filomena Santos deBellato, Roseney2024-01-24T12:41:22Zoai:periodicos.ufmg.br:article/50144Revistaremeufmg@gmail.comPUBhttps://periodicos.ufmg.br/index.php/reme/oairemeufmg@gmail.com2316-93891415-2762opendoar:2024-01-24T12:41:22Reme (Online) - Universidade Federal de Minas Gerais (UFMG)false |
dc.title.none.fl_str_mv |
Family caregiving in chronic illness Cuidados familiares en la experiencia de enfermedad crónica de un joven Cuidado familiar na experiência do adoecimento crônico de um jovem: a young person's experience |
title |
Family caregiving in chronic illness |
spellingShingle |
Family caregiving in chronic illness Almeida, Karla Beatriz Barros de Relaciones Familiares Acontecimientos que cambian la vida Enfermedad Crónica Cuidadores Relações Familiares Acontecimentos que mudam a vida Doença Crônica Cuidadores Family Relations Life Change Events Chronic Disease Caregivers |
title_short |
Family caregiving in chronic illness |
title_full |
Family caregiving in chronic illness |
title_fullStr |
Family caregiving in chronic illness |
title_full_unstemmed |
Family caregiving in chronic illness |
title_sort |
Family caregiving in chronic illness |
author |
Almeida, Karla Beatriz Barros de |
author_facet |
Almeida, Karla Beatriz Barros de Araújo, Laura Filomena Santos de Bellato, Roseney |
author_role |
author |
author2 |
Araújo, Laura Filomena Santos de Bellato, Roseney |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Almeida, Karla Beatriz Barros de Araújo, Laura Filomena Santos de Bellato, Roseney |
dc.subject.por.fl_str_mv |
Relaciones Familiares Acontecimientos que cambian la vida Enfermedad Crónica Cuidadores Relações Familiares Acontecimentos que mudam a vida Doença Crônica Cuidadores Family Relations Life Change Events Chronic Disease Caregivers |
topic |
Relaciones Familiares Acontecimientos que cambian la vida Enfermedad Crónica Cuidadores Relações Familiares Acontecimentos que mudam a vida Doença Crônica Cuidadores Family Relations Life Change Events Chronic Disease Caregivers |
description |
This study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-09-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.ufmg.br/index.php/reme/article/view/50144 10.5935/1415-2762.20140053 |
url |
https://periodicos.ufmg.br/index.php/reme/article/view/50144 |
identifier_str_mv |
10.5935/1415-2762.20140053 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://periodicos.ufmg.br/index.php/reme/article/view/50144/41345 https://periodicos.ufmg.br/index.php/reme/article/view/50144/41346 https://periodicos.ufmg.br/index.php/reme/article/view/50144/41347 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2014 Reme: Revista Mineira de Enfermagem info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2014 Reme: Revista Mineira de Enfermagem |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/plain application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
dc.source.none.fl_str_mv |
REME-Revista Mineira de Enfermagem; Vol. 18 No. 3 (2014) REME-Revista Mineira de Enfermagem; Vol. 18 Núm. 3 (2014) REME-Revista Mineira de Enfermagem; v. 18 n. 3 (2014) 2316-9389 1415-2762 reponame:Reme (Online) instname:Universidade Federal de Minas Gerais (UFMG) instacron:UFMG |
instname_str |
Universidade Federal de Minas Gerais (UFMG) |
instacron_str |
UFMG |
institution |
UFMG |
reponame_str |
Reme (Online) |
collection |
Reme (Online) |
repository.name.fl_str_mv |
Reme (Online) - Universidade Federal de Minas Gerais (UFMG) |
repository.mail.fl_str_mv |
remeufmg@gmail.com |
_version_ |
1797041906043060224 |